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Skylark

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Skylark

  1. Skylark
    Blood testing is better, and any doctor can order a blood celiac panel. Yes, you have to continue to eat gluten for ALL celiac testing to be accurate.
  2. Skylark
    It sounds like they are talking about total IgA, which is not an indicator of celiac. Low normal is not a big deal. You need to find out your celiac panel lab results, along with the normal ranges.
  3. Skylark
    Hi there and welcome. In the future, when you want to ask your own question, it's better to start a new topic. It gets really confusing trying to talk about two sets of labs in one conversation and a lot of people will miss that you're even trying to ask something. As your Dr. said, your results are equivocal. Sometimes the anti-gliadin IgG indicates...
  4. Skylark
    What type of IgA? It should be anti-something. Anti-EMA or anti-DGP would indicate celiac. Anti-TTG can also be positive in Crohn's or microscopic colitis so you would need more testing. Sorry to tell you this, but you need to go back on gluten. Your doctor may want to run other tests or do an endoscopy with a biopsy and the testing doesn't work gluten...
  5. Skylark
    The "wheat alternative" spelt bread was the biggest one. Open Original Shared Link We also had someone on the forum get sick from their sprouted corn tortillas, possibly because of undeclared barley in the water used to sprout the grains. We never did get a straight answer from the company about the barley and the first response from the company...
  6. Skylark
    I am not a doctor. You have an opinion by a clearly experienced GI that the tests are valid and you're celiac. You have an opinion by a GP who made you feel terrible about yourself and clearly does not understand celiac disease that the tests are not valid. The decision about retesting is yours alone to make. Since you want our opinions, if I were you...
  7. Skylark
    Eggs, fish, and stewed meats with broth are easy enough to digest and much better for you than eating a protein supplement out of a can. A couple eggs in the morning and a 4 oz. serving of meat at lunch and dinner is plenty of protein to be healthy (probably more than you need). Try hard to avoid processed foods in general. They are not as good for you...
  8. Skylark
    This is not legal in the US. Wheat allergens must be declared. Also many big-name companies like ConAgra, General Mills, Kraft, Heinz, Knorr, Sara Lee, and Unilever are very strict about declaring wheat and have also committed to putting anything that might contain gluten on their labels. If you buy from a smaller company, you may run across labeling issues...
  9. Skylark
    Because he's a bad doctor! Ever hear the old joke? "What do they call the last in the class in medical school?" "Doctor" Yes, after only a week gluten-free you can redo the testing and it should still be positive.
  10. Skylark
    You have it hard. I'm sorry. A lot of people don't understand that once in a while DOES hurt us. Is your daughter old enough to start to learn about gluten on her own? It almost sounds like she will have to be her own advocate. Teach her well and mark her safe foods with stickers or tape with a colored symbol like a heart or star so she can identify them...
  11. Skylark
    He's 100% right. We do not need "gluten-free" labels popping up on celery and carrots. It just makes it confusing.
  12. Skylark
    Your doctor is half right. The low sIgA makes the salivary celiac test invalid. You can't look for something that isn't there! She is mistaken that it automatically means your mucosa is compromised. Low IgA is genetic, and it is a risk factor for celiac disease. A lot of us do have thyroid antibodies, so that's suggestive too. Did your doctor do...
  13. Skylark
    You're not alone. Gluten can make us super-sick and I'm glad you've figured it out. #1 Yes, you can get flu-like symptoms from eating gluten along with everything else. We have some folks on the board that feel that way. #2 The best thing to do is focus on healing rather than testing. You can get blood testing for food allergies and follow up with...
  14. Skylark
    Your family doctor is an idiot. If he doesn't like the labs because they don't agree with his misconceptions about celiac disease throw them away and do another??? And undermine his patient's self-esteem while he's at it by telling her it's all in her head? Sheesh. Keep the GI. He sounds good.
  15. Skylark
    That's just salivary IgA. It's no better validated than fecal.
  16. Skylark
    Progresso chicken rice with vegetables! If you want another flavor, the southwestern style chicken chowder is pretty good and not overly rich. Open Original Shared Link (click on gluten-free for the list)
  17. Skylark
    What Korwyn said!!! Health problems happen to everyone. You are being much too hard on yourself. Celiac is much easier to handle than many health problems, and by simply sticking to a diet you can be healthy to care for your children and be a great mom. As far as saving money, I had to eat gluten-free on a student budget so I understand that issue....
  18. Skylark
    I have it. For me, it has nothing to do with gluten and I haven't linked it to any food. Perioral dermatitis is supposedly a form of rosacea, so irritants like tea tree oil may make it worse. Steroids make all forms of rosacea worse. I've read that switching to fluoride-free toothpaste helps some people but it didn't work for me. I flatly refused to...
  19. Skylark
    I hope you've figured out your issues! If you can afford it, get one of these home tests before you go gluten-free. Open Original Shared Link Once you go gluten-free you cannot be tested for celiac without making yourself sick all over again with gluten. It's good to know whether you're gluten intolerant or celiac. I went off a lot of psych meds gluten...
  20. Skylark
    I've always wondered about beer glasses and that quick rinse. Bottled Magner's cider is quite good and a lot of pubs that serve Strongbow also carry Magner's.
  21. Skylark
    Sorry, there isn't any valid diagnostic testing in the US that works gluten-free. Some people pay for Enterolab because it's very sensitive and can sometimes pick up antibodies in people eating low amounts of gluten, but Enterolab has never properly validated their tests as medical diagnostic tests. They seem to have a very high false positive rate....
  22. Skylark
    Yes, it's very frustrating that some health care systems refuse to cover celiac treatment without a positive test when the testing is in such a sorry state. Good luck!
  23. Skylark
    Blood TTG does not correlate very well with the amount of damage, let alone fecal. You would need to have her biopsied for that.
  24. Skylark
    Huh. That is weird.
  25. Skylark
    I don't think you're supposed to take betaine HCl it on an empty stomach. You naturally make stomach acid when you eat, not between meals.
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