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StephanieL

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Everything posted by StephanieL

  1. StephanieL
    Allergy testing is notoriously inaccurate. While a negative result is about 90% accurate, there are those who test negative but react when the offending food is ingested. The only 100% accurate way to diagnosis a food allergy is by ingestion. Many times these are tried in the Dr's office so they can deal with an emergency should it arrise. I would not be...
  2. StephanieL
    He could develop it at any time (as anyone can). If he is on gluten, I would see a GI Dr. and insist at minimum of the blood work. Good luck!
  3. StephanieL
    Then I would definitely think allergy with those kinds of issues! Do you have epinephrin injectors? You should get 2 and have them with you at all times! A "minor" reaction today does not mean it won't be a major life threatening one next time.
  4. StephanieL
    Perhaps but those three with 20 minute to an hour are indicative of an allergy. I was not saying that they can't be signs of an intolerance just trying to let the OP know that it's most likely not an allergy.
  5. StephanieL
    Those are not signs of an allergy. It *could* be a sensitivity/intolerance. Things like hives, vomiting, diarrhea, drop in blood pressure, swelling of the eyes, face, mouth and throat are signs of an allergy.
  6. StephanieL
    Can you provide references for this statement? I have never seen anything concert on how much or for how long. Standard recommendation I've seen tossed around here is a slice of bread daily for 2-3 months prior to testing. I'm surprised your insurance covers testing yearly. They usually follow recommendations from the Docs who say every 3 years.
  7. StephanieL
    Gluten does not need to be consumed for the GENETIC test. That can be done at any time. All the rest need to be while on gluten. It's highly debated how much and for how long. If the tests are negative, it is recommended they they be retested every 3 years OR if they become symptomatic.
  8. StephanieL
    Nor do they for allergies.
  9. StephanieL
    I would not have one for Celiac. My child with Celiac does have one but he has multiple life threatening allergies.
  10. StephanieL
    We chose to do the genetic test before the biopsy. If there was not genetic marker, I would not have done the endo. DS had 2 of the genes so we did it.
  11. StephanieL
    It's all good
  12. StephanieL
    Yeah, great as long as there isn't a nut allergy in the class
  13. StephanieL
    It is NOT SAFE for those with Celiac or intolerances or allergies. That's great that it doesn't give you any ill effects but it isn't safe for most in this community. Open Original Shared Link
  14. StephanieL
    Yes, we use generic Target brand Benadryl for DS's epi pen med pack too!
  15. StephanieL
    My kid with Celiac uses Claritin.
  16. StephanieL
    That is very dangerous. You are obviously an adult but there is ALWAYS a chance you can be walking into a situation when you don't have all the information about a product and not having epis could prove deadly. OP, I would ask your Dr. but if you have negative blood work and your ears turning red is the *only* thing that happens, I'm not sure they...
  17. StephanieL
    That absolutely would be an issue. We teach sharing is nice but not with food in either direction. My child would throw that out.
  18. StephanieL
    If it's a private school that doesn't receive ANY public funding (ie religious schools mostly) then an IHP may be more what you would need over a 504. A 504 is a part of the ADA that covers Celiac disease. An IHP or health plan is often substituted in a religious school. If the school is being really great about it I would talk to the about perhaps...
  19. StephanieL
    I would say an intolerance possibly. A negative IgE test result is 90%+ accurate. IgA and IgG aren't allergies per say.
  20. StephanieL
    Have you considered asking for non food birthday snacks for the class? This is actually a school wide policy at our school. Also, any communication is best to come from the school/nurse. Parents will talk so if it comes from the school, it's best! Have you considered a 504 plan?
  21. StephanieL
    I don't know much about the healthcare system in Canada but my understanding is that appointments can be hard to come by. I would prioritize what you really are most concerned about and work from there. If TTC is the highest priority, I would start there. Usually people go gluten-free and if they are still having issues later, they seek out more testing...
  22. StephanieL
    So you are obviously a planner You say you were diagnosed already, how? Who did the biopsy? What blood work was done? If you already saw a GI Dr., why would you need to see another? There aren't a ton of Celiac specialists so you may be hard pressed to find one in your area. I don't see what the need would be esp. if you are already gluten-free...
  23. StephanieL
    Gluten is not absorbed through the skin. Is there some reason you are concerned about hair dye?
  24. StephanieL
    So you say you use to, does that mean you are currently (as in when you had the blood word done) eating gluten? If you were not, the tests may not be accurate.
  25. StephanieL
    It does not look like it from these tests as long as you are currently consuming gluten. Many people still try a gluten-free diet after testing to see if it's a non-Celiac gluten intolerance.
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