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kayo

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Everything posted by kayo

  1. kayo
    These are a life saver for when you just *need* a brownie: Open Original Shared Link I swear if I ever meet George I'm kissing him.
  2. kayo

    ARCHIVED Burritos!

    kayo replied to K8ling's topic in Coping with Celiac Disease

    Amy's makes a great gluten-free burrito. One with cheese and one without.
  3. kayo
    I'm already packed - let's go!
  4. kayo
    I don't eat Vans because they contain soy. Soy gives me a worse reaction than gluten. Is it possible soy bothers you too?
  5. kayo
    I can have the oil once in a while and not too much. I do my best to avoid it. I'm not sure if lecithin bothers me or not because I avoid it too. Chocolate gives me major heartburn and that's the only thing that I see soy lecithin in alone that I could try for an experiment.
  6. kayo
    Udi's and Kinnikinnik make great muffins. There are also frozen gluten-free pizzas and pizza crusts available if you don't bake. I was never much of a baker before but have dusted off my apron and now I bake regularly. I still prefer cooking over baking but nothing beats a craving like something warm and fresh out of the oven or bread machine.
  7. kayo
    I experienced it as well and I'm not even what I would consider very sensitive. It was early on in the diet, maybe just a few months, we walked into a restaurant and passed their pizza making area where they make the dough, the pizzas/calzones and bake them in the open fireplace ovens. I got so dizzy and light headed and woozy. I couldn't concentrate. I felt...
  8. kayo
    I missed the negatives too. Maybe I need new I firmly believe more genes are associated with celiac and many that are yet to be discovered. I'm DQ4 and DQ5 and though my tests were negative due to being gluten-free at the time of testing my doc firmly believes I have celiac. My sister is also celiac and is awaiting gene testing.
  9. kayo
    MacieMay, My understanding is that DQ2 and DQ8 are the recognized celiac genes. Quick google shows: Genetic predisposition plays a key role in celiac disease and considerable progress has been made recently in identifying genes that are responsible for celiac disease predisposition. It is well known that celiac disease is strongly associated with...
  10. kayo
    Wow, talk a about a troll fest over there on the mythbuster's thread. That one person needs a hobby! I cant take anyone seriously when they condescendingly start a reply with, now ladies... I just registered so I can also request they tackle how easily, or not, gluten can be destroyed on cookware and utensils. I think that would make for a very interesting...
  11. kayo
    I second this request. I'm missing spring rolls something fierce. I've tried some rice wrappers but they get very sticky when fried. I'm going to try some technique used to make har gow using tapioca and rice starch. I'm not SCD, though I am FODMAP. I'm always intrigued by new foods and techniques.
  12. kayo
    Which thread? I'd love to read this. We watch mythbusters all the time. Well said, and I wholeheartedly agree.
  13. kayo
    I use Hellman's Canola mayo. No soy oil. It's quite good. I have tried some other brands but they tasted weird to me. If you're looking for a soy free cooking spray (also hard to find) check out Pam for Grilling. I swear I read 20 cans of spray before reading about this one on the board. Soy free tuna can be found at Trader Joe's. My go to...
  14. kayo
    Once I went gluten free I noticed my symptoms didn't fully go away. I had roaming pain too. I had more tests and found out I had SIBO. I likely had it for years but going gluten-free really highlighted it. I was also tested for fructose malabsorption but that came back negative. Other things to consider: other food allergies, ulcers, colitis, Crohn's, diverticulitis...
  15. kayo
    I do believe people when they have a stronger or milder reaction than I'm familiar with. Each of us are different, our immune systems are in varying stages of strength and the disease itself falls along a range (mild villi atrophy to severe - for example). I have had gluten exposure and should have had a reaction and didn't and then have had horrible reactions...
  16. kayo
    recently when that cruise lost power and everyone had to live off poptarts, crackers and milk for a few days I thought, damn, I'd be screwed in such a situation. Even worse their toilets didn't flush either . We do travel quite a bit and these sort of things cross my mind occasionally.
  17. kayo
    I'm soy intolerant and I do avoid lecithin. I am not sure if I react to it or not but avoid it just to be safe. I definitely avoid soy protein (soy flour, tofu, soy sauce, etc.). As for soy oil I make a judgment call. If there's a choice, I avoid it. If it's not a choice I don't sweat it. I don't seem to react to it but I don't know for sure. It's nearly...
  18. kayo
    Our microwave at work should be declared a health hazard. I once opened it and said out loud, OMG, did a murder happen in here? I avoid it unless it's been cleaned not because of gluten but because it's just gross. When clean I use a paper plate under my tupperware and put a paper towel over the food or the tupperware lid. Then I discard the paper plate ...
  19. kayo
    I tried one and it was too light. I had 1986 flashbacks!! I tossed it so I'm not sure what shade it was, sorry. My fave is the peppermint vanilla (no shimmer). Mositurizer I use Avon (body) and Mary Kay (face). Avon lists all their ingredients and Mary Kay does not use any gluten. I like that. Takes all the guess work out. I use their raspberry...
  20. kayo
    Is there a reason you wouldn't just put your children on a gluten free diet? Forget the tests and the docs and just go ahead with the diet changes and see if they improve? My test results are inconclusive because I was gluten-free at the time of testing but doc feels I have celiac as I have all the symptoms. Those symptoms go away when I'm gluten-free...
  21. kayo
    I use a combo of Mary Kay, Avon, Cover Girl, MAC, and softlips. That pretty much runs the gamut on pricing!
  22. kayo
    I get sarcastic remarks sometimes and I guess it depends on my day how I feel and react. Mostly I ignore them and relish the fact that I feel good, I look good and that I'm happy. How I achieve that is my own personal journey and not up for debate. I also opt not to give food so much power. It's just fuel. Fuel to get us through the day. Don't get me...
  23. kayo
    If you need to avoid lactose but not cassein the 100% lactose free Green Valley yogurts are awesome (no soy, no gluten). Otherwise the Coconut based yogurts would be your best bet (no dairy, soy or gluten). I've read some recipes on how to make your own yogurt from almond milk but I haven't tried that yet.
  24. kayo

    ARCHIVED SIBO

    kayo replied to brewers5465's topic in Coping with Celiac Disease

    I didn't know anything about SIBO until the doc mentioned it. I never would have known that's what my core issue was on my own even though I had been trying to get to the root of my GI issues for 5+ years. The test is hydrogen breath test like you said. You drink something and then they take breath samples every 20 mins or so. I spent most of the time...
  25. kayo

    ARCHIVED SIBO

    kayo replied to brewers5465's topic in Coping with Celiac Disease

    I conquered SIBO. I had the test and did the round of antibiotics and stuck to the low FODMAP diet which is basically avoiding the foods in the list you have above. It took a couple of months to fully heal. I'm ok now and have been able to add some foods back into my diet. I do eat gluten-free grains, beans, mushrooms and lactose-free cheese and yogurt in...
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