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Skylark

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Skylark

  1. Skylark
    Hmmm... easy to digest? I've found rice pasta $2/bag at a couple of our local health food stores. Safeway makes rice noodle bowls that are gluten-free and often on sale for $1. Potatoes and sweet potatoes of course, and you might still find winter squash cheap. As Metoo mentioned, whole chickens can be very affordable on sale. You can also get a cheap...
  2. Skylark
    Awww, bummer. I mean good that you're healthy and vitamins check out, but bummer that there is no explanation for it. I'm blind as a bat without correction but when you start wearing glasses at age 9 it's just something you get used to.
  3. Skylark
    If you are celiac, your body has been systematically destroying your intestines for years. These sorts of things don't resolve in just a week. I would suggest you switch to hard-boiled eggs for protein and see if getting completely away from dairy helps. You could also consider tempeh, but a lot of us have issues with soy too.
  4. Skylark
    I notice from your signature that you are vegan. Plant foods have very little pre-formed vitamin A (retinol) and are completely lacking the related retinoids. Not everyone can convert beta-carotene to vitamin A very well. Vegan diets also lack vitamin D3, and not everyone can convert enough D2 to D3, especially in the wintertime without sunlight. Vitamins...
  5. Skylark
    I think you need the advice of a pediatric endocrinologist. Proper thyroid levels are terribly important in growing kids. I wouldn't wait a year to at least talk to an expert if you can get referred. You might consider supplementing selenium. It is in the enzymes used to make thyroid hormones and deficiency can cause hypothyroidism. Here is some info...
  6. Skylark
    That is good news. I hope you get the positive test you're looking for. Good luck!
  7. Skylark
    Focus on what you can eat, not what you can't. Shop the outside of the grocery store, where all the nice produce is, the meat and fish, and the eggs and dairy. I only venture to the center of the store for rice, dried beans, nuts, coffee, and spices. Oh, and chocolate, which is an essential nutrient. It's not hard at all to find gluten-free chocolate...
  8. Skylark
    That can be malnutrition but it is also a hypothyroid symptoms. So are your fatigue and depression now that Kjas has me thinking about it. Here is an "official" list of hypothyroid symptoms. Open Original Shared Link And here is a much more inclusive list from a woman who had to become a thyroid expert in order to regain her health. Open Original...
  9. Skylark
    Ah, now you've got it. I'm glad to hear you are feeling better too. I agree 100% with you that some people are freaked out, seeing gluten in everything, and their anxiety makes them even sicker. Anxiety is part of this disease, much more so than doctors and researchers realize. "Mind over matter" is trivially easy when your mind is functioning properly...
  10. Skylark
    Thank you!!!! I even have all the ingredients!!! Excuse me while I go make myself some hot chocolate. OK that's really good! I sweetened it with honey since I'm on GAPS. The coconut milk is super creamy. I may have to try some in my coffee tomorrow morning.
  11. Skylark
    Plain white rice? I have occasionally ordered steamed vegetables and shrimp at Chinese restaurants when I'm traveling. To be honest, even the steamers make me nervous in places that serve steamed buns. I don't know how well they can clean the bamboo steamers, but I didn't get sick last time I was traveling and ordered plain steamed veggies. Nothing...
  12. Skylark
    Serology comes from B chain. A1*0505 is one of the A chains that is strongly linked to DQ7 so if they found DQ7 there is a chance she has A1*0505. A1*0501 is linked to DQ2. Nora, A1*0505 is the allele linked to DQB1*0301 (as DQ7.5) and is occasionally found as the only celiac allele folks without DQ2 or DQ8 B chains. DQB1*0301 is not thought to confer...
  13. Skylark
    Great! That's a tough call what to get. Since you know you're gluten intolerant and it's autoimmunity you are concerned with, how would you even interpret the old anti-gliadin? It's not very specific for celiac autoimmunity.
  14. Skylark
    I'd recommend a multivitamin with chelated minerals and trace elements as well as vitamins. I'd look for something really complete like Solgar Omnium or Solgar VM-2000. Metagenics makes good multiples too. The stuff I'm taking has pretty much everything but the kitchen sink! You need trace elements and minerals as well as vitamins to rebuild enzymes and...
  15. Skylark
    Hi and welcome. I don't think anyone on the board has ever talked about 22q deletion syndrome. It sounds terrible! 1. Most people respond to the diet, though it can take a long time. The longer you go undiagnosed, the more autoimmune damage has been done. We have people older than you are who were celiac all their lives and have recovered some or...
  16. Skylark
    As well as the supplements, it may simply take more time. You've only been gluten-free for a couple months. If you had a positive biopsy it may take considerably longer to recover. There was a thread some time back on how long people took to get back to feeling normal and the answers were anything from two weeks to two years. Celiac can do a LOT of damage...
  17. Skylark

    After reading your comment and Keiths story, you are one smart Lady. His photo is photo shop enhanced. Thanks.

  18. Skylark
    As well as B12, take some benfotiamine. I'd also suggest fish oil for the anxiety. Also, have a look at what you're eating. If you've switched from whole wheat to ultra-starchy gluten-free foods your blood sugar may be bouncing around more than is healthy. Make sure you have protein and some fat (like nuts or cheese) with your snacks, and replace...
  19. Skylark
    I didn't recover from the fatigue, sleep problems, and in my case bipolar illness until I started taking high potency probiotics, fish oil, and a complete vitamin/mineral/trace element supplement. The one I take is called EmpowerPlus from Open Original Shared Link I'd strongly recommend straight fish oil rather than omega3-6-9 blend. The American diet...
  20. Skylark
    Remove giblets??? Send 'em to me! Giblets give great flavor to broth. So does the neck. When you throw the bones back in to simmer, add a little apple cider vinegar. The acid will leach calcium and minerals out of the bones and make the broth even more nutritious.
  21. Skylark
    I think it's fine if you don't mind being stuck twice. Personally I'd be on pins and needles wondering about IgA if everything came back low so I'd get the total IgA at the same time. Gluten won't matter for total IgA.
  22. Skylark
    Gas happens when sugar and starch isn't broken down or absorbed in your small intestine. It gets to your colon and bacteria living there break down the starch, producing gas. There are two reasons sugars don't get absorbed. The first is if you're missing enzymes and important bacteria, leading to problems digesting complex sugars like lactose, starchy...
  23. Skylark
    Welcome to the board. That doesn't sound fun at all. I have had big thyroid trouble since I went gluten-free too. I'm still not sure what caused it. Have you tried going off dairy? It can be a big problem for celiacs, plus if you're digesting poorly opiate-like peptides from dairy can get across your gut and mess with your immune system.
  24. Skylark
    *hand raised* Welcome to the world of almond meal, superfine rice flour, tapioca starch, and coconut flour. You CAN bake perfectly well gluten-free and try some arrowroot starch for your gravy. Since you have neuro symptoms, do give the gluten-free a try even if the GI stuff is inconclusive. There are no tests for celiac-caused neurological...
  25. Skylark
    The Cyrex array does look interesting. The Deamidated Alpha Gliadin 33 MER is the test you're wanting, the one often called DGP. You might also look at the panels this company offers. They have a celiac panel with total IgA, EMA, TTG, and DGP. There is also DGP IgG and IgA available alone if you just want to supplement what your Dr. has ordered. Open...
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