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Skylark

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Skylark

  1. Skylark
    Ugh that sounds like me and my mom. In my case she has impossibly high expectations for everyone including herself. I can't possibly be the daughter she was looking for because that human being doesn't exist. Mom doesn't even live up to her own expectations, which is really sort of sad. She does love me though, and now that I understand what's going on...
  2. Skylark
    I get that "lump in the throat" feeling when I'm hypothyroid. It's not an ache, just an odd feeling when I swallow. You don't want your thyroid burned out for all the reasons we're discussing. It will settle down on its own, and you will still be able to make some thyroid hormone "on demand". Be patient and let the diet have a chance to work.
  3. Skylark
    I've had that problem too. What do people think flour is made of anyway? Fortunately I always mention "bad wheat allergy" as well as the "no bread or croutons" and when I call a manager and explain the situation it's always been set right.
  4. Skylark
    Meat, white rice, white potatoes but NOT sweet potatoes, leaf veggies like lettuce and chard, green beans, seeds, nuts, eggs, avoid all sugar and fruit. It shouldn't take too long for things to start to settle down on that diet if fructose is the problem. Probably a matter of a week or two at most. Fructose malabsorption is one of the intolerances that...
  5. Skylark
    Luv, fructose malabsorption can cause REFLUX!!! Reflux can cause neuro issues.
  6. Skylark
    My dosage keeps going up. My body is systematically destroying my thyroid gland. I don't think it has to do with age for me. My TPO titer has doubled in three years to over 400. I've noticed what you are talking about with exercise. If I'm slightly hypo I don't recover right and instead of the exercise feeling good I'll be tired the next couple...
  7. Skylark
    As I mentioned, for me there were nutritional problems. I had enough malabsorption that apparently I was short all sorts of vitamins and trace elements and it affected my mind. I did NOT heal until I figured this out with the help of a friend who is a naturopathic psychiatrist. Many of us celiacs are deficient on B12, D, selenium, and other nutrients. ...
  8. Skylark
    Agreed supplementing/not supplementing is a slippery slope. pain*in*my*gut is so new to the gluten-free diet it just seems a shame to change something right this moment. I totally KNOW how awful you can feel hypothyroid, as I have Hashi's myself. At TSH 5.5 last summer I had every symptom of hypothyroidism in the book. I don't agree that thyroid replacement...
  9. Skylark
    I have to apologize. I have a cold and I'm apparently totally spacey. I totally misread your TSH as #4 was 450 rather than 4.450 and thought your readings were in the hundreds. I must be sicker than I realize. Readings BELOW 4.5 or 5.0 are often marked as normal by labs that are using outdated reference ranges. It's still arguably poor medicine because...
  10. Skylark
    I had a banana and a biscuit I made with gluten-free Bisquick. The gluten-free Bisquick is expensive but the biscuits it makes are fluffy and soooooo good! And coffee, of course.
  11. Skylark
    Something is wrong with those numbers. What is the reference range and the exact name of the test you're reading? There's no way a doctor would ignore TSH at 450 on the even the old range of 0.5-5.0. If it was really ignored, find a lawyer because you can probably win a malpractice lawsuit. My doctor diagnosed me with Hashi's on high TPO and did not...
  12. Skylark
    Peter Green likes to claim he is some kind of special snowflake. Apparently the reviewers haven't read enough of the celiac literature to catch his BS. This happens a lot in scientific articles. When I saw Marku Makki talk, he spoke about desensitization and spontaneous remission in some celiacs. He has seen it in his decades of practice. It's part of...
  13. Skylark

    Celiac Remission

    Skylark posted a blog entry in Skylark's Blog

    When I saw Marku Makki talk, he spoke about desensitization and spontaneous remission in some celiacs. He has seen it in his decades of practice. It's in one of his articles but I can't seem to turn it up. I did find some other stuff for you. I don't know whether the Gut links will work for you because I have an academic affiliation that allows me to...
  14. Skylark

    ARCHIVED Ignore?

    Skylark posted a topic in Board/Forum Technical Help

    Is there a way to ignore a particular poster? Edit: Nevermind I found it.
  15. Skylark
    No, it is not best to avoid gluten if you're not sensitive. Whole wheat has a much better glycemic index than most of the starches they put in gluten free baked goods. There are a lot of people running around who think they're doing themselves favors by going off whole wheat bread and eating rice flour and potato starch instead. They're not. If you...
  16. Skylark
    I had not only depression and anxiety but bipolar illness on gluten. It took quite a while for me to figure out that I needed not only a gluten-free diet but a lot of vitamins and minerals for my mental health to improve. Once I stopped taking meds and started on a potent vitamin, mineral, and trace element supplement designed for people with bipolar, it...
  17. Skylark
    I started intolerant to cows milk. Sheep and goat were OK but I would react to even the small amounts of cow casein in butter or non-dairy creamer. It took about a year until I could eat cow casein again. I discovered it by accident, when I ate something cooked in butter by mistake.
  18. Skylark
    Yes, it's common knowledge among experts that celiac disease occasionally goes into remission. There are other case studies, plus a study on someone who desensitized herself by progressively eating more and more gluten. There was a recent study on DH where dermatologists mention that the gluten sensitivity goes away in some people after 1-2 years of eating...
  19. Skylark
    Not rare at all. It's like 1 in 5 go into remission. Can't remember where I read it but it surprised me.
  20. Skylark
    It's different from country to country? That explains a LOT. I don't see how the US form, which is basically a sugar pill, would contain gluten.
  21. Skylark
    I am at a loss for words. If you want to get into some sort of activism you need to learn some science and get your facts straight. I am not "offended" but I am awfully disappointed that you think you can come here as a new member, spout a lot of disconnected pseudoscience, and expect to be taken seriously.
  22. Skylark
    Boy, it sounds like everything else. Some people are OK on Synthroid and others react. How confusing. Thanks a million for your input, kimis, wjp, Luann, and Lisa! My Dr. did give me two weeks of samples and so far I have no weird GI issues or canker sores. If I get a canker sore I'll know for sure it's gluten!
  23. Skylark
    Yes that sounds like thyroid. Either Graves' or an overactive Hashimoto's episode. You need a thyroid workup, particularly TSH, and all three thyroid antibodies Ravenwoodglass mentioned. The various T3 and T4 levels are nice to have but most doctors won't order them until they find an abnormal TSH or antibodies.
  24. Skylark

    ARCHIVED Jail/prison

    Skylark replied to maximoo's topic in Coping with Celiac Disease

    I have a friend who worked as a prison psychiatrist. Prisoners in the US do NOT get adequate medical care by any stretch of the imagination. There is barely money to feed them, let alone try to get medications or special food. There isn't a chance a prisoner would get a celiac diet unless they got so sick they required regular ER visits. Even then you...
  25. Skylark
    Sheesh. Just try going off gluten before you go on a PPI drug. You've had the testing done so there is no harm in trying the diet. If you're gluten intolerant you will have normal celiac tests anyway. Omeprazole really messed up one of my family members and it turned out she is gluten intolerant and allergic to garlic.
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