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Skylark

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Everything posted by Skylark

  1. Skylark
    I doubt his intolerance is new. My guess is that his immune system is no longer under constant gluten assault. Now when he gets into gluten, instead of a suppressed, chronic reaction, he has a big one. It happens to almost all of use. Our sensitivity to gluten increases once we start the gluten-free diet. If you are not intolerant to a food, you can...
  2. Skylark
    Enterolab testing is not particularly reliable. Fine's own data show that the test is not very predictive of how you will feel gluten-free. You have borderline results on a borderline test. Assuming you've had a celiac panel blood test through your doctor, the definitive test is to go off gluten and see how you feel. The celiac panel should have included...
  3. Skylark
    I think Karen made a typo with "wharf" for "wheat".
  4. Skylark
    Anti-EMA is a manually run and read immunoflourescence test on monkey esophagus. Most labs are trying to get away from using it at all. TTG commonly comes up in rheumatoid arthritis, fairly commonly in inflammatory bowel disease, in liver disease, and I think in type 1 diabetes. It's not super-specific for celiac like deamidated gliadin or anti-EMA....
  5. Skylark
    Thanks for the link. It's what I was afraid of. There have been no studies at all of LDN and Hashimoto's. I guess I'll just wait becasue I don't want to switch doctors. The one I'm seeing is the best I've run across in a while. I'm very glad to hear it's working so well for you.
  6. Skylark
    How about gluten-free steel cut oats? Bob's Red Mill makes them. By the way, that sounds really good. What spices are you using?
  7. Skylark
    I find teff pretty mild and easy to digest.
  8. Skylark
    Can you provide a reference for the naltrexone, please? I cannot turn up anything in the scientific literature and I have Hashimoto's. I can't go ask my doctor for a prescription based on Internet lore. He won't write it.
  9. Skylark
    Hi. Sorry you've been through such pain and a frustrating medical experience. There are multiple tests for celiac, some specific and some that can come up positive from other health conditions like arthritis and colitis. We can't help you without the name of the specific test where you came up positive. I am also confused about the colonoscopy. Celiac...
  10. Skylark
    Carrageenan is a jelly-like polysaccharide made from red seaweed. It upsets some people's stomachs. If you poke around on the Internet a bit, you can find some info that carrageenan might not be the best thing to eat. Open Original Shared Link
  11. Skylark
    If you absolutely, positively must avoid gluten because of neuro consequences, I do think you are right to put "severe allergy to wheat" on your bracelet. There are many celiacs like me, where a little wheat starch in a pill really is not a concern compared to my overall health picture in a life-threatening situation. Getting a trace of gluten in a...
  12. Skylark

    ARCHIVED Diagnosed...now What?

    Skylark replied to Bubba's Mom's topic in Doctors

    Just contact the manufacturer of the rice cakes you like and find out whether they think there is gluten CC. I eat Lundburg all the time and I think they taste better than the white rice cakes anyway. I eat a lot of nuts for snacks if I'm not in the mood for fruits or veggies.
  13. Skylark

    ARCHIVED Diagnosed...now What?

    Skylark replied to Bubba's Mom's topic in Doctors

    The safest foods are ones you can look at and tell they are gluten free. There is no gluten in a whole potato, an apple, a bunch of broccoli, a head of lettuce, a carrot, an egg, etc. You can pick over dried beans and look through whole grains like quinoa or millet as you wash them. If the bulk of your diet is whole foods you cook yourself, it's super-easy...
  14. Skylark
    I went through phases of being better and worse at first. Like any healing process, I don't think coming out of bipolar is an instant thing. I felt better off the gluten, but I hadn't corrected the underlying malnutrition. My mood didn't really stabilize for over a year, until I got off all the toxic psych meds and learned to take fish oil, a great vitamin...
  15. Skylark
    I agree that prednisone is a last resort. How sure are you that he is not getting gluten? Is he eating only naturally gluten-free whole foods that you can look at and verify that they are gluten-free? I mean foods like potatoes, eggs, a bunch of broccoli, meat you cook yourself, bananas, etc. If it's processed you can't really check for gluten contamination...
  16. Skylark
    It sounds like genetic gluten intolerance/celiac runs in your family. I bet your daughter is doing better antibody-wise because she isn't eating much gluten. I was diagnosed with IBS too. It was dead wrong. I have no bowel problems off gluten.
  17. Skylark
    I got a 2-sided one and put my dangerous allergy on the front of my bracelet. On the back it has celiac, asthma, and thyroid. I figure medical professionals will know what celiac disease is, and if I get a little gluten it won't kill me the way my allergy will.
  18. Skylark
    If your mood deteriorated when you went back on gluten you have your answer anyway. You need the diet. I'm so sorry to hear you are back to a psychiatrist. I know how painful and awful it is and I hope you feel better again back off gluten.
  19. Skylark
    How funny! It's nice to get a high from something healthy.
  20. Skylark
    I was off all cow dairy for a year. I could tolerate goat dairy but I'm not fond of goat yogurt or milk, only cheese. I couldn't quite get used to goat milk in coffee so I was drinking it with a gluten-free brand of rice milk. When I reintroduced cow dairy, I went straight for CHEESE! I had been eating goat and sheep's milk cheese and some of them were...
  21. Skylark
    Have you ever considered teaching yourself to like some other foods? As Sharon said, the way to do it is to try one bite of the food you're learning to like every now and then disguised with a flavor or sauce you like. Don't push yourself to eat a lot; just taste a little. Often when you try something over and over you will get used to it and eventually...
  22. Skylark
    I never liked La Choy as well as other soy sauces. If that's what the sushi bar switched to I can see the issue. I do like San J tamari as well as others. Sorry to hear about P.F. Chang's and thanks for the warning.
  23. Skylark
    Same with me. Corn starch is OK. Corn chips leave me tired the next day.
  24. Skylark

    ARCHIVED Diagnosed...now What?

    Skylark replied to Bubba's Mom's topic in Doctors

    Usually if you have celiac, GI docs will see if gluten-free works before diagnosing Crohn's. I had GI symptoms improve pretty fast but my overall health took quite a while to improve. Allergy testing only shows allergies, not necessarily sensitivities. You're on the right track simply watching what you react to. I was reacting to a lot at first. The...
  25. Skylark
    Scott's list has a lot of generally helpful info. /celiac-disease/gluten-free-alcoholic-beverages-r218/ As far as ciders I've checked: Strongbow Magner's Blackthorn The manufacturer of Hornsby's states that a barley enzyme is used in processing but that the finished cider tests below 20 ppm. No loss to me. I prefer the imported ciders anyway.
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