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Marz

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Marz

  1. Marz
    After my upper/lower I had a bit of pain... Ah, going to bathroom was seriously painful, burning pain... My throat was also incredibly raw, and I figured if my throat felt like that, I imagine my intestine was not happy at all. And I'm guessing they use air to inflate your intestine for the colonoscopy, are you feeling bloated and windy as well? Does lying...
  2. Marz

    ARCHIVED Very Angry

    Marz replied to Laurie H's topic in Coping with Celiac Disease

    That is a scary thought - these trendy people that were only following the diet because it's the latest fad, decide they would actually prefer to eat wheat. They're not really gluten-intolerant, so when they return to it, declare themselves "cured". I've already got that from a colleague - oh yes, he also used to have issues with wheat, but it has since...
  3. Marz

    ARCHIVED Grr...

    Marz replied to Roda's topic in Coping with Celiac Disease

    Definitely get the results! My first "celiac" test was an IgE allergy test! I was so pissed off when I found out a few years later, because that threw me completely off the correct diagnosis. Also check they did the full panel - IgA tissue transglutinase (Ttg) as well as anti-gliadin, and total IgA to rule out IgA deficiency. A endogastroscopy would have...
  4. Marz
    Great news! Glad the diet is helping I also had panic attacks (Started at same time as gut issues and slurring words) and all went away after a few weeks gluten free. I often get trace amounts of gluten (Like eating a marinated steak with "starch" that didn't warn about gluten, certain gluten-free biscuits), and then my symptoms come back again. So even...
  5. Marz
    Definitely could be gluten intolerance, especially since MS runs in the family. Seriously - so 2 lesions are "not enough" to diagnose MS? It's not like lesions are normal right? Anyway, even if the celiac panel comes back negative, I'd highly recommend you try out a strict gluten-free diet for a few weeks, if not a month or so, to see if it helps with...
  6. Marz
    Oh yeah! It's not my main symptom, but after 25 years of perfect speech, I suddenly developed a bad stutter when my gluten intolerance got bad last year. Specifically I get stuck on "s" sounds. Also switching words, talking reaaaally slooowly and not being able to retrieve a word that I want to say. All went away on gluten free diet, fortunately. I...
  7. Marz
    Thanks for this link Shauna, sounds like an interesting study - going to check it out just now. You've been such an inspiration to me on this forum, to always keep gluten CC down to an absolute minimum. Thanks for posting your experiences My thoughts on the topic - I'm always feeling 100% when I'm eating whole foods. Then I get bold enough to start...
  8. Marz

