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Latest Celiac Disease News & Research:
Everything posted by kareng
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ARCHIVED Biopsy Negative Gene Test Positive
kareng replied to Sooz Fooz's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
A gene test does not diagnose Celiac. It appears about 30% of the population have one of the genes that the US tests for (in Europe they test for another gene, too). Just having a gene does not mean you have Celiac. It has to "activate". Open Original Shared Link Do most people with celiac disease have the gene turned on at birth? For celiac... -
ARCHIVED Am I Crazy?
kareng replied to Auntie-Manda's topic in Gluten-Free Foods, Products, Shopping & Medications
Maybe.... Just joking. Could you make the batter and freeze it in small amounts then thaw and cook? Same with the cookie dough. Portion it out into little unbaked cookies and then bake them later. Pancake batter should keep, maybe a week, in the fridge. I know I have been picky about frozen baked goods in my previous gluten life. -
ARCHIVED Domino's (And Some Other Pizzerias)
kareng replied to Dylanm's topic in Gluten-Free Restaurants
Thank you! -
Kelley, where do you live ( if you want to say)? Some places are in certain parts of the country. beauJos is a pizza place with gluten-free cheese bread which is like a grilled cheese. I had one that only ate grilled cheese but he would eat cheese toast. Minskys pizza in the KC area. I have found that if you take an older " kid", the younger one will...
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ARCHIVED Anybody Take Accutane?
kareng replied to collins146's topic in Gluten-Free Foods, Products, Shopping & Medications
You might want to email Dr G at the university of Chicago Celiac Center. My teen doesn't have Celiac so the advice he gave me may be slightly different. Open Original Shared Link -
ARCHIVED Biopsy Confirmed=No Longer In Denial...please Help!
kareng replied to jamiecasabellameeks's topic in Coping with Celiac Disease
Have you checked out this? https://www.celiac.com/forums/topic/91878-newbie-info-101/ What are the ingredients on your tea? That's the best way to see what is in it. There is a slight chance it has barley malt as a sweetener but it will say. -
The Funny Pages - Tickle Me Elbow - The Sequel
kareng replied to TriticusToxicum's topic in Introduce Yourself / Share Stuff
Our schools use Youth Friends for school volunteers. The organization does background checks on in school volunteers that may be alone with a child. Then our school districts use these volunteers for one on one reading help, etc. it takes some of the liability out of having someone working with kids. Maybe the school district has something like that? -
ARCHIVED 13 Month Old How To Search Out Gastro Doc?
kareng replied to beckyboo40's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Some info Open Original Shared Link Open Original Shared Link -
Red Robin? He can eat the fries, too! If he will do Asian Pei Wei or PF Chang's.
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ARCHIVED Slimfast Drinks
kareng replied to Mahee34's topic in Gluten-Free Foods, Products, Shopping & Medications
This thread is over 7 years old. Any product info is considered out of date as products change over time. -
ARCHIVED So Glad I Found This Forum! New Here :)
kareng replied to CrazyCandleLady's topic in Introduce Yourself / Share Stuff
Welcome! Here is a good place to start. Then read around and see what you can learn from others, too. https://www.celiac.com/forums/topic/91878-newbie-info-101/ Maybe you should get diagnosed if it will help you to take the disease seriously? Sounds like you don't quite believe you have a real need to eat gluten-free. -
Have you googled to see if they have any Celiac support groups that might be of help? This is the list C.com has. Not sure if there are any on there that would work. If you find any, could you Pm me and we can add it to the list for future info seekers. When you find things this summer, maybe you could add to this post, too. Thanks https://www.celiac...
