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Skylark

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Everything posted by Skylark

  1. Skylark
    Sorry you're feeling sick. I've seen FDA recalls of ground meats because they were cut with grain products and it wasn't declared on the label. It's also possible you simply got food poisoned. Did you make sure you cooked the beef really well? It's not safe to have burgers pink in the middle these days. You may have to go with more beans and eggs...
  2. Skylark
    Wow - mine too! I had gluten issues all along, including a childhood wheat allergy, but a severe flu where I ran a fever for days was the start of all my depression and fatigue that has since resolved gluten-free. Mono can trigger celiac. There are a couple old case studies in the medical literature but you would have to go looking for them. So can Campylobacter...
  3. Skylark
    Good luck! I really hope you feel better on the diet. I know what you mean by not needing a positive blood test, as I was never tested at all. My body rejects gluten. I'm OK with that.
  4. Skylark
    Get the testing, then try the diet. You have nothing to lose but all that stomach trouble and depression. By the way, I was treated with Prozac for the celiac fatigue and depression. My mood is normal now with proper nutrition and a gluten-free diet. The antidepressants don't cause celiac - the depression can be an early sign of it!
  5. Skylark
    Hi, Stephanie A few days gluten-free is not long enough to throw off the results of the blood tests. They do have a 20% false negative rate though. The blood tests also do not pick up non-celiac gluten intolerance. You have to try going off gluten and reintroducing it to see if that's your problem. Celiac disease and gluten intolerance can cause depression...
  6. Skylark
    Endomysial antibodies (EMA) are strongly indicative of celiac disease. Even if you had a normal biopsy now, in a prospective study of people who were EMA+, most converted to celiac biopsies within five years. There are also articles in the literature encouraging doctors to diagnose people with strongly positive bloodwork like yours as celiac without the...
  7. Skylark
    I self-diagnosed with diet and what my doctor told me is that if I am willing to eat a celiac diet, I do not need an official diagnosis. Gluten makes me sick enough that I would eat gluten-free either way. I opted not to lose months of my life to gluten challenge.
  8. Skylark
    Well, the overly clever spelling of "Health Wyze" should have been a tipoff. Some really dangerous advice in that article, not to mention the complete ignorance by the author of modern mechanistic research.
  9. Skylark
    You're welcome. Get in the habit of checking manufacturer's websites before you start looking at anecdotes. As the demand for gluten-free products grows, manufacturers are making changes to their policies and they tend to keep their websites pretty up to date. Watch for dedicated facilities and batch testing with an ELISA.
  10. Skylark
    In general, that is not a healthy way to eat. First of all, unprocessed foods are safest for celiacs. Second, you are missing out on vitamins, minerals, fiber, and antioxidants from fruits and vegetables that are essential to maintaining your health. You cannot replace that sort of nutrition with pills. If you think you are still getting gluten and that...
  11. Skylark
    That is VERY out of date. The Bob's website states that anything labeled gluten-free is tested and made in a gluten-free facility. It's pretty easy to find that information on the Bob's Red Mill website. Open Original Shared Link Maybe I missed it, but I don't think Arrowhead mills has a dedicated facility. Did you find somewhere on the website that...
  12. Skylark
    It's certainly worth a try. There are also a lot of forms of gluten and casein intolerance. Not everyone who is intolerant has a celiac-style reaction. It may be that cutting back on gluten and casein is what you needed, or that the enzymes are breaking down something you react to. It takes very specialized enzymes to break down the bit of alpha-gliadin...
  13. Skylark
    Spelt is a wheat and it is not "significantly reduced in gluten" in terms of a celiac diet. All grains from the triticum family will trigger the autoimmune reaction, including wheat, rye, barley, spelt, kamut, einkorn wheat, durum, semolina, and triticale. A slice of spelt bread is an enormous dose of gluten for someone with celiac. Having the celiac...
  14. Skylark
    That link was interesting. They found the PCR sensitivity to be somewhat lower than ELISA. Quantification looks pretty tricky compared with ELISA too, which is not terribly surprising. If you're not using ELISA at all, I'm really surprised your prof doesn't want you to spike a sample with a known amount of wheat flour. I'd require you to do that if I were...
  15. Skylark
    Where did you get the idea that maltose was always barley sugar? Maltose is simply a disaccharide like sucrose or lactose. Maltose is named from the process of "malting" grains, where they are soaked until they sprout, and then air dried. In the process enzymes in the grain convert the starches into sugars including maltose. Malting is done to many different...
  16. Skylark
    What has given you the idea that Bob's Red Mill is not to trusted? If they label a product gluten-free it has been made in a dedicated gluten-free facility and tested with an R5 ELISA. The only way you would get cornmeal that's safer would be to buy whole dried corn and grind it yourself.
  17. Skylark
    Hillshire Farms says that they will always list gluten ingredients or potential cross-contamination. I doubt the meat is the source of your gluten. What snacks that say "gluten free" are you eating? Some people are sensitive to the traces of gluten in "gluten-free" cookies, breads, and other grain products. Have you considered substituting fruits and vegetables...
  18. Skylark
    Your post has me confused. The maltose in high maltose corn syrup is not derived from barley. It's derived from corn. Maltose is found naturally in barley, but it's also manufactured from many grain starches by processing them with alpha-amylase. Commercially it's made from barley, wheat, corn, rice, tapioca or cassava. Unfortunately, a lot of foods do...
  19. Skylark
    You need to have B12, D, iron, and calcium checked. Vitamin D deficiency is pretty much epidemic in older adults, and it's not limited to people with celiac. As Mari said, try some calcium, vitamin D (My Dr. said 2000 IU), and weight-bearing exercise like walking regularly before you accept an osteoporosis drug. They have some troublesome side effects...
  20. Skylark
    Bob's Red Mill all purpose has a strong, unpleasant flavor to me too. I just can't seem to cover it up. I like things made from tapioca, potato, or rice fine so I think it must be the bean flours in the Bob's. By the way, Bob's is a great source of other flours because they test everything that's labeled gluten-free. I also like the Bob's bread mixes,...
  21. Skylark
    The tests are all negative, so you are probably not celiac. Do remember that 20% of celiacs have negative blood tests so it's not a complete rule-out. People can get very sick from non-celiac gluten intolerance too, and there is no way to test for it other than response to the gluten-free diet. If wheat and dairy make you sick, by all means stop eating...
  22. Skylark
    Get tested for celiac first. The tests are not accurate if you're not eating gluten. As far as eating, stick to simple whole foods. Eat things like fruits, vegetables, rice, potatoes, beans, eggs, meats you cook yourself, and other whole, simple foods that you can look at and tell they are gluten free. (No gluten in a banana!) Skip the dairy at first...
  23. Skylark
    Memory loss is NOT normal at 35. Your husband might be trying to make you feel better, which is kind. I had thyroid "brain fog" recently. I was forgetting things, and I couldn't remember names, details about work, or where I was supposed to be when. I had an awful time trying to focus on anything, and I had trouble writing because I couldn't organize...
  24. Skylark
    Most people don't need T3. I didn't for 20 years and I'm only taking a small amount now. If your PCP won't push your TSH below 2.0 and you still feel ill, you should ask for an endocrinologist referral. Just remember that thyroxine takes about six weeks to work, so be patient right now.
  25. Skylark
    That's a really good question. Are you controlling the study with an ELISA? PCR is very sensitive. If you're not controlling with ELISA you may need to do something like grind some corn flour from whole kernels of corn or rice flour from rice that you sort by hand and wash well, and spike in known amounts of gluten to get an idea of the sensitivity. I believe...
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