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Skylark

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Skylark

  1. Skylark
    I'm definitely interested! I'd also be interested to know if you find any info that supports Dr. Campbell-McBride's gut dysbiosis hypothesis. She posits that a lot of problems are because gut flora are passed on during birth and since the introduction of antibiotics each generation has progressively worse flora. She claims that it explains the increase...
  2. Skylark
    Been there, done that. We ALL have! Be sure you check the labels every single time you buy something. Ingredients can change. A friend brought over some mochi balls (ice cream in sticky rice) that he said were gluten-free. His wife is gluten-free so I figured he had checked. I ate a few, then checked the label. Wrong order. Check the label first...
  3. Skylark
    Progresso soups, canned chili, canned tuna and chicken, canned fruit and veggies. I keep canned food is stacked in one place in the pantry and I replace cans with fresh as I eat them so that I always have a reasonable supply. I'd also grab Larabars, nuts, dried fruit, cereal, chips, crackers, etc. I don't worry about keeping a backpack of food packed...
  4. Skylark
    You need to know if it's the old anti-gliadin or the new deamidated gliadin peptide (DGP). They can both be labeled "anti gliadin", though the newer one is often labeled "gliadin peptide". The new DGP test is very sensitive and specific for celiac and sometimes it's the only positive test. The OLD anti-gliadin isn't a very good predictor of damage on biopsy...
  5. Skylark
    Wow, that is interesting. Sorry to hear it though. Arthritis is no fun.
  6. Skylark
    I'm not the only person here who can read a gene test. They tested your HLA-DR genes as well as HLA-DQ. You have two commonly linked pairs, DR4-DQ8 and DR15-DQ6. The DR4-DQ8 pair is associated with celiac, rheumatoid arthritis, and juvenile diabetes. (The DR4 gene is common and not everyone with the gene gets rheumatoid arthritis, so don't worry...
  7. Skylark
    I'm not sure I understand how to answer. My grandmother and great-grandmother had signs of gluten issues; Mom is non-celiac gluten intolerant. I checked parent(s) only and grandparents/aunts/uncles/first cousins. I can change it if that's not right. I was never tested. I have Hashimoto's thyroid disease and feel my gluten sensitivity is likely celiac...
  8. Skylark
    I have that problem with sugar. I'm supposed to be sugar-free with GAPS, I know full well refined sugar makes me feel ill, and I have a terrible time staying away from the stuff. I crave it fiercely and one slip-up keeps the craving cycle going. I have to avoid buying sweets completely. If sugar is in the house I will eat it and make myself sick....
  9. Skylark
    Yes, crockpot and slow cooker are the same as far as I know. I think Crock-Pot is Rival's trademark.
  10. Skylark
    I am also divorced from verbally abusive marriage that threatened to turn physical. As Adalaide says, a health problem is not a reason for someone to turn "biting and personal" and that is emotional abuse. It wears you down in ways you might not expect. One day you wake up and realize you are walking on eggshells, self-esteem gone, afraid to speak lest...
  11. Skylark
    Autoimmune illnesses are supposedly usually TH1 dominant. That doesn't explain my asthma though!
  12. Skylark

    Pot Roast Recipe

    Skylark posted a blog entry in Skylark's Blog

    My pot roast: I don't like adding a bunch of liquid so I choose a crockpot where the meat fits snugly. I usually use my 3-quart crockpot because I try to get a smallish chuck roast. Brown the meat in a skillet if you have time. Put the roast in the crockpot and pour in a little red wine so it comes to the top of the roast. If the roast fits snugly...
  13. Skylark
    My pot roast: I don't like adding a bunch of liquid so I choose a crockpot where the meat fits snugly. I usually use my 3-quart crockpot because I try to get a smallish chuck roast. Brown the meat in a skillet if you have time. Put the roast in the crockpot and pour in a little red wine so it comes to the top of the roast. If the roast fits snugly...
  14. Skylark
    Yeah, some of this stuff takes a doctorate to understand. Good thing I have one! Bubba's Mom, some diagnostic labs like Enterolab only test B chain so they would only test for DQ2 and DQ8. Better labs like Prometheus also test for DQA *0505. I wouldn't get too hung up on the genetic testing. You can be celiac without the so-called celiac genes...
  15. Skylark
    That seems a little strong to me. A few months back we had a member who found gluten in a pill she ground up and tested and it explained her ongoing problems. The test strips can be very valuable and I wouldn't be inclined to discard them out-of-hand because of problems with some foods. I'd write the manufacturer and ask what's up with the false positive...
  16. Skylark
    My experience with eating out is that I tend to get sick at Mom and Pop restaurants. As you have noticed, the list of gluten-containing ingredients is long and unless you are dealing with a chef who has had proper culinary training, getting gluten-free food is well-nigh impossible. On rare occasions they will be able to tell you ingredients, but with gluten...
  17. Skylark
    You are doing great. Stay focused on what you CAN eat, which is plenty of great food. I like to tell my friends that champagne, caviar, and truffles are gluten-free. Many of us do have a time when we realize the permanence and enormity of the diet. I'd encourage you to come vent here, and don't try to ignore those feelings. Allowing yourself to...
  18. Skylark
    That Daiya looks good but I'm avoiding starch in the hopes of healing my gut and tolerating dairy again. I'm really glad to know it's out there, though. The best I've found for coffee is almond milk. Coconut milk isn't bad but it's kind of thin. Rice milk is thin too, plus it has starch. Soy milk tends to curdle if you like your coffee hot the way...
  19. Skylark
    I'm glad I could explain your labs in a way you could understand. It looks like you need the vitamin level testing if your Dr. is willing. My Dr. ran D, B12, folate, and ferritin to check iron stores when I was tired all the time. Here is the listing for the prescription omega-3 supplement on drugs.com. It looks like the only interactions are...
  20. Skylark
    @Lisa. Sorry, I was writing when your post went through. I am trying to be constructive and perhaps some of what I have written about the various ways we can react to foods will be of use to Corky21.
  21. Skylark
    These are all great questions. None have answers but there are many more theories than you have considered, most with better evidence than cross-reactivity. As far as peer review, peer reviewed literature is more limited and difficult to read but if you largely stick to it you will avoid falling into the traps that tend to catch non-scientists. Articles...
  22. Skylark
    Yes, yes, yes, you could be celiac or gluten intolerant. I had the always somewhat upset stomach and IBS too. They were cured once I went off gluten. I had the mouth ulcers and severe fatigue, and a weird eczema my doctors could never explain on my arms which also went away. Joint pain is a really common symptom too. You should try the diet! The...
  23. Skylark
    Totally agree with MitziG and ptkds. You need celiac testing. Then give the diet a good, strict try.
  24. Skylark
    I totally agree. Lots of people who can't tolerate gluten come up negative. my mom included. It's still worth testing because a positive test can really help with teachers and school cafeterias.
  25. Skylark
    Tissue transglutaminase (TTG for short) is an autoimmune antibody. The most common reason for TTG is celiac disease, though it can also appear in other autoimmune diseases and inflammatory bowel diseases. Yours is clearly positive. Gliadin peptide is short for deamidated gliadin peptide. It is an antibody to gliadin (the part of gluten that makes us...
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