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sandsurfgirl

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by sandsurfgirl

  1. sandsurfgirl
    Wow I'm just coming to this thread today and I couldn't stop reading your story. I was on the edge of my seat. I am so sorry you and your family went through all of that! Whoever called Child Services on you is just a despicable human being. That is just sick to do that to a sick child and his suffering parents. I hope everything gets better from here...
  2. sandsurfgirl
    When-dee I was just discussing and I'm sorry if I hurt your feelings. To me it was an interesting discussion with differing points of view. I'm sorry if you felt attacked because I don't think anyone intended that. I actually gave up coffee with all my health issues right now because it didn't feel good drinking it. I'm drinking black tea in the mornings...
  3. sandsurfgirl
    Mine was great! My parents made a gluten free turkey, got Honeybaked ham, sweet potatoes, salad, cranberry ambrosia and mashed potatoes (both gluten free). I brought my own gravy, green beans and pumpkin pie. I also brought dips and chips and put my son and mine in separate containers so they couldn't get CC'd. I make the Libby's recipe and just don't...
  4. sandsurfgirl
    Yeah. I will dig out the bottles and post it later. The licorice lowers the aldosterone, and if aldosterone gets low enough (mine was nearly nonexistent) then your kidneys start dumping salt and fluid. I learned all this in the hospital. Your adrenal glands produce aldosterone to tell the kidneys to either hold salt and water or dump it. I even read on an...
  5. sandsurfgirl
    You can't outgrow celiac. They are risking that child's life. The child could die. I think you have to speak up. Even if it's hard, just do it. Contact them and talk to them. Send them to this board. It takes a lot of damage to come up positive on endoscopies and endoscopy is invasive. It is cruelty and abusive to scope a child for no reason other than to...
  6. sandsurfgirl
    I had the opposite problem. The low aldosterone was making my blood pressure drop to dangerous levels because I was excretindg so much fluid and salt. I've never heard of a home cortisol test. I'm being tested for Cushings right now, which is a condition of high cortisol but I get my tests done at the lab. They take blood, 24 hour urine collection samples...
  7. sandsurfgirl
    It was me that sent that. I had neck pain for years and nothing worked to make it go away. I read his book and did the things he said to do. The neck pain went away and never returned. I was having pain in my chest muscles the past week or so. I reread parts of the book and did what he said and the pain is gone.
  8. sandsurfgirl
    How do they keep the toppings from being contaminated? Like someone else said, they have flour all over their hands and they reach into the cheese, etc. to grab it. I always figure the cheese and toppings are full of flour. CPK had a gluten free menu and it lasted like a month because they said it was too hard to keep the pizza from being CC'd.
  9. sandsurfgirl
    Adversity does make you stronger and I absolutely love your positive spin on that. I've had some big health challenges that I've been posting about the past couple of months including a 10 day hospital stay and the flu for 3 weeks after the hospital. As horrible as it's been and as much as I never want to go through this again, it has had a deep and...
  10. sandsurfgirl
    LOL! We never go near the place Thanksgiving weekend though. It's the busiest weekend of the year and black Friday is the very busiest day of the year there. I think they usually get to capacity. Craziness!
  11. sandsurfgirl
    My son gets CC'd every time so we quit. I make it at home with Gluten Free Pantry pizza crust. I can have pizza done in 20 minutes and it tastes really great. If anyone is going to make their own pizza, the trick is to spray your hands with oil so it's easy to pat out the dough. Keep spraying after every few pats to keep them from sticking. I keep that...
  12. sandsurfgirl
    Skylark, when are you going to write a celiac book? You have so much information. Love it! I don't remember which marker was high for me, but it was triple. My doctor was uncertain but I just knew in my gut that it was the answer. For years I knew there was something going on with wheat so I was gluten light. I didn't eat a ton of breads and pasta, etc...
  13. sandsurfgirl
    Too much freedom and they just go downhill. Freedom must be doled in judiciously in these matters. I'm all for the plunge bra. They make you look great in anything you wear. Hooray for the plunge!
  14. sandsurfgirl
    For most of us it totally stabilizes over time. My new GI who actually knows about celiac and even particulars (a rare find) said that soy may not come back for me since it's still a problem all this time, but soy isn't that big of a deal for me to eat anyway. I'm glad I can eat dairy after years of it being a problem.
  15. sandsurfgirl
    How did you find out your liver was congested? Was it an acupuncture exam?it This is an interesting discussion to read. I was taking herbs from my acupuncturist and then he had me on something that landed me in the hospital. My body wasn't producing aldosterone, the hormone that regulates kidney function. At the time we didn't know that. The docs were...
  16. sandsurfgirl
    I have a new GI doc who is SO knowledgable about celiac. He even knows all the little ins and outs about healing and other intolerances. He is a sweet guy too and really listens. He's a young guy and he's up on the latest stuff. His name is Dr. Wanjun Bae in Garden Grove, CA Dr. Wanjun Bae, MD Gastroenterology, Internal Medicine 12828 Harbor Blvd...
  17. sandsurfgirl
    I know some people who were extremely ill who only had one marker for celiac come back positive including myself. After going gluten free our lives changed dramatically. He MUST go gluten free to see if it changes him. That poor kid! That doctor is horrible for doing that to the kid. He has a marker for celiac and he is on crutches. Why on earth would...
  18. sandsurfgirl
    He does have a master's degree in nutrition, but it still sounds like a bit over the top to me. I'd like to know how coffee causes adrenal exhaustion and how they proved that. I'm dealing with adrenal issues now and they are really hard to diagnose and figure out. I'm seeing a famous endocrinologist who is a researcher and teaches at UCLA and at another medical...
  19. sandsurfgirl
    Wow now I didn't know all of that. Very interesting. The problem with the gluten intolerance label is that people think it's not as bad and they seem more likely to cheat. Maybe if there was another word. I don't know... if gluten makes you sick you can't eat it. That's the most important thing that needs to be out there.
  20. sandsurfgirl
    Research can be spun to make it mean what you want it to. I have a very hard time believing that caffeine causes autoimmune diseases. There are also studies that show that moderate amounts of coffee is good for you and tea... well there are so many studies on the benefits of black and green teas which both contain caffeine. What is his background? Sounds...
  21. sandsurfgirl
    I had some really weird things happen when I went gluten free. I had improvements all the time but it was six months before I felt really good. I got dehydrated easily and had to drink Gatorade daily in order to not feel dizzy and shaky. For some reason natural electrolyte replacements gave me horrible D. Go figure. Plain old Gatorade did the trick. ...
  22. sandsurfgirl
    Oh I love gluten free corn flakes! Bummer you had to give those up. I had an iron test yesterday morning and it came back fast. It was in a great range so the GI said it's safe to quit taking it. The L Glutamine in such a high dose is a bit controversial and the GI didn't agree with the endo on this one. The Endo prescribed that one for me and the GI...
  23. sandsurfgirl
    Chad you better start talking about plunge bras soon or they'll be making you chug gluten free beer and belch soon! What's wrong with a plunge bra anyways? They give the girls their proper place in life. They're a good thing people!
  24. sandsurfgirl
    Your body is healing and it will go through withdrawal. There is an article somewhere about gluten withdrawal being equivalent to opiate withdrawal. Withdrawal and the healing phase are very real. Use the search function and read old threads about withdrawal so you can know that it's normal, it will pass and you aren't going crazy. At the 3 week mark...
  25. sandsurfgirl
    LOL! Disney is my happy place. We go a lot with our passes.
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