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Latest Celiac Disease News & Research:
Everything posted by kareng
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ARCHIVED Starting To Wonder If Gluten Is Even My Problem
kareng replied to answerseeker's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Just a thought - maybe it has nothing to do with gluten? Maybe you should see a doctor? I know this is a radical idea for a Celiac website but - Not everything is about gluten or even a food intolerance. -
ARCHIVED Antibiotics, Tannins And Celiac?
kareng replied to Colleeney's topic in Gluten-Free Foods, Products, Shopping & Medications
Tannins? the stuff that is in wine and some fruit juices and maybe a few other foods? Just don't drink wine, eat raw nuts, high tannin fruits or juice and chocolate or whatever else they are in. I think the antibiotics are a different thing. They can kill off the good bacteria you need to keep your GI tract moving along properly. This might be a good... -
ARCHIVED Interplay Between Gluten And Dairy
kareng replied to Kat L's topic in Coping with Celiac Disease
If you also look at the Univ of Chicago site you will see that they say there is no scientific evidence for cross-reactivity and the "lab" you refer to has no scientific basis for these "tests". Open Original Shared Link What’s with all the talk about certain types of food causing “cross-reactivity?” There is not yet reliable data about cross-react... -
ARCHIVED Apparently You Guys Were Right, It's All In My Head!
kareng replied to Renegade's topic in Coping with Celiac Disease
These are the ways to test for lactose intolerance. Open Original Shared Link -
Supposed to help explain the new FDA ruling: Open Original Shared Link
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ARCHIVED My Doc Is Going To Test Me For Food Allergies.....
kareng replied to answerseeker's topic in Coping with Celiac Disease
Stephanie posted this in another thread. It's a very good idea to read it before your allergy testing. It's from National Institute of Health so its a very reliable source for info. Might be more reliable than some allergy docs. -
ARCHIVED School Lunch Planning
kareng replied to ryo's topic in Parents, Friends and Loved Ones of Celiacs
Glad you saw this! I was trying to remember them from a previous post you made (probably last year at the beginning of school). I wanted some for me! When we travel & I have my sandwich and we go into a fast food place for everyone else, I get bunches of napkins to put on the table for my lunch. Are they waterproof enough to put carrots or something... -
ARCHIVED Recently Diagnosed, Need Help With Some Food Questions!
kareng replied to deluxlux's topic in Gluten-Free Foods, Products, Shopping & Medications
In the US, I have never seen a toothpaste with gluten. The shampoo and lotions are just because they can get in your mouth. If you don't think you will get them in your mouth, don't worry about it. I don't worry about sun lotions because I don't get them in my mouth. I haven't seen any with anything obviously wheat. You could find wheat germ oil maybe... -
ARCHIVED Apparently You Guys Were Right, It's All In My Head!
kareng replied to Renegade's topic in Coping with Celiac Disease
I believe you were brought up the fact that you have anxiety attacks early on in your postings. Looks like you found a doctor to help you. Obviously you haven't died as you threatened to a few times. When you kept insisting that you couldn't breathe, we all told you that was serious (if it was true) and needed immediate attention. It appears... -
ARCHIVED Could I Ask Some Advice On Being Invited To A New Friend's House For Dinner?
kareng replied to BelleVie's topic in Coping with Celiac Disease
Sure. But seriously...blaming it on the doctors takes it from being your personal quirk or an insult to their cooking and places it strictly into "following medical advice". edited because it wasn't a complete sentence. Now, it is more than complete -
ARCHIVED Could I Ask Some Advice On Being Invited To A New Friend's House For Dinner?
