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kayo

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Everything posted by kayo

  1. kayo
    1. No more brain fog or concentration issues 2. No more giant belly, no one asking me when I'm due 3. Hair and nails growing like crazy, and strong too 4. More prone to laughter than agitation 5. Normal appetite, lesser obsessive thoughts about food (when are we eating? what are we eating? when can we eat again?)
  2. kayo
    Kouzzina, Cat Cora's restaurant, was F A B U L O U S! I had made a rez via the Disney site and listed my allergies (gluten, dairy, soy). When we arrived they were well prepared. They had tapioca rolls warming and served them with a lemon olive oil for dipping. Then the chef came over and we went through the menu together and he told me what they could adjust...
  3. kayo
    Bluebonnet, I'm so glad you had a good time and a pleasant experience. Thank you for posting! My hubby and I are in Fla right now visiting family and will be in Orlando in a couple days. I just made a reservation at Kouzzina based on your excellent review! I love Greek and Mediterranean food and love Cat Cora! I made the rez via Disney's website and they...
  4. kayo
    I recently discovered lactose free yogurt and lactose free yogurt cheese. I found the yogurt at Whole Foods and the cheese at Trader Joe's. It's the first cheese (dairy based) I've had in 4 years! It's fantastic. The yogurt is quite good too. The flavored ones are a bit too sweet for me but the plain and vanilla are awesome.
  5. kayo
    Have you been tested for SIBO? how about fructose malabsorption? Turns out that was the source of so many of my issues. I am lactose and soy free and used coconut milk for my milk sub. I began to react to it too. After being treated for SIBO and sticking to a low fructose/fructan diet I'm able to tolerate more foods that use to give me grief (though I...
  6. kayo

    ARCHIVED Ack Soy :(

    kayo replied to Marz's topic in Coping with Celiac Disease

    Hi Marz, I react more strongly to soy too. I swell up like a puffer fish and I'm sore and bloated for a really long time. Longer than if I had been glutened. I also get major headaches. All my foods have to be gluten, soy and lactose free. I can tolerate some casein. Here are some things I've found that meet those requirements: Udi's breads, muffins...
  7. kayo
    I had shingles multiple times all under the age of 30, maybe even under 25. First outbreak I was around 11 or 12. Looking back I think at least one outbreak was DH and not shingles. The doctor was young, confused and gave me an RX for a pain killer as there were no meds for shingles at that time. If I ever breakout again I'll go to a dermatologist.
  8. kayo
    Oh yes, all the time. Well meaning friends will ask, can you have carrots? rice? I just look at them puzzled. People really don't seem to understand the differences between vegetables, fruits, dairy and grains so expecting them to understand what gluten is like asking them to speak Chinese. Unless you deal with food intolerances yourself I find very few people...
  9. kayo
    Given the time frame and location of Jersualem there's a very good chance the bread during Jesus's time was made from sorghum or teff. Even if it was wheat, it was not the wheat we have today. Man has cultivated and changed wheat so much that it bares little resemblance to wheat 100 or even 1000 years ago. The requirement that it be wheat gluten is hogwash...
  10. kayo
    You have come to the right place! Another place gluten can be hiding is in your lotions, shampoos and cosmetics. First off I think those numbers look great. It's only been 6 months and it can take us much longer than that to heal and recover. From a 75 to a 9 shows great improvement. Your nutritionist is way off. Makes me wonder what her credentials...
  11. kayo
    I have issues with fructose and fructans too. My fructose test came back negative but I'm sticking to the fodmap diet because I feel better. I had SIBO which exasperated all of my issues. I can have a tiny bit of cooked apple, coconut milk and lemon and lime. That's it for fruit. I can't tolerate any onions, shallots, garlic, scallions, or asparagus. I can...
  12. kayo
    It's disappointing when we discover we have more intolerances than just gluten but in the end it's so worth it to know and cut those foods out to heal and feel better. I learned I'm allergic to oats (and rye but I don't eat rye anyways) which was mind boggling. I had to give up my fave gluten-free cookies - Lucy's. I have a good alternative Haagen Daaz...
  13. kayo
    I've struggled with this too but since going gluten-free it has gone away. So has much of my snoring I'd love to know more! Do you have a link or resource? My blood work keeps showing elevated eosinophils so my docs ordered an endoscopy and colonoscopy, neither of which I'm looking forward to. Though I'll be happy to have some answers.
  14. kayo
    I was diagnosed with RA when I was 3. Symptoms began at age 1.5. I've dealt with severe RA my whole life. The GI issues began about 5 years ago and this year I was diagnosed with Celiac and then non-Celiac gluten intolerance since I don't have the classic celiac gene. I'll bet a zillion bucks I actually have celiac and have had it my entire life. I had a...
  15. kayo

