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scarlett77

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Everything posted by scarlett77

  1. scarlett77
    Unless the test came back positive I would be inclined to question a negative test. I can't say that eating gluten on the weekends would be enough or not enough. Maybe you should look into genetic testing first? At least you would see if the gene is there. From the reactions you have described, I wouldn't even bother getting tested unless you need to...
  2. scarlett77
    The only fast food we do is In & Out. We don't have a Chik-a Filet (sp?) here and most of the other places around here either don't have dedicated fryers or nothing my toddler will eat is gluten-free. But we are lucky enough that our mall has a PF Chang's (with an awesome gluten-free menu and service) and BJ's which offers gluten-free pizza. Usually when...
  3. scarlett77
    Also check personal care items like lotions, shampoos, even your makeup.
  4. scarlett77
    I try to buy milk, eggs, cheese, bacon, corn tortillas, and meat in bulk at Coscto. One of my family's favorite meals is a simple egg scramble with bacon, cheese, and potatoes. We do mexican a lot too: ground beef or chicken tacos with rice and beans. Amazon. com is not always cheaper shop local to compare whether or not they have a good deal. I do buy Chebe...
  5. scarlett77
    I'd say it is somewhere around $600-$700 a month for 5 of us. The gluten-free replacement do hurt a bit. Plus the fact that we go through 2 gallons of milk a week don't help either. We use a lot of eggs and bacon too. We hardly ever eat out and I pack my lunches for work.
  6. scarlett77
    Try Rudi's or Udi's. Even a little gluten will cause damage. You may not have a big reaction now, but it may cause issues later on. I'm not going to lie and say that gluten free is easy, but IMHO it is necessary.
  7. scarlett77
    Look at wine shops or places where good cheeses are sold and talk to someone knowledgeable. They may be able to help you find a cheese that you can eat. And Raven is right. I admire your devotion to your wife and the fact that you would suffer for her, but you may ultimately be doing her an injustice by not being so strict. Try going to the manager or...
  8. scarlett77
    You mentioned that you did okay on goat's milk...have you ever tried cheese made from goat's milk? It is quite good. Also, Betty Crocker cake mix is dairy free from what I can tell. See if you can find some Chebe mix (USE THE ALL PURPOSE NOT THE ORIGINAL). Use the Chebe mix with your "milk" replacement and omit the cheese (which is optional anyway). You can...
  9. scarlett77
    You are awesome! Thank you.
  10. scarlett77
    There was a thread about the concern over the safety of M&M's and possible CC issues a couple of months ago because of the introduction of pretzel M&M's. I can't remember where is was exactly, but I think it was over in the ingredients forum. Some one called and checked and said that the pretzel M&M's were made on overflow lines and that special...
  11. scarlett77
    Well both kids saw the GI on Friday. She says that Ryan's height is fine, but his weight is a little low (still on the charts though). We are going to check his thyroid and iron, but she doesn't think that anything is wrong with either of these. She wants us to work with a dietician and it sounds like she want me to put him on gluten eventually and test him...
  12. scarlett77
    It SHOULD be corn based if it is in the US, however, to be 100% sure you should always check with the manufacturer. Personally, if it is a main stream widely known US brand I tend to trust it. If it is some unknown small or local brand then I will call and check.
  13. scarlett77
    I use Neutrogena Moisture Shine Lip Soothers and Aquaphor. I don't know exactly what to look for as far as soy goes, but I know they are both gluten free. I don't see any soy listed, so you may want to check it out.
  14. scarlett77
    I am going to assume you mean "Bay Area" in California. Although not sure which part you may be in. I'm in San Jose area. My son is the only one so far who is confirmed Celiac (so far) and he was diagnosed by a Pediatric GI. That doesn't really help you, I know, but do you have a regular doctor you could get a referral from? I'm actually taking both my boys...
  15. scarlett77
    I'm not sure that the genetic test will give you definitive answers, but it doesn't hurt to do it. If you want more concrete diagnosis, the most accurate testing is done while on gluten. It is up to you whether or not you want to try a gluten challenge to go down that road. Follow your mommy instinct. My oldest son was the same age when he was FTT and...
  16. scarlett77
    Thank you for the information. I guess I just assumed that since people generally say it could take up to 6 months to heal that 1 month would still show damage. Really my main question was about why an endoscopy wasn't done as soon as the blood tests were done. But now that I think about it, maybe OP went ahead and put themselves on a gluten-free diet before...
  17. scarlett77
    To add to my last post the 504 plan is actually part of the Rehabilitation Act of 1973 and the below fact sheet is really what you need. The ADA helps to define what is a "major life activity" is so it really doesn't do much to help you. As PP's said creating a 504 plan in relation to the RA is really what you need to focus on. Open Original Shared Link...
  18. scarlett77
    The ADA doesn't have the exact words "Celiac Disease" nor does it list out ANY specific debilitating diseases, disorders, etc that qualify as disabilities. HOWEVER the following is a link directly to the ADA and I interpret it to include Celiac because of this statement: " ( Major bodily functions For purposes of paragraph (1), a major life activity...
  19. scarlett77
    What I don't understand is if the blood tests showed Celiac, why was an endoscopy not done at that time? I wonder if your damage is really healed enough to the point that an endoscopy wouldn't show damage? Does anyone know? I would think even after a month of gluten-free there would still be damage left or at least an indication that there was previous damage...
  20. scarlett77
    I would definitely toss the pizza stone, there is just no way to thoroughly clean those things. The cookie sheets may be OK if they are in pretty good shape and no scratches. But cookie sheets are relatively inexpensive to replace so it may be worth your while to replace. Definitely replace any teflon pans and wooden cutting boards/utensils. Welcome and I...
  21. scarlett77
    We have also not had any issues with Fruity Pebbles. My general rule is made in the same facility is OK, made on the same equipment is NOT OK.
  22. scarlett77
    I second Corn Thins...love them!
  23. scarlett77
    Tinkiyada is popular and you can buy online for bulk. It is rice and generally good...just make sure to salt the water properly and I too find that rinsing is key. Also be sure to check for doneness on this one...there seems to be a very slim line between undercooked and over cooked with rice pasta. I like the Ancient Harvest which is corn/quinoa and is a...
  24. scarlett77
    For me I have found: Pamela's Bread mix is about $26.54 for 6 packages which comes out to $4.42 per package (or per loaf). Udi's bread can range from $3.39 to $5.99 depending on where and any sales going on. If you buy in bulk from Whole Foods they usually give you a discount and the average price you pay is about $4.04 per loaf. Now I like fresh made...
  25. scarlett77
    They are a staple in my household.
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