Jump to content

kayo

Advanced Members
 View Profile  See their activity

  • Posts

    322

  • Joined

  • Last visited

  • Days Won

    2

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by kayo

  1. kayo

    ARCHIVED Soy Intolerance

    kayo replied to SoyBoy's topic in Coping with Celiac Disease

    That's my experience as well. It's difficult for me to tell sometimes if I've been glutened or soy'd but then I look at my ankles (cankles) and say yup, soy'd. I puff right up and dry out (dry eyes, mouth, etc.).
  2. kayo
    I've never had an issue with anything I've had from Trader Joe's marked as gluten-free. I hate to see a store that goes out of their way to be informative about the content and manufacturing of their food deemed a villain. That seems so over the top to me. Some of us are more sensitive than others so we just have to make our own best decisions based on the...
  3. kayo
    That's quite odd! Why would they put sugar alcohol in Humira? It's not like you'd be drinking it. Must be a preservative. I take Enbrel and wonder if it too contains sugar. (Humira and Enbrel are like the Coke and Pepsi of RA meds) I have issues with fructose, fructans, sugars and I'm on a FODMAP diet. I never thought to check my meds for mannitol or...
  4. kayo
    Injection is the best way to get those levels up. You can get a higher dose in injection form than you can in a vitamin you take orally. I had B12 injections in my young 30's well before all my GI/non-celiac issues cropped up. It's one of those things that those of us with autoimmune illnesses have to keep an eye on.
  5. kayo
    If you have insurance and can afford to so I would suggest seeing both. I have one of each and also an allergy doc. It can sometimes take a bit to find docs worth seeing but once you get a good team assembled it's so worth it.
  6. kayo
    Hi keshav, sorry to hear you're having some difficulties. Something in your post jumped out at me that may be of some help you. The elevate Eos indicates that you are having an ongoing allergic response. My doc picked up on this and theorized that my body was making too much histamine in my gut and therefor reacting to everything I ate as if I were allergic...
  7. kayo
    I agree, talk to a doctor. That's a lot of weight in a short amount of time. I bet much of it is inflammation and swelling, ie, water weight. You may have something else going on like SIBO or additional food intolerances. Soy was a big culprit in my weight gain and swelling. That's something to take a look at as there's quite a bit of soy in gluten-free foods...
  8. kayo
    I can relate! It will go away but it will take time. It's possible you could have additional intolerances as that is pretty common with all of us, celiac or non-celiac. I'm intolerant to soy which makes being dairy free a bit trickier since soy is the perfect non-dairy solution, but there are others. A good probiotic and digestive enzyme will help. Keep a...
  9. kayo
    I use Open Original Shared Link toothpaste because I needed something that was gluten-free and sorbitol free. My teeth have never felt so clean! They're squeaky dentist-clean every day. My last two dental appointments the hygienist remarked how amazing my teeth looked. I had no plaque and no tartar either time. All the diet changes have made a huge difference...
  10. kayo

    ARCHIVED Pasta Recipes

    kayo replied to sandiz's topic in Coping with Celiac Disease

    Pre gluten-free days I used wontons for making a quick ravioli. I wonder if the rice papers would work or if they would fall apart? They're awfully delicate. gluten-free wonton wrappers would rock my world. Even better would be an already made frozen gluten-free eggroll/spring roll! (hoping the good folks at Udi's and Kinnikinnik read this forum ...
  11. kayo

    ARCHIVED Pasta Recipes

    kayo replied to sandiz's topic in Coping with Celiac Disease

    You had me at pierogi!! I'd love something like this too. I haven't ventured that far into my cooking yet. Waiting for the cooler weather. My husband bought me a pasta attachment for my Kitchen Aid mixer so I plan on trying some things out. I wish the gluten-free bread makers like Udi's and Kinnikinnik would make frozen gluten-free dough that would mimic...
  12. kayo
    Report him. I can't believe he treated you that way. So sorry. Copy the department head, the supervising doctor, your primary care, etc.
  13. kayo
    I recently read on this board that even the walk up type food places at Disney are intolerance/allergy accommodating. Sorry, I do not recall the thread where I read it. I tucked that info into my brain since we may be going to Disney soon. I haven't really traveled much since going gluten-free (and others) so tips like this tend to jump out at me. I don...
  14. kayo
    The best part of this forum is that everyone gets to share their experiences which are extremely helpful. We all have different levels of symptoms, healing and reactions. That said, Gemini, your posts are incredibly insulting and condescending. While you have a very interesting viewpoint it's getting lost on me when you say things that suggest the rest...
  15. kayo
    I'm glad this was mentioned as it describes my symptoms too. I'm also seeing undigested food. Well, hello carrots! I googled yellow stool and the pancreas was mentioned which scares the dickens out of me. A good friend of mine who also had RA and took the same RA med as I do died of pancreatic cancer a few years ago. The pain I get is in the front just...
  16. kayo
    Sounds like you have it solved but I wanted to add that the Van waffles have soy in them and so many of us react to soy. Which is too bad because I loved those waffles before learning I couldn't tolerate soy.
  17. kayo
    I'm not sure I have ever had DH but suspect I have and it was misdiagnosed as shingles. I'm also prone to random hives, psoriasis, kp (chicken skin) and general redness. When I went gluten free I changed all my hair and body products and cosmetics. I now rarely have hives or psoriasis and my kp is slowly going away. So for me I know there was a connection...
  18. kayo
    Not true in any shape. A person with celiac has to remain gluten free for life.
  19. kayo
    This thread is so interesting and this is too: Alcohol doesn't affect me like it does others either. I can drink everyone under the table. I will often feel sick well before I feel drunk. I joke that I get the hangover first and then the buzz. I barely drink anymore but when I think back to my college days I'm amazed at how much I could drink...
  20. kayo
    You're welcome, glad it's helpful. It's weird, in some ways I'm better and worse in others. The bloating is gone. I no longer look pregnant. The gas is gone and the feeling of feeling constantly hungry. But all food is bothering me and causing big D. I was out sick twice last week and my weekend was a bust. Doc thinks my body is producing too...
  21. kayo
    Oh vbecton, my sympathy goes out to you. It's so frustrating. Hopefully the docs will figure it out. I too feel like death warmed over and I'm reacting to everything. It's such a long road for some of us. Driving into work today all I wanted to do was turn around and go back to bed. Off to look up microscopic colitis... Hang in there!
  22. kayo
    I've never had poison ivy or oak either. I've been exposed to poison ivy many times. The people I was with broke out into major rashes and nothing happened to me. I even have poison ivy in my yard and while my neighbor has had a reaction nothing has happened to me.
  23. kayo
    It could also be soy. It's in a lot of the gluten-free baked goods. That one threw me for a loop. I had no idea I had a soy intolerance. I also have issues with fructose and fructans and my doc suspect my body produces too much histamine. After finishing a round of antibiotics for SIBO I had (still have) constant D even on a bland diet of chicken, rice, bananas...
  24. kayo
    But very little does not equal none. Besides, he didn't make that distinction so she continued to eat cottage cheese, cream cheese, yogurt, etc. I'm severely lactose intolerant and been dairy free for a long time so I know my stuff when it comes to lactose, cassein and whey. Lactaid doesn't work for me but I suggested to my friend that she try Lactaid...
  25. kayo
    I have RA and have had a lot of surgeries and related illnesses and I heard the "It could be worse" many times in my life. This is one of my favorite responses if I feel they are being flippant or condescending. Them: It could be worse Me: I know, I could have your thighs! [insert: haircut, ugly shirt, etc.] When anyone tells me, you should go...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.