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Skylark

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Skylark

  1. Skylark
    I want milk in my coffee again. *whine* Don't even make me think about cheese. I tolerated dairy for a while but right now it makes me feel ill and tired. I am off it strictly but not happy about it.
  2. Skylark
    HLA-DQ is made from two proteins, alpha and beta. You get two genes for alpha and two for beta, one from each parent. The genes are called HLA-DQA1 and HLA-DQB1. DQ2 and DQ8 are the so-called celiac HLA-DQB1 chains. The third so-called celiac gene is HLA-DQA1 *0505. It is possible to be unlucky enough to get all three.
  3. Skylark
    By the way, there is a much simpler explanation than cross-reactivity. Celiacs have a lot of food antibodies in general. Eating foods you're sensitive to can cause inflammation, which increases intestinal epithelial permeability and allows gluten better access to the lamina propria where it can wreak its havoc. Back to the original poster: It took my...
  4. Skylark
    They are NOT PEER REVIEWED RESEARCH either. Anyone can put anything on the Ineternet, whether it is true or not. If someone is selling a product or service, like Cyrex or Enterolab, you need to look for independent and preferably peer-reviewed substantiation of their claims. The first article is interesting and does mention a peer-reviewed study. I...
  5. Skylark
    Huh? Your results are straightforward. You have celiac disease and the gluten-free diet is working. Your antibodies have dropped to normal now, as a result of being gluten-free for 8 months. That's great news! I imagine you're feeling better?
  6. Skylark
    *shudder* Petition signed.
  7. Skylark
    I agree with Maximoo. I don't like the sound of mean and withdrawn either. You two need to sort that out. He might need a different job? Otherwise, celiac isn't a big deal, as you've noticed. It's a little limiting with travel and eating out but nothing like a lot of other health problems. You are treating him great. It's so nice to have a spouse...
  8. Skylark
    Hi and welcome. Have you been tested for celiac and are you gluten-free? Those could be celiac symptoms and I assume that's why you are here. It is possible for ulcers, cancer, surgery, or infections to cause a perforation where GI contents leak into the abdominal cavity. As Ravenwoodglass said, an intestinal perforation is a life-threatening emergency...
  9. Skylark
    I'm glad she is feeling better! Before you take her gluten-free, you might want to get her retested for celiac just in case. Celiac is progressive and she may test positive now. Rice and potatoes are gluten-free and easy to find. There is an Italian brand called Sch
  10. Skylark
    Interesting, thanks! I hope you get your kids doing better.
  11. Skylark
    Enterolab claims that there is enough trace gluten in a typical diet that they can detect antibodies. Perhaps you should call or write and ask if a challenge makes the testing more sensitive? Seems like it would.
  12. Skylark
    Love your new size? Marilyn Monroe was a size 12. A size 12-14 is not an unhealthy weight unless you are pretty short. I'm losing a little weight since I've discovered I feel better avoiding grains, starchy foods, and sugar. I wasn't specifically trying to lose weight, but it seems to be happening on its own. The gluten-free breads and pastas...
  13. Skylark
    You may have to find the best neurologist you can and go to the appointment with articles on gluten ataxia. Sometimes we have to educate our doctors. Most of the tests for gluten ataxia are research tests, not ones available at a lab, so it's largely a matter of ruling out other disorders and trying the diet.
  14. Skylark
    Do you have the link to the effect of milk allergy on biopsy? I'd really like to see it. If your kids have positive blood tests it's very reasonable to ask that they not undergo endoscopy. Some Drs will diagnose with a celiac parent, bloodwork that falls on the gluten-free diet, and a big response to the diet.
  15. Skylark
    Untested here. I found out I couldn't eat wheat or rye on an elimination diet and figured out the problem was gluten. It was well before the research showing celiac is common in the US and I didn't know a thing about the testing. I didn't happen to say anything to my Dr. until four months after I'd stopped eating gluten. My Dr. said I was likely celiac...
  16. Skylark

    ARCHIVED Prego

    Skylark replied to Celiac Ninja's topic in Related Issues & Disorders

    I'm so sorry to hear that. I hope you don't lose your baby because of gluten. This disease is so miserable sometimes... Sounds like you need a complete ban on oatmeal, not just steel-cut! Some people with celiac (maybe 10%?) have a full gluten reaction to oats.
  17. Skylark
    Board mods have said that some companies market so aggressively that they run bots to pick up mention of their name. The bot makes a bunch of advertising posts the moderators have to block, which adds a lot of work for them. They decided to automatically filter the names of those companies rather than deal with having to block hundreds of advertisements...
  18. Skylark
    If there is no rash, there is nothing to biopsy. It all depends on how fast your rash goes away.
  19. Skylark
    Check pet foods, shampoo for wheat ingredients. We had someone who didn't get well until their critters were gluten-free because of wheat dust around the house from kibble. I assume he isn't eating oats. No Play-Doh or other gluten toys, right?
  20. Skylark
    You could consider a home test kit. Also if you're in a big city some celiac clinics do free screening. Open Original Shared Link Other than that, I totally understand why you'd want to skip the testing without insurance!
  21. Skylark
    The only issues is how you'll feel about the diet five years from now. If you're celiac you can't ever go back to gluten. If you are not tested you have to assume you are celiac. Basically you're on the diet for life. If you are negative by blood and biopsy you can see if you've retained tolerance in a few years. I never got tested and gluten still...
  22. Skylark
    Those results mean you might have autoimmunity other than celiac and Hashi's. ANA can also just show up and not mean much at all.
  23. Skylark
    I have a few Glasslock freeze/thaw/heat containers that I love. Pop off the plactic lid and put the glass in the microwave with a cover. When those are full I use BPA free Ziploc Twist
  24. Skylark
    I would write a letter to the celiac society explaining that you are celiac and are concerned about the wording in the pamphlet because your own gluten reactions ARE life-threatening. Is gluten life-threatening for your son as well? The school needs to understand that eating traces of gluten repeatedly will make him chronically ill and possibly cause...
  25. Skylark
    Hi and welcome. You look to be in the right place! If you have dermatitis herpetiformis (we call it DH), you are celiac. False negative blood panels are not uncommon. If you have IgA deficiency, which is a risk factor for celiac, your Dr. should have run the IgG version of the celiac panel. If you have a personal need for a formal medical diagnosis...
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