kareng replied to BelleVie's topic in Coping with Celiac Disease
I think I would just try to explain that some foods make you sick but you came because you really like them and enjoy their company. You could even laugh it off as a stupid white person illness. If they ask if you can have this or that, I would just say that your doctor told you not to eat food you haven't prepared. You could blame it on the doctors. -
ARCHIVED Blood Tests Came Back Negative
kareng replied to Soccer-Mom2405's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
The sugar alcohols are a problem for lots of people - even those without Celiac. Remember, for any Celiac testing, you must be eating gluten for a few weeks to get a positive result. -
ARCHIVED Recently Diagnosed, Need Help With Some Food Questions!
kareng replied to deluxlux's topic in Gluten-Free Foods, Products, Shopping & Medications
whey & casein are milk. If they say Gluten free, they likely are. I don't understand about fans. Did you mean pans? Have you read this thread for People new to Celiac: https://www.celiac.com/forums/topic/91878-newbie-info-101/ -
ARCHIVED Biopsy Time And I Am Trying To Calm My Nerves!
kareng replied to ryo's topic in Parents, Friends and Loved Ones of Celiacs
My 20 yr old had surgery at 10 months and woke up really happy! They gave him Sprite in a bottle. He had never had Sprite! The anesthesia they use these days is pretty light and shouldn't be too bad. She may just want to go back to sleep for a couple of hours and that's OK. Or she may be starving so you might bring a light snack and juice or Gatorade... -
ARCHIVED Dairy Allergy And Now Calcium Supplements
kareng replied to seraphim's topic in Related Issues & Disorders
Thanks for that link. A very good resource. I'm learning a lot from it. -
ARCHIVED So Frustrated
kareng replied to niese's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Have you been eating gluten free along? Because then the blood tests would probably be negative. -
ARCHIVED 20Ppm - Serving Size?
kareng replied to williamsburg's topic in Gluten-Free Foods, Products, Shopping & Medications
It doesn't mean there is any gluten. Its just a test that is run on a little bit of a batch of food. Less than 20 ppm could mean it has 19 ppm or 2 ppm or 0. A lot of processed gluten free junk is still processed junk. gluten-free baked goods have some ingredients that aren't in gluten baked goods or not very often. Maybe cut back on the processed... -
ARCHIVED Genetics Question - Dq2
kareng replied to appletree729's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
look at these: Open Original Shared Link -
ARCHIVED Can A Herb Make Me This Sick?
kareng replied to clogger69's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Open Original Shared Link It says people with auto-immune diseases shouldn't use it. And seems to have some interactions with a few medicines. It may just be that it disagrees with your stomach. -
ARCHIVED Is Wine gluten-free?
kareng replied to KikiUSA's topic in Gluten-Free Foods, Products, Shopping & Medications
Thanks for the link, Jess. Unfortunately, being a mod means I sometimes have to remind people of the rules they agreed to when they signed on here. One of those rules pertains to making statements of fact that are not generally known and having reliable back-up to show us, so we can learn from it. Also, sometimes, I have to steer the topics back... -
ARCHIVED Is It Possible To Get Gluten From The Dishwasher?
kareng replied to niese's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
SHHHH! Don't let my Hub hear this! I used it as an excuse to really nice new pans & to keep the boys from burning their eggs & bacon in my nice pans. -
https://www.celiac.com/forums/topic/92393-need-celiac-specialist-in-nyc/page-1#entry802220 use the google function in the top right corner and you will see more threads about this.
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ARCHIVED What Would You Do?
kareng replied to Jrg's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I suggested it because I couldn't tell why they wouldn't cover it. Thought it might help. Myself - I would and did pay for my colonoscopy and endo with the deductible. It cost a lot more than $700 but I had the colonoscopy portion and anesthesia, too. I thought it was worth it to see the amount of damage and make sure nothing else was wrong. We put... -
ARCHIVED How Often Should You Get Retested?
kareng replied to redraider1856's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Your regular doctor can test your blood and see if your levels are normal. You will just have to ask as most doctors don't think of this. IF you are having issues, you might want to see a GI. Open Original Shared Link How often should follow-up testing occur? New celiacs should receive follow-up testing twice in the first year after their diagnosis...