    ARCHIVED Bad News, Guys

    kayo replied to K8ling's topic in Coping with Celiac Disease

    So sorry {{hugs}}
  16. kayo
    What a jerk! Everyone knows you don't ask a woman if she's pregnant. Though this did happen to me last summer. I was gluten free but the bloating was still at an all time high. I know now that it was probably the SIBO. I did look pregnant. I'd say 8 months, no joke. At a block party the neighbor's son (about 7 yrs old) loudly asked me, are you going...
  17. kayo
    I'm dairy, soy and gluten intolerant too. I take a calcium/magnesium and a vitamin d supplement. The Trader Joe's chewable gummy bear calcium and D vitamins are great. Meant for kids but I double the dose. They're gluten, dairy, fructose and soy free. I use hemp milk and coconut milk (both fortified) for most of my 'milk' needs. I've also made cashew milk...
  18. kayo

    ARCHIVED Just Need To Vent!

    kayo replied to S<3's topic in Coping with Celiac Disease

    I use the 'Skin So Soft' lotions and 'Naturals' body wash and lotion. I like the 'Glazewear' lip gloss. Just double check the ingredients as they can change. They're listed on the website. I haven't had any issues and I'm prone to eczema, psoriasis and KP.
  19. kayo
    For a dairy substitute you can use soy milk, rice milk, hemp milk, almond milk or coconut milk. Hemp milk is my favorite and I used it in all my 'creamy' recipes.
  20. kayo
    - American Chop Suey - hamburger or turkey, tomato sauce, gluten-free noodles - Shepard's Pie - hamburger or turkey, corn and mashed potatoes - Tuna Noodle Casserole - I make a roux with gluten-free flour and olive oil, add chicken stock and hemp milk, add tuna, peas, pimentos and gluten-free noodles. Top with gluten-free breadcrumbs and bake. - Chicken...
  21. kayo

    ARCHIVED Just Need To Vent!

    kayo replied to S<3's topic in Coping with Celiac Disease

    I use Avon. It does remind me of my grandmother but their products are great, inexpensive and many, if not most, are gluten free. I use their lotions, body wash, and glazewear lip gloss.
  22. kayo
    I totally agree. The only responsibility and control we have is over our own lives. I think you're right that it's their own fears that they are wrangling with. Perhaps fear of change. Concerned that what they view as daunting and limiting (gluten-free diet) will be forced upon them some how, some day. There's also the 'misery loves company' aspect to...
  23. kayo
    I was excited about this product too and then read this review: Open Original Shared Link
  24. kayo
    How did you narrow your issues down to lectins specifically? I'm at a point where I don't know what is and isn't bothering me due to some weird histamine issue. My body thinks it's intolerant to all foods. On a med that seems to be helping but not fully better yet.
  25. kayo
    Ask your doctor about being tested for SIBO and fructose malabsorption. There's also blood tests than can test for allergies (IgE), sometimes referred to as RAST or Elisa. I have an odd one too - my body produces too much histamine and therefore it reacts to every food as if I'm intolerant to it. Med is helping but not fully recovered yet. Cramping, D...
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