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Skylark

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Skylark

  1. Skylark
    I agree. Before I went totally grain-free, I was eating quinoa cooked in chicken broth. I like the flavor of it cooked with some canned tomatoes or tomato juice mixed in with the broth too.
  2. Skylark
    I'm confused. Do you need US brands? On the west coast, Ghirardelli is in most drug stores and grocery stores. It's pretty nice chocolate and their dark chocolate is gluten-free. It says shared equipment with milk so whether it would work depends on how casein sensitive he is. Here is their allergy info. Open Original Shared Link
  3. Skylark
    I had stress-triggered stomachaches all my life until I went gluten-free. They have vanished entirely.
  4. Skylark
    I'm not sure it's worth the money to redo Enterolab or chase down York lab. The information is interesting, but her symptoms really tell the story. With both anti-gliadin and TTG fecal IgA plus obvious symptoms, your daughter REALLY needs to be off gluten. There isn't as much data in PubMed about fecal TTG but the few bits & pieces I've turned up suggest...
  5. Skylark
    Wow, stay safe with that gluten challenge! If you want something that doesn't require cooking, the unfrosted Kellogg's Mini-Wheats are also pure vitamin-fortified wheat.
  6. Skylark
    Being ill with a virus changes my brain chemistry and I get upset and depressed. Are you that way too? I'd definitely be upset about having my gut messed up again by a supplement after finally figuring out the celiac! That's just normal.
  7. Skylark
    Hi and welcome. Did you and your daughters have TTG on Enterolab or only anti-gliadin? As you mention, on the Enterolab website there is data showing that anti-gliadin shows up in 30% of the healthy people they test. Fecal anti-gliadin is pretty consistently elevated in people with celiac disease, which is why some people find it useful. The other reason...
  8. Skylark
    What are you trying to learn with the testing? You already know he can't eat gluten. There are forms of colitis that involve reactions to gluten. I don't know whether it's autoimmune or an intolerance reaction. Right now the science of celiac testing is in such a sorry state of affairs that we can only dceliac autoimmunity by making someone have a complete...
  9. Skylark
    a. Reaction timing can really vary. b. The usual recommendation from doctors is actually 3-4 slices of bread worth of gluten a day. c. I would have already called it off with such a strong and obvious nervous system reaction. What if it doesn't heal this time around? d. I looked up some relapse studies. They are in this post.
  10. Skylark
    I don't know what you've been reading but it's dead wrong. TTG is an enzyme in your body, not a food substance. If you have anti-TTG you definitely have autoimmunity. The only question is which kind of autoimmunity and most often TTG is a sign of celiac autoimmunity. Your GI doctor should be able to confirm what I'm telling you. Genetic tests are not...
  11. Skylark
    I'm so sorry to hear that. I know how awful that anxiety and irritability gets! I've not personally had a reaction much longer than four days. Fish oil is really huge for me when I'm anxious and hypomanic/irritable. I'll take up to four double-strength capsules a day - one with each meal and one at bedtime. Other things that help for anxiety are...
  12. Skylark
    Not safe. Try a cornbread stuffing made with gluten-free cornbread, or make your stuffing from gluten-free bread. I hear the inedible Ener-G bread actually makes quite good stuffing.
  13. Skylark
    Hi and welcome to the board. Anti-gliadin is an old, inaccurate test that isn't very sensitive. It's negative in a lot of celiacs. TTG IgA is an autoimmune antibody directed at your intestine and assuming you don't have some other autoimmune disease like type 1 diabetes or rheumatoid arthritis, it indicates celiac disease. If you feel better and the...
  14. Skylark
    In the US we're getting some certified gluten-free oats from oat-only farms that pass tests with R5 elisa. They are OK for some celiacs but not all. Probably 10-15% of celiacs react to oat gluten - we have some oat sensitive folks on the board. Good luck talking to your SiL. I hope you can get this child eating safe food!
  15. Skylark
    The blood tests that really leave no question are anti-EMA and anti-DGP. The old anti-gliadin test is notoriously inaccurate, although if you get a positive result you probably do need to have a biopsy and try the diet. TTG is a sign of autoimmunity but not specific for celiac as Raven mentioned. As well as type 1 diabetes and autoimmune hepatitis, TTG...
  16. Skylark
    Hi and welcome. There are multiple tests for celiac disease, some of which are more specific than others. Which test was positive? It is possible for someone with celiac to eat wheat without immediate symptoms. The autoimmune damage is still being done. She also may find that she gets more sensitive to wheat once you get the diet going correctly and...
  17. Skylark
    I'm confused. Gluten-free oats are fine for a lot of celiacs. They aren't feeding the child wheat, barley, or rye are they? They can't be so stupid as to risk the life of their child again?
  18. Skylark
    I'm just trying to throw out safe/simple things to try since we're so stumped!
  19. Skylark
    Lashing out at all us "addicts" is not exactly constructive. Do you realize that book was published in 1998? The research in it is over 13 years out of date. Also did you look at his other books? This guy likes to make money off fad science. He has a whole book on using DHEA for crying out loud. That stuff is dangerous. For every article in Pubmed...
  20. Skylark
    I get gluten-free pizza at BJ's without any trouble, or at least I was until I went grain and dairy free. The one near my house told me they have a separate topping station and separate pizza boards for the gluten-free pizza. I don't know that all the chains are that careful but the manager at mine understands CC.
  21. Skylark
    That symbol means they are getting inspections and independent verification that their food is under 10 ppm gluten by GFCO. You might want to look at how the GFCO certification works for some peace of mind. Open Original Shared Link I have found GFCO certified foods to be very safe.
  22. Skylark
    Your hubby will figure out pretty soon that he'd best eat gluten-free around you if he wants a quick kiss. Remember that you can make a lot of the meals for your family gluten-free using rice, potatoes, quinoa, sweet potatoes, cornbread, corn tortillas, and rice pasta. You'll also want to do any baking gluten-free. Don't let wheat flour into your kitchen...
  23. Skylark
    No, it's not a gluten reaction two weeks later. A lot of people do find they have stronger reactions to gluten after they've been on the diet for a while. Alternatively, you could simply have a virus. The head and neck ache sounds viral. If you have been diagnosed with celiac disease you MUST stick to the diet. Cancer and refractory celiac are actually...
  24. Skylark
    You thanked people on the board on your first post! That's a great way to start out. Please don't feel self conscious about what you write because of this thread. It can be frustrating to try to help people who reject every idea, write incomprehensibly, or refuse to provide information you need to answer their questions. It's even more upsetting to...
  25. Skylark
    You're welcome to unload here! That's what the board is for. It can get very frustrating when your stomach hurts all the time. Most of us have been there. Remember that scratch testing is not a very reliable indicator of food allergies. You need to eliminate your positive foods for a couple weeks and then try introducing them one at a time. My dad...
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