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ARCHIVED 2 Year Old With Crazy Enterolab Results, Desperate Mom
kareng replied to lhollamon's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Just curious why you went for Enterolab over getting a doctor to order a Celiac blood panel? -
ARCHIVED Lab Test Results-Frustrated
kareng replied to MicheleR's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Maybe he just thought you would like a few days to "binge" on gluten? I had every blood test off the charts positive so I just went gluten-free after the endoscopy. It takes a while to get the diet figured out, so I know I wasn't perfectly gluten-free for a few weeks. -
ARCHIVED Just A Warning About Perdue Chicken
kareng replied to ruuning like a zombie's topic in Gluten-Free Foods, Products, Shopping & Medications
You came on and stated as a fact that the chicken was "frozen in a broth that contained barley". When you were asked why you say that, you have no response other than your friend thinks that is the case. I am on the team that does not want to spread rumors or scare people about gluten in products that do not have gluten. -
ARCHIVED Just A Warning About Perdue Chicken
kareng replied to ruuning like a zombie's topic in Gluten-Free Foods, Products, Shopping & Medications
You still haven't explained your accusation that Perdue coated your chicken in barley. I'm assuming that is something you just decided for some reason and have no proof of it. Please do not make statements meant to scare people about a product if you have no facts to back it up. -
ARCHIVED Questioning Diagnosis
kareng replied to 1SharpPencil's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Good question! https://www.celiac.com/forums/topic/91878-newbie-info-101/page-2#entry851855 -
ARCHIVED Domino's (And Some Other Pizzerias)
kareng replied to Dylanm's topic in Gluten-Free Restaurants
You do know that Dominos came out and said that the gluten-free pizza was not meant for people with Celiac disease? YOU are the one promoting this, don't you know if its on its own pan or not? -
ARCHIVED 7 Weeks Pregnant And Glutened
kareng replied to GatorGal's topic in Related Issues & Disorders
When I was pregnant, my blood pressure would dip and I would get dizzy. I looked so awful one time that an ICU patient looked worried and told me to sit on his bed! I think, if I was pregnant, I wouldn't eat any questionable food like a restaurant. Especially in the first 4 months when things are a bit delicate. -
ARCHIVED 80's Fancy Dress ...... Ideas Anyone?
kareng replied to VeggieGal's topic in Introduce Yourself / Share Stuff
Would you like my wedding dress? Harem pants were popular. Jackets with big shoulder pads ( think Dynasty) Open Original Shared Link -
ARCHIVED Domino's Gluten Free Pizza
kareng replied to phillysmom's topic in Gluten-Free Foods, Products, Shopping & Medications
In the US, Dominos came out and said that the gluten-free pizza is not suitable for Celiacs. -
ARCHIVED Is Splenda Making You Sick?
kareng replied to Rae's topic in Gluten-Free Foods, Products, Shopping & Medications
First, you are replying to a 7 year old thread. Second, please state reliable sources to support your " facts" as they are accusatory ( to the soda companies) and do not match up with generally accepted facts. -
ARCHIVED Otc Drugs And Cross Contamination
kareng replied to Gfresh404's topic in Gluten-Free Foods, Products, Shopping & Medications
If they say something like " no gluten ingredients. Don't know about the suppliers.....blah, blah". They don't test for gluten and have a legal department that told them to say that. I use them if they have no gluten ingredients. -
ARCHIVED Allergy And Blood Testing Questions
kareng replied to kellybear's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Celiac disease is not an allergy. Anaphylactic shock is not usually associated with Celiac, it is an allergic reaction. You can have Celiac and a wheat allergy or any other allergy. You need to be eating gluten to test for Celiac. The blood test looks for antibodies to gluten. You do not produce enough antibodies to gluten to show in a blood test if... -
ARCHIVED Just Diagnosed....not Really Sure What To Do Now.
kareng replied to TheHeartRN's topic in Coping with Celiac Disease
What about things like Chex cereal as a carry along snack for the little one? Rice cakes ( even the non- gluten-free ones probably don't contain much gluten & wouldn't spread much gluten around). They are gluten-free and my " babies" ( now 17 &20) loved them. Switch her over to more naturally gluten-free snacks that the "regular" people eat. Maybe...