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cdford

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Everything posted by cdford

  1. cdford
    The homemade ones are definitely better than the store-bought (nice southern term...we used to use it to describe folks' clothes who couldn't sew). It took a few tries, but I finally got a mixture that works for us. It is brown rice based but has just enough bean in it to give it a good texture but not the beany flavor. Be prepared to experiment a little...
  2. cdford
    Happens to me when I get near gluten. My throat swells and the muscles don't work properly for a few days. My voice changes so much that my family does not recognize me when I answer the phone. Staying gluten-free seems to help the most and I can usually mitigate it by taking a vistaril as soon as I sense a glutening.
  3. cdford
    Your are right...I loved it. In my case they get not only a gluten free kitchen but a wheelchair accessible ranch. With these short cabinets, any short person would think it was heaven as well.
  4. cdford
    In our cases, there is a specific pattern that a gluten incident causes. We went through that period of time when we weren't sure until we realized the pattern and one key difference...we usually don't run a fever with a gluten incident. In our cases, we also will break out with the DH spots but that can take several days to show up. A typical reaction...
  5. cdford
    Also some companies will not list in any directory for fear of a legal problem. I have used the csa guide since going gluten-free. I like the three ring binder format and add my own tabs at the back with info on my personal meds and any items I have verified. Kroger, for instance, has a number of store brand items that are gluten-free but they will not list...
  6. cdford
    If you do not react to the vinegar (even if gluten-free, some do) then there are a number of gluten-free pickles available. Mt. Olive has a whole list. Kroger has some store brands that are as well. I don't do olives, so I cannot help with that part of your question.
  7. cdford
    I have used an older Regal (1lb) and a newer Toastmaster TBR15 (1.5 lb). Both work well. I actually prefer the older model with the smaller loaf since our breads have to be made more regularly as they lose their softness more quickly. I make a loaf every two or three days. I have not found the second mixing to be a problem with either machine. Do remember...
  8. cdford
    When we are broken out, even water can trigger a round of miserable itching. We have to be extra careful of anything that comes into contact with the skin. Check even your dishwashing liquids and powders. We use All Free and Clear for clothes. One thing we have found to be a life saver is Shaklee's Basic H household cleaner. Not only do we not break out with...
  9. cdford
    Don't eat Wendy's fries! I snitched one--one, mind you--from my mother's tray without thinking and paid dearly for it.
  10. cdford
    What do you do to keep your pancakes from losing their plump and becoming thin gooey messes? Mine look great at first but they don't want to cook through and then they fall flat. I used to make wonderful pancakes before, I just cannot seem to get the hang of it with the new flours.
  11. cdford
    We still laugh when my youngest, now eleven, reaches for the coffee to put on his cereal then realizes that he can have milk now. We had to go through a period of absolutely no dairy for all three of them due to immune system problems and digestive tract problems that we did not know then could be related to celiac disease/DH. IO even had to go dairy...
  12. cdford
    A 24-hour nap later... I am back in the land of the living (and writing after seeing that last post of mine). It was a wild and hectic weekend, but it is completed now. It will probably take a few days for me to feel rested, but at least I am back in the saddle a little. Thank you all for your encouragement and support.
  13. cdford
    I made it through. I am tired ("that" tired, you knwo what imean). Sent eerybody else to church without me. Time for bed, biut I think i will be okay with someee sleep.
  14. cdford
    Thank you, Jen, for those verses. I am halfway through the weekend. I am stuttering and jerking and tired, but am making it. Can't write more. Too hard.
  15. cdford
    I did not get much help from you all about this one, so I am answering my own question for your future reference as well. I have been desparately trying to find deli meats for my son's wedding. Seems that even though some of the meats themselves are gluten-free, most places do not recommend you use the deli because of cross contamination. Kroger's Private...
  16. cdford
    I have been desparately trying to find deli meats for my son's wedding. Seems that even though some of the meats themselves are gluten-free, most places do not recommend you use the deli because of cross contamination. Kroger's Private Selections have several that are gluten-free and are also available in small packages pre-cut and packaged in the meat department...
  17. cdford
    I was not quite as understanding of other's ignorance at first. I guess I just thought that my sharing the information with them would suffice. It did with some but not with others. The ones I truly appreciate were those that actually attempted to do some research on their own and share it with me. I finally gave up on some and on others just accepted that...
  18. cdford
    Here are some samples from documents I keep on my system. I keep a standard gluten free restaurant card in my purse. I also keep a sheet of medical information that has the following information: **REQUIRES GLUTEN FREE MEDICATIONS AND FOODS** is centered and clearly visible at the top of the sheet -My name and date of birth -Name and phone number...
  19. cdford
    I knew that you guys, of all people, would understand my small but important victory. I have been stuck in this wheelchair since 1998. I had just begun to move around a little last year when I got glutened by a restaurant. It has been nine months of gradual and painful effort to get back to this point. I do so want to be able to get around at least using...
  20. cdford
    I am so excited...I am able to walk a little around my house again! As long as I am barefoot and don't try to do too much, I have been able to move around my house some. If I try to put shoes on, I can't lift that left leg enough to move it without stumbling, but maybe I will get there. Right now, just being out of that wheelchair a little is feeling pretty...
  21. cdford
    celiac3270, I did not get the file. I had to do some reinstalling of software when I upgraded to XP this week so it is possible it got lost in the shuffle. Is it too much trouble to send it again? You are being so great about all of this. cdford@integrity.com
  22. cdford
    The endo doc told us that the body reacts to gluten almost as though it is an addiction in celiac disease. You may find that if your child ever gets into it accidentally they go through a period of time when they crave stuff they should not have. We certainly did. Those of you who are still in that stage where you are dealing with the temper tantrums...
  23. cdford
    I cannot afford those expensive mixes even for sweets. If you look around this board, you will find a world of recipes that are generally easy and not outrageously expensive. Assuming many of you can have dairy as well, I have placed some at the bottom of this post. Those who can't have dairy will know how to adjust them. One thing I would strongly suggest...
  24. cdford
    I have the nurses double check every med for me after I explain how sensitive I am. I had a positive result at my last hospital visit...the nutritionist came and sat down in my room and discussed what I could and could not eat off the menu. They had to order meals from another local hospital, but they did it. They even made adjustments and sent extra on my...
  25. cdford
    I love your second question--welcome to my world! There is great variability in how much damage allows the blood test to come up positive. Other factors such as IGa levels impact it as well. While the gold standard is still the intestinal biopsy, many have also found that test to not clearly show how sensitive they are to gluten. Use the tests as a guide...
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