    ARCHIVED Glutened Today

    Marz replied to anna34's topic in Coping with Celiac Disease

    How far apart were the incidents - sometimes after a glutening, I'll have a "Day 1" reaction, and then a second reaction a few days later. What were the ingredients for the brownies - did you use a "premix" or mix the flours and cocoa etc from scratch? Any new ingredients used that you're not sure of? Otherwise, since you're sure the chips were a problem...
  9. Marz
    So almost a year after I went gluten free, my dad's finally getting blood tests done for celiac disease! I've been trying to persuade him for ages now, highlighting the fact that it's hereditary and even if he doesn't have stomach problems he still could have the disease. His symptoms are mainly fatigue, anxiety, insomnia, so he's not too convinced it could...
  10. Marz
    Well they won't taste exactly the same with gluten-free flours, but believe me the toppings taste the same, and it's still pretty awesome! Actually, before I could only eat two or three pancakes before feeling sick - thought I just couldn't handle all that sugar. But now I can tuck into a lot, and no misery afterwards! Well, you don't have the stomach...
  11. Marz
    I'm wary about foods my friends have made, and I trust them to actually take care! People from work I wouldn't trust, neither do I even trust home-bakery. They just aren't careul enough to keep out cc. I would make it clear to your manager, that if there's any amount of gluten in there (trace amounts from pots/pans/flour in the air etc), then you're going...
  12. Marz
    Meh, from the article it looks like meat glue is used to make those processed meat products like sausages, meat loaf etc. Wouldn't touch those anyway, with the risk of gluten being used for binding too high. I'm fairly sure plain steaks/chops/chicken doesn't use meat glue. No need to go hunting for your own, just go to a decent butchery!
  13. Marz
    I have some strange itchy skin conditions - itchy skin patches sometimes turn white-ish and look like eczema, and I get a chicken-skin like rash. I only get these when accidently glutened (Even trace amounts). IT's much better when I'm on the straight and narrow with safe, whole foods Holding thumbs it helps for your psoriasis
  14. Marz
    It is really difficult... At my work, we're given cake on Fridays, every week, to celebrate the birthdays for that week. They also supply pastry savory treats with that, for "those who don't eat cake". There's absolutely no treat for those who are gluten-intolerant, and I know of at least 3 other people at work that consider themselves gluten-intolerant...
  15. Marz
    Woah, was that out of the blue? So sorry to hear you've split. You've got the whole forum's sympathy
  16. Marz
    Hi there I think quite a few suffered from it before going gluten free. How strict is your diet - any chance of small amounts of gluten getting in? Have you had follow up tests to check blood antibodies or intestine to see if you are healing? I was " diagnosed" with non ulcerative gastoparesis while trying to figure out what was wrong with me. Turns...
  17. Marz
    Hi there, Just saw this long thread now, was wondering after going through it how you're doing? Hope the visit to the neurologist helped (Or at least ruled out other potential issues). Just wanted to also encourage you to continue on the diet, and I really hope you start seeing results soon. I imagine it must be hard without being able to see all...
  18. Marz
    **Completely exhausted** - this is a classic symptom of celiac disease. Some celiacs have no symptoms, except fatigue. I also had a lot of "stomach" problems when I was eating gluten - nausea, feeling full quickly while eating supper, lack of appetite. I also had alternating d and c. The nausea was bad though - most evenings I'd eat supper and then...
  19. Marz
    Nice reply mushroom, I think it's all covered really Welcome to the forum, and don't be scared - you've got a lot to look forward to if Celiac disease is your problem, including potentially decreasing/disappearing psychiatric problems. See Skylark's posts for how her bipolar condition got better, lots of us suffered from panic attacks/anxiety that...
  20. Marz
    Shame man, that's terrible It could be illness/food poisoning, if it's been a week please get to the doctor ASAP! Throwing up in the morning - first thing I thought of was morning sickness, but I'm sure you'd know if that was a possibility Don't get offended - my doctor tested me twice when I was suffering from nausea before going gluten-free...
  21. Marz
    Hi Hubby of celiac disease person, Welcome to the forum, and great to have you here It's so good you're researching for her and supporting her with this, she's definitely going to need it! I think everyone has responded already, but for your original post : She can have one of 2 reactions to occasionally eating gluten. 1 could be extreme pain...
  22. Marz

    ARCHIVED Gluten Ataxia

    Marz replied to Marz's topic in Coping with Celiac Disease

    Here is an extensive write up about gluten ataxia, if anyone is looking for more info, and some success stories : Open Original Shared Link
  23. Marz
    Sounds like you'll be fine! Your biggest culprits will be the spices she uses automatically without thinking about what's in them, and wheat flour used as a thickener in sauces if that's what she usually uses. Of course CC is also a problem - people dipping spoons into two dishes and introducing crumbs or sauces. So just ask what spices she used in a...
  24. Marz
    Glad to hear the temptation is gone I must admit there's a restaurant nearby that serves warm soft bread before the meal. I fill myself up with the smell of that divine bread, and then studiously ignore it If you ever need to go to the Olive Garden though, some advice that I'm sure will help : 1) Don't go hungry! Eat a fruit or something before...
  25. Marz

    ARCHIVED Gluten Ataxia

    Marz posted a topic in Coping with Celiac Disease

    So I stumbled on a website talking about ataxia, and the link to gluten-intolerance. The symptoms are listed as : * Poor coordination in physical movements and poor control of muscle movement * Inability to control the speed or the power of a physical movement * Headaches * Inability to speak or form words correctly; speech impediments...
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