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IrishHeart

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by IrishHeart

  1. IrishHeart
    Sounds as if you have found the right approach for you!! Many people benefit from this "paleo" diet at the beginning(I did--but I kept wild rice in, I have to confess) and then, if they wish, they add in rice or other grains. I use a variety of alternative grains now and seem to tolerate them all pretty well. Still have a problem with beans/some legumes...
  2. IrishHeart
    I hear you, dear Raven ...I can adjust to almost anything, but I am mourning phyllo pastry...my half -Armenian heritage loves baklava....sigh I have not found any pro baker who can make gluten-free phyllo yet....
  3. IrishHeart
    See, now....this is something new I have learned just recently---about the Bob's Red Mill products and the oats issue...I keep learning all the time! Everyone's body is different and learning what works for you takes time and patience.
  4. IrishHeart
    Well, you probably know by now that an allergy is different from an intolerance, yes?? I am not sure what she means here ...are you having anaphylactic reactions to rice? Usually rice is hypo-allergenic, yet some people seem to do better without it. What kind of symptoms are you still having???
  5. IrishHeart
    I just reread this part to see if I can help...oh hon, you are going through many changes in your diet and I suspect that is what's making you feel out of sorts. Give it some time. I know that is not what you want to hear, but really, this healing thing takes time and adding in and taking out foods as you are--is making it very difficult to pinpoint what...
  6. IrishHeart
    Could be---I recall reading that some celiacs have trouble with gluten-free oats at the beginning of healing. Or it could just be that --as you say--you haven't been gluten-free terribly long and your GI tract is still healing. It is very difficult to tell at first what other foods cause problems. In any case, I hope you find the culprit! It's a lot of detective...
  7. IrishHeart
    ahh......NO. That is totally incorrect. I believe Dr. Ford contends that gluten damages the gut, brain and nerves. (which it does) https://www.celiac.com/authors/43/Dr.-Rodney-Ford-M.D.
  8. IrishHeart
    When I last read, Lundberg and Bob's Red Mill gluten-free products are made in dedicated gluten-free facilities, according to their websites and company statements-- so I am not sure why that would be an issue.
  9. IrishHeart
    Sorry, kiddo. A gluten free diet is the only known, proven treatment to control/stop the disease process. If someone came up with a legitimate, real "cure"---it would be front page news. You may wish to read up on Celiac Disease so you completely understand the autoimmune reaction--- and why "mind control" and other fake cures will never work...
  10. IrishHeart
    When your GI tract is inflamed and eroded from celiac, raw veggies and some fruits may be very difficult to digest. Beans are worse. And yes, sadly, the dairy. Some people (like me) have an issue with soy as well. The small intestine is where the lactase, sucrase and maltase are produced--these enzymes are the ones needed to digest these foods. As the...
  11. IrishHeart
    Yes, it is difficult to be patient (I sooooo "get that" ), however, the reality is that depending on how long you have been ill, the longer it takes for those villi to heal and for the malabsorption to stop and for your body to "right itself'. Be patient with yourself, stick to the diet, stay hydrated, take your vitamins, get a lot of rest and if you...
  12. IrishHeart
    Sure sounds as if you are doing everything "right" It is indeed an up- and -down road. Like you, I posted this same question about 3 months into healing and was reassured by the gang on here that healing is not a straight path and that some days are better than others and that it takes time. You are healing a large area of the small intestine and your...
  13. IrishHeart
    I agree with you...I miss dairy more than I miss gluten. I use So Delicious Coconut Milk---very tasty!!
  14. IrishHeart
    I am happy to report that I have no reaction whatsoever ... and I am VERY sensitive to gluten and react rather quickly with several nasty reactions.
  15. IrishHeart
    I wrote a response but saw GFMANNA posted simultaneously....and I did not know this topic was already covered...For what it is worth, here is my reply. You may be suffering from B-12 anemia, often typical in vegans and in people who have trouble getting enough protein and fat. What is the reason why you cannot have "the main allergens"--are you allergic...
  16. IrishHeart
    Your doctor is confused. There is no such thing as a "gluten allergy", but you can have an allergy to foods that contain gluten : wheat, rye, barley. And an allergist will not diagnose a gluten intolerance. People use this phrase "gluten allergy", but it is really incorrect. There are many differences between food allergies and intolerances and celiac...
  17. IrishHeart
    Don't feel like an idiot, hon! You did the most human thing there is. You tested it to see what would happen. Not only did you test gluten, but you went for dairy, too--wow, you are a daredevil Maybe (subconsciously) you just needed to convince yourself that gluten is really that toxic to you and so, whatever teensy bit of "denial" was left just...
  18. IrishHeart
    I have to add, I use the SBR BBQ sauce about twice a week and I am very sensitive--and have not noticed any reaction. I have to echo the others on here who report the high fructose reaction, though. I do not eat many things "packaged" but I indulge sometimes and if I overdo it (say, some ketchup and the BBQ sauce and fruit, for example---all in one...
  19. IrishHeart
    I had serious itching issues --drove me mad --and RED & burning skin (like a sunburn --my skin felt like it was on fire!) and red "wet" sores on my scalp before I was Dxed. I even had a red, raised "butterfly" rash on my face--which was suspected as lupus, but it was not, thank God. My itching/sores are NOT DH, I am sure --and it all resolved about ...
  20. IrishHeart
  21. IrishHeart
    Thank you, "shroom"...I wanted the MOM who posted the questions to know that she is right to pursue all avenues to help her wee one to recover. And if taking out gluten is the answer, despite what testing reveals, then that's all that matters. People thrive quite well without gluten in their diets...and for those alarmists who say that taking it out...
  22. IrishHeart
    Thanks for your thoughts and your REAL life EXPERIENCES. I appreciate it. My own long battle to be diagnosed has taught me a great deal about "margins for error" and the medical community is woefully ignorant about celiac disease in general. (And I should add gluten intolerances and sensitivities because these conditions are very real health threats...
  23. IrishHeart
    Josh, I am sorry if you think I have "attacked you"--because that was not my intention-- and I do not believe my words are an attack of any kind. I have participated on this board for many months and no one would ever characterize me as being one to "attack someone's character" . I would never do such a thing. I tried to offer information ABOUT...
  24. IrishHeart
    You bet, hon!
  25. IrishHeart
    Raven, my first forum friend... A good buddy of mine sent this to me when I lost my beloved lab, Gracie...and I am thinking you will appreciate the sentiment! So glad you are feeling better and that your new little love is settling in! " It came to me that every time I lose a dog they take a piece of my heart with them. And every new dog who...
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