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kayo

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Everything posted by kayo

  1. kayo
    Related story... a friend had gastric bypass surgery and is having trouble with her diet. She suspects she might have lactose intolerance so she called her doctor who said, yogurt and cheese don't have lactose because they're processed so she can go ahead and eat them. I can maybe sort of understand an average person may not know this but a doctor...
  2. kayo
    Congratulations are definitely in order. Isn't the validation awesome? Skylark brings up a good point about dairy and I would add soy to that as well. Even some of the gluten-free grains (quinoa, buckwheat, etc.) can be hard to digest in the beginning as you're healing. The experience you describe:
  3. kayo
    The book is fabulous. Also I just found Patsy's blog which is chuck full of info: Open Original Shared Link I think she mentions it in the book but I spaced on it. Cheers
  4. kayo
    T.H., I'm so glad you had a breakthrough too! What an interesting discovery on the swelling vocal chords. And what luck that there is a therapy that can help. I almost didn't go to see the allergist in my GI doctor's group. I've had allergists in the past that were so not helpful that I had no hope that this doc would be of any use. In fact I started this...
  5. kayo
    I totally hear you and I'm in the same boat. Today I had a bit of a breakthrough that may be of some help to you as I noticed we tend to react the same things. The allergy doc who works with my GI doc took blood to test IgE reactions to a number of foods (RAST). I was positive to 2 foods, neither of which I've eaten in a year, oats & rye. What...
  6. kayo
    I read that Chelsea has a gluten allergy and she is vegan. It didn't elaborate to say if it was celiac or gluten-intolerance.
  7. kayo
    I agree - it's so contradictory!! That's why I stick to the information that comes from Australia, Monash University, and Sue Shephard in particular. They're the pioneers in fructmal and have the latest and most accurate info. The related yahoo group is my 'go to' place to ask questions. The site also has lots of articles, lists, recipes, etc. I ordered...
  8. kayo
    I went through that a lot about 6 months into the gluten-free diet and then it lessened a bit. It's still happens but now and then. I never figured it out. Maybe someone else will have more insight. I agree it's super uncomfortable and inconvenient. edited to add: LauraBeth brings up a good point about hormones. I too figured my hormones were out of whack...
  9. kayo
    Do Glutaloompas work at the Glumpanies?
  10. kayo
    I was on the Australian yahoo group recently and the update from Sue Shephard was that coconut is now ok, cream/milk/flakes/oil. To celebrate I had a small amount of Coconut Bliss icecream. Broccoli also got the ok but I'm not celebrating that one
  11. kayo
    I walked into Sephora to read some labels on products I had at home but no longer had the packaging for. Unfortunately the print was so small I couldn't read the ingredients anyways. Knowing I would probably not get accurate information I asked the manager which of the products were gluten free. I was curious how the question would be handled and if...
  12. kayo
    Love it!!! <clapping> Fauxliacs (faux + celiacs) Those who claim to be celiac too and tell you all about it while they munch on pizza, pretzels and beer.
  13. kayo
    Sorry you got gluten after such careful preparation. This makes me wonder if we should ask that our names be put on our special meals so they aren't taken by others. It's possible someone else at the event asked for a gluten free meal at the event and the server figured that was the person. Or like the airline story, someone just took it. I guess it's not...
  14. kayo
    The only other thing I can think of is meds, like cold meds specifically. I wasn't feeling well this week and was about to take an Airborn when I noticed it contained sorbitol. I suppose I should find a sorbitol free cold med for future use but right now I'm too sick to do anything involving brain cells. I've also notices some of my lip balm/gloss with sorbitol...
  15. kayo
    I agree with the others about soy. I would have said the same thing, that it caused me no issues but lo and behold test results show I'm intolerant. Now when I do have some I break out into hives, my Sjogren's acts up and I feel really crappy. There are some Amy's meals that make me absolutely queasy. For sleeping I take 5mg of melatonin every night...
  16. kayo
    I had the hydrogen test done and was surprised it came back negative for fructmal due to how well I'm doing on the FODMAP diet. As soon as I have onions, garlic, fruit from the 'no' column or too many tomatoes I'm gassy and sick again. I was positive for SIBO and just finished a round of antibiotics so I'm sure I'm feeling better in that regard too. I started...
  17. kayo
    Hi Kathleen, I'm following the FODMAP diet and recovering from SIBO. One more day of antibiotics to go. My understanding is that the FODMAP diet starves the SIBO and prevents it from coming back. I feel good on this diet and will continue on it even though my fructose test came back negative. I don't know how anyone follows the SCD. It seems so restrictive...
  18. kayo
    I'm one of those with RA who was diagnosed with IBS and then dropped like a hot potato. No advice, no direction, not input. Just a bottle of anti-spasm pills (which didn't work). I kept pursuing it and I knew I had Crohn's or celiac or something but I kept getting brushed off. When you have an auto-immune illness like RA everything is blamed on it and...
  19. kayo
    I'll have to check out Boylans. I have found Hansens at my regular supermarket, Trader Joe's and Whole Foods (WF). WF had the largest variety of flavors. Hansens ginger ale is really good, very gingery. We used to be able to get Jones at our regular market but they don't carry it anymore. Now we get it at WF. Hubby and I once splurged and ordered a case...
  20. kayo
    Tylenol & Pepto - gluten and dairy free, I take both of these without problems Motrin & Imodium - I'm not sure, I don't take these Gas-x gel caps - gluten free Tums - not gluten free (I've read some flavors are/aren't gluten-free which is confusing enough for me to consider them not safe) Gas-x chewables - not gluten free Great alternative...
  21. kayo
    It could be a reaction to the HFCS. The extra fructose load can cause IBS symptoms like gas and bloating. Some also react to the caramel coloring which is derived from corn. If you have issues with corn that could explain it too. I miss Coke but have found that a Diet Pepsi now and then is pretty good. I also like the sodas with cane sugar like Hansens...
  22. kayo
    It can be difficult to find consistent information on the FODMAP diet but here are two resources that I have found to be very helpful: Yahoo group based in Australia - Open Original Shared Link Book - "IBS - Free at Last" by Patsy Catsos I avoid all these veggies: garlic, onions, scallions, shallots, asparagus, artichokes, cabbages, peas, beans...
  23. kayo
    Exactly. I firmly believe they're the same thing but the right tests haven't been created yet and all of the genetic markers have not been discovered yet. I'm considered non-celiac because I don't have the currently recognized genetic markers yet I have all the symptoms and signs of celiac.
  24. kayo
    Hi vbecton, It could be RA. If you sit a lot, and who doesn't, the pressure could be aggravating your hips and pelvis. Try getting up every now and then to stretch and loosen the joints. Even a little helps. Wow, another horrible doctor. There are so many ways to treat RA that don't include pain meds. Pain meds should be a last resort when all...
  25. kayo
    I just had this done and it was an easy test. It's performed by a nurse or tech. You fast from the night before. Then that morning they take a breath sample to determine your baseline. You breath into a tube and your breath is captured in a bag which is then sucked into an attached syringe. The syringe is then inserted into a machine which does the calculations...
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