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cdford

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Everything posted by cdford

  1. cdford
    We ran into the same problem with some extended family members, even to the point of attempting to sabatage our diets. After a few months when we started to see so much improvement, most came around and became supportive. The one who did not is just going to be that way no matter what happens in life. Where he is concerned, we just roll our eyes and go on...
  2. cdford
    Determine how sensitive you are. It varies for each of us. I have a friend who can cook for her non-celiac disease husband and kids with no apparent problems. I, however, am very sensitive. We also found that if non-gluten-free stuff was around, my daughter tended to snitch and cheat. No matter how much we preached, someone was always double-dipping in the...
  3. cdford
    AMEN, Paula. I sure wish I could convince the grandparents around here to be as loving and concerned as the one who started this post. Even not sabbataging our daughter's diet would be appreciated. We have one that takes her for waffles when she visits!
  4. cdford
    If the ingredient list is as simple as the one you mentioned and from a reputable company, I don't call. If there is ANY doubt about an ingredient, I err on the side of safety and contact the manufacturer. I keep a list of who I have called and the last date I verified gluten-free contents in my notebook. About every six months or so I go back and contact...
  5. cdford

    ARCHIVED Hello Again

    cdford replied to BamBam's topic in Coping with Celiac Disease

    Your have our thoughts and prayers. I am going through that kind of spring as well and have decided, like you, to take it as it comes and enjoy what I can of it. Life is worth living, even if it requires a few adjustments to get there.
  6. cdford
    Oh well, we expect oddness out of L.A. anyway, so you are just meeting expectations! They probably even put sugar in their grits out there...more sacrelage. (glad you took my lighthearted jabbing for what it was)
  7. cdford
    That is so funny...I thought all night long whether that was a dumb post or not and you guys liked it! Here's another one: You go house hunting and find yourself wondering what they cooked in the kitchen and assessing whether the bathroom has space for a TV and bookshelf.
  8. cdford
    I forgot to mention...when you get tested and are sure you are dealing with celiac disease, ask the neuro about using Gabitril for the spasicity. It is the only drug for that that is gluten-free and seems to work well. It will also help with the bladder spasms. We did not realize that some of the other meds had gluten when I first got diagnosed and later...
  9. cdford
    Hi, it's Donna again. My neurologist says that some of the nerves will regenerate and that we will have to wait a year or so to see just how much. The spasicity is much better and I am regaining some use of my left side. I rarely look as though I have had a stroke anymore. The fatigue is usually controllable as long as I stay home and behave myself. It is...
  10. cdford
    I have had these symptoms for more than a decade now. Many docs wrote me off as "stressed and depressed" until the neurological symptoms of ataxia, spasticity, etc. set in. I was tested for MS every six months or so for five years because of the symptoms. The docs just shook their heads and couldn't figure it out. Then came the mild dementia, tremors, and...
  11. cdford

    ARCHIVED Joint Pain

    cdford replied to stargirl's topic in Related Issues & Disorders

    If you can afford it, ask your doc to write you a script letter for a hot tub. The insurance won't pay for it, but you can write it off as medical on your tax return if you have the doc's note. It is the safest and best way to exercise when you have joint pain. It has made a world of difference in our FMS. We use it year round. If my crew wakes up in the...
  12. cdford
    Nick, don't sell yourself short...a man isn't mature enough to be good looking until he is bald. My husband just laughs when I rub or kiss his bald head and then suggest we spend some time together!
  13. cdford
    I recently found myself doing this one: if you plan a get together and question the guests about any allergies or special dietary needs...and they know you will actually try to feed them.
  14. cdford
    The only times I have had hospital level reactions were when a family member was paying and was determined to eat where they wanted. Both times it was a restaurant that I questioned but called ahead and was told they could feed me safely. My family members were here from out of town and I was not in a position to politely refuse. Next time I will eat before...
  15. cdford
    I was misdiagnosed with IBS and a few other things for years before anyone thought to check for celiac disease.
  16. cdford
    Mine get tender to the touch there, but I have never noticed any true bruising. They will sometimes even swell slightly. If you find out what causes it, post again and let us know.
  17. cdford
    Okay Ibsteenwyk, you are definitely not from the south. Your recipe may taste great but would be considered sacrilage to Mama Josie and Paw Hoyt. Down here cornbread is made with buttermilk, egg, corn meal, salt, a tablespoon of bacon grease (I cheat and use oil), and baking soda. You can get away with addin' a little flour for texture. You put the butter...
  18. cdford
    In the last couple of weeks I have had a new phenomenon with mine. It looks as though the rat of growth changed or something because there is a circular ridge as though there is an extra layer of nail growing from the cuticle area. It is getting closer to the end of my nails with time and is deep enough to see and feel. I thought at first that I had just...
  19. cdford
    Once you have it on your hospital's medical records that you are celiac disease, they tend to ask if it is a typical reaction and, if so, treat it as such. Otherwise, you can count on them questioning everything and writing you off. My symptoms take such a specific pattern when I get into something that there is no question anymore. They just hit me with...
  20. cdford
    Another mom posted a few weeks ago about their two year old walking through the house picking up items and "reading the labels". Some had gluten and some did not. Even when they cannot read or understand the whole thing, they do catch on by our actions and they will model whatever level of care we show in checking for gluten. It just takes some of them more...
  21. cdford
    Yeah, I don't which scared me more--the nasty neurological symptoms I was having or the thought of my kids under the jurisdiction of the state for any period of time!
  22. cdford
    By the way, Steph, in English Pektin is pectin. It is probably pronounced very similarly to the German and has the same meaning.
  23. cdford
    We use the All Free and Clear. It is one of the few that we can use without breaking out. Anything that comes into contact with our skin and contains even traces of gluten is a problem. You may also want to check your household cleaners. Some dish detergents are a problem for us. Oh yes, if your outbreaks are troublesome, find a Shaklee distributor. Their...
  24. cdford
    Hi Betty. Welcome to the board. I feel your pain. You have several different things going on that could be a problem. I found that my incontinence problems cleared up as the muscle spasms and other digestive tract problems cleared, but it took a while and was gradual. You sound as though you are eating well. Before you go gluten free, you need to be aware...
  25. cdford
    I also meant to add that the DH can actually get worse just after going gluten-free. Mine did then got much better.
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