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Skylark

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Skylark

  1. Start with the family doctor. The specialist who will really be familiar with Sjogren's testing is a rheumatologist so you may need to ask for a referral. (Or go directly to a rheumy if your insurance allows.)
  2. I personally don't worry about labels saying something is from a facility where wheat is handled. I have occasionally reacted to foods stating that they were made on shared manufacturing lines so I tend to avoid those.
  3. I'd recommend you read two books. The first is called "Living Well with Hypothyroidism" and it's very good and simple. The other is Kharrazian's book "Why do I still have thyroid symptoms when my lab tests are normal?" It's a little more technical but still helpful. Both books have a lot of natural suggestions on normalizing your thyroid function. They...
  4. Looks GREAT! Happy Thanksgiving!
  5. Good luck! So you know, my mom who has FM does really well on lean meats and eggs, white rice or potatoes (not brown rice), and dark leafy greens like kale, spinach, or chard. You can start with those foods and expand if it helps.
  6. Really? I didn't realize it was that high. There are studies where as low as 50% of people with DH have TTG antibodies. There is an epidermal transglutaminase that they all have antibodies to.
  7. Hi, Nicole. Welcome to the board. People are very likely to miss your question when you post in the middle of someone else's discussion. It's also very confusing. You will get more help and answers if you start your own thread to ask a question. To start a thread go to the part of the forum that seems relevant and click the "Start new topic" button. ...
  8. The celiac blood panel doesn't generally show positive for DH unless there is also GI celiac disease. It isn't really a "false negative" because the blood test isn't expected to work. It's designed for GI celiac disease and in DH the antibodies are deposited in your skin, not in the blood. Heck it doesn't work 30% of the time in GI disease either! The...
  9. If you made it three months on your "practice run" you'll do it this time for sure!
  10. You can use any liquid cooking oil in a recipe that calls for vegetable oil. Canola, sunflower, corn, soy, safflower, olive, peanut, or blends like Wesson all work. They are all gluten-free. I think olive is the healthiest so I use light olive oil when I want a neutral-tasting oil.
  11. I've thought of it, but it's a lot of work for something I'm not sure anyone would buy.
  12. Going off starches and sugar has helped my reactive hypoglycemia tremendously. I used to literally fall asleep after eating white rice. The Open Original Shared Link cookbook has some nice recipes. It also has directions for the bone broth. Once you have broth, you can add meat and just about any veggies you want to make soup. There are recipes in...
  13. Good for you! *cheers* Does my grandmother's emphysema from years of smoking give you another reason? She got to where she couldn't walk up a gentle hill or climb a single flight of stairs without getting winded. You also will get rid of unsightly tobacco stains on your fingers and teeth.
  14. Gosh, it sounds like you're swallowing air. Open Original Shared Link
  15. I'm sorry to hear that. Have a look at the low dose naltrexone studies and info. It may help you considerably. Open Original Shared Link
  16. Nice Googling, Reba! Our puritanical, drug-bashing society really wants to make caffeine into a villain. It's just not so simple. Caffeine is anti-inflammatory, and coffee drinking may protect against Alzheimer's. Caffeine is also immunomodulatory and the latest idea is that it might help folks with TH1 dominant autoimmunity. Open Original Shared...
  17. There is a somewhat unusual neurological form of celiac disease, where the autoimmunity is directed against the nervous system. Only one marker (anti-gliadin) typically comes back positive because the usual celiac panel is looking for gut antibodies. Anti-gliadin is considered a weak marker for classical celiac disease so most doctors would misdiagnose...
  18. This article summarizes the health issues with soy pretty well, and the importance of fermentation for healthy soy-based foods. Sorry it doesn't have peer-reviewed references but the anti-nutrient and goitrogenic properties of soy are well-documented in the medical literature. Open Original Shared Link
  19. Again it depends. If you are allergic get hives from bread but a little soy sauce doesn't bother you, the soy sauce will actually help keep you stay somewhat desensitized. Going 100% off wheat can set you up for anaphylaxis. If you have "leaky gut" and the lectins or glidaorphins are the problem, it's dose dependent and CC or even a crouton won't matter...
  20. Yes, I get depressed and anxious. Sorry to hear you're feeling so under the weather. Extra vitamins help me and I'll often drink some Emergen-C or get a fruit smoothie that has a bunch of B vitamins. All the flavors of Emergen-C are gluten-free now. Open Original Shared Link
  21. How about this one. I'm in a hotel restaurant and ask if there is any gluten-free food. The waiter goes to the kitchen and comes back to tell us "you can't have anything with bread or pasta." I was with family and three of us are gluten-free. We all just stared at him in shock and ordered plain salads.
  22. Nope. There are a lot of very well-documented inflammatory effects of gluten on the intestinal mucosa that don't require antibodies at all. Go look up Fasano's research. In addition to the inflammatory type of reaction to gliadin peptides, sensitivity to wheat germ agglutinin (the wheat lectin) or gliadorphin can cause gluten intolerance, and fructose...
  23. Tests for food intolerances are notoriously inaccurate. The best thing is to do exactly what you have done - remove it from your diet and see if you feel better.
  24. I make good use of the edit button on my bad days!
  25. you mean you find it difficult to follow posts with no punctation no spacing and no capitol letters? i can't imagine how you would pssibly find a rambling post full of run on sentences and typos hard to read after all it's the way some people talk anyway dont you know what i mean? and besdes we should all be nice to evryone and try to read no matter how badly...
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