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StephanieL

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Everything posted by StephanieL

  1. StephanieL
    This is a repeat thread but as I stated in her other thread testing without having seen a prior reaction is not how allergists should be testing. Because of the high false positives in testing, it could limit a kids diet unnecessarily.
  2. StephanieL
    That's great that the Dr. adheres to the current recommendation on diagnosis! So many don't. That said, skin testing and blood testing for IgE allergies have the same accuracy (or should I say inaccuracy ) as each other.
  3. StephanieL
    My kids are all gluten-free at home. My oldest has Celiac disease. My middle was tested after being exposed 3 days a week at school durring snack time as we don't let her have gluten in the house. My youngest is only 18 months and we haven't given him gluten directly (I breastfeed and am not gluten-free so he may/may not be getting any). When he goes to...
  4. StephanieL
    They do happen, sure but at a rate of about 5-7% vs. false positives.
  5. StephanieL
    Why are you seeing an allergist? I do not suggest going to one unless you see an issue leading you to believe that there's a problem. If you are seeing issues, ONLY test for those foods you think there is an issue with. Allergy testing is notoriously inaccurate. The "standard" test has a 50% false positive rate. If you test for a ton of things you very...
  6. StephanieL
    Disney pulled the episode Open Original Shared Link
  7. StephanieL
    1) It's only been a few months. It can take a while for the numbers to go down so that in itself would not worry me (we did testing every 6 months). 2) Shred line and shared facility labeling is 100% voluntary. Just because it doesn't say "shared line" doesn't mean it isn't. Have you tried pulling dairy from her diet? What about art supplies...
  8. StephanieL
    The only test you can do while NOT of gluten would be the genetic test and that ISN'T a diagnostic test in any way. All is says is "yes or no" to the genetics of being predisposed to having Celiac. From your other posts though I would also suggest an IgE allergy test as it sounds more like an allergy. Your child would not have to be consuming wheat/gluten...
  9. StephanieL
    There is a bill being introduced that would require the labeling of gluten in medications. I wish it were for ALL things in them (we deal with a long list of allergies as well and those aren't listed either!) It's like a game of Russian roulette when giving my kid medications FWIW, that is the usual answer we get from most drug manufacturers and have...
  10. StephanieL
    I'm not angry I was just trying to get my point across that it isn't funny.
  11. StephanieL
    The reaction you are speaking of sounds much more like a "true" IgE mediated allergy. One for which she should have epi pens for and in the US you would qualify for a 504 plan to keep her safe at school. I'm thinking it isn't DH you are seeing but hives. Celiac is an autoimmune condition that makes the body attack itself. An intolerance is when your...
  12. StephanieL
    Laughing at yourself is one thing. This is a CHILDREN'S show. Laughing at CHILDREN with a disease isn't funny. Do you have kids? Have you had your child bullied because of medical issues? Bullying happens to most kids and kids with food issues (Celiac or allergies) report an even higher rate of bullying. And it can be deadly. It isn't funny. Would...
  13. StephanieL
    Food allergies are often mocked on TV and in print as well. It isn't just gluten-free.
  14. StephanieL
    So she doesn't have an allergy but possibly has Celiac correct? If you will want/need accommodations for school you will need a formal dx. Also I believe they are working of the "preexisting condition" thing and not being able to hold it against them.
  15. StephanieL
    One thing that often happens when going gluten-free is that there ends up being a lack of fiber in your diet. I would think about where she's getting fiber form and increasing it if she's lacking, that should take care of the straining. As for color, I can't speak to that. DS never had normal BM's till after his DX but his issues weren't color but were consistency...
  16. StephanieL
    It's pretty early in the game so it really could be anything. It does take some time for things to be 100% better. I would just keep an eye on things like condiments, shared counters and stuff like that as well. It can be overwhelming at first for sure so be gentile with yourself! It's a big adjustment for sure. A new toaster was 100% the right things...
  17. StephanieL
    Many people find they have difficulties with dairy after going gluten-free so that could be the issue. It could be cross contamination as well. What about mayo or butter containers? Have those all been replaced? How long have they been gluten-free? As for trusting "gluten free" labels, that term is not regulated in the US so anyone can say they...
  18. StephanieL
    Low iron in females who have started getting her period is not unusual. You can try an iron supplement but be careful, they can be rough on her stomach.
  19. StephanieL
    Yeah. Those are them. We narrowed down what we thought could be the culprit and had 3 that we tested. This was after a lot of calls and emails to companies to decrease what we needed to test.
  20. StephanieL
    I would think "accidental" exposure as opposed to another developing disease. Also, some people take longer to get down to "normal". I would examine all your foods, condiments, prep areas, utensils, small appliances, cutting boards and all. If you do all that and another 6 months goes past with still no improvement, perhaps look into there causes. I know...
  21. StephanieL
    I am not going to get into the merits of intolerance testing. In case I wasn't clear I was saying she wasn't dealing with an intolerance and that even if she did have true IgE testing there is a possibility of about 10% it was a false -. I am well versed in food allergies so I apologies if what sounded clear in my head didn't translate so well
  22. StephanieL
    Intolerances can't be dx via testing. Also allergy testing is only 50% accurate for a positive but about 90% accurate for a negative so even with a negative reaction, an actual life threatening allergy may exist. Food trial are the ONLY 100% way to dx a food allergy. I am so glad you had Epi's and that you are okay now. It is recommended that as soon...
  23. StephanieL
    It's about the same for sheep/goat/cow from what I recall of the study. I'm not the OP but my child is anaphylactic to cows milk. On advice from our allergist we haven't ever tried the others.
  24. StephanieL
    98+% of kids with a cow milk allergy are also allergic to goat milk/cheese. It isn't a good idea to try it without an allergists go ahead because of this high likelihood of cross reaction.
  25. StephanieL
    Hugs. It was so hard when my now 6 yo had it done. It's never a "simple procedure" when it's your kid!! If you want a firm diagnosis you NEED this or the Dr. to say "100% yes!". Having the dx will help if/when you need accommodations for school and stuff. So no, it isn't fun. She most likely won't remember it and you'll have the info you need. Stay...
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