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kmag

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by kmag

  1. kmag
    I just saw a dermatologist at Women's College Hospital in Toronto three weeks ago and was assured that the antibodies would still be in my skin after three years gluten free. I had the biopsy done for DH and will get the results on Feb 27. She was absolutely certain that they stay in your skin for a very long time. I also read a research article recently...
  2. kmag
    Hi Abby, I've had a rash for about 3.5 years now and have been gluten free for 2.5, low iodine for a little over one year. My skin seems very sensitive to the amount of iodine I eat, and I have occasionally gotten to a really great point of healing and clearing before managing to muck it all up by going on holiday or something. Of course, then it's...
  3. kmag
    Squirmingitch is totally on the money here. If I were you, I'd give up the gluten this minute and never look back. Forget about a diagnosis and just run from the gluten. RUN, my friend! My sister just told me that she's starting to get a rash on her behind and with our family history of celiac and DH I was kind of surprised she hadn't already quit eating...
  4. kmag
    The dark urine is kind of scary. I would definitely have stopped taking it at that point. I've tried twice to take Dapsone at 50mg dose and just couldn't keep at it for more that 10 days because I felt like such crap. It was slightly better the second time, but it really boiled down to not being able to tolerate exercise (which is a big part of my life...
  5. kmag
    It looks quite mild, but it certainly could be DH. I get blisters and red spots on my fingers all the time. The blisters are sometimes very small, just pore sized. Stingy, burny, itchy and blisters sounds a whole lot like DH to me.
  6. kmag
    Yes, I definitely get a pronounced reaction to sun exposure. Before I ever even had DH, I would get a rash from the sun that was nearly identical to my DH rash. I always thought it was some sort of allergy, and I'm still not sure if it even ties into DH in any way. It's just interesting. I've been tested for Lupus and I don't have it.
  7. kmag
    I ate at one in Hull, QC, and the gluten-free menu did not include the BBQ sauce.
  8. kmag
    If I keep my diet simple and lower iodine then my skin is better. I used to have that red rash you have, but that's gone now and what's left is more like purigo nodularis, but not exactly. The bumps I have will flare and blister if I get cc'd or have too much iodine. I am still terribly itchy in general, but I do believe that I'm slowly healing as it's...
  9. kmag
    Gotta say it doesn't sound like shingles to me either. The hallmark of shingles is severe pain before the appearance of blisters, of which you have neither. Looks a lot like hives, but I couldn't say if it's from gluten or not. You are obviously reacting to something.
  10. kmag
    Looks like DH to me. My rash used to look just like this before being gluten free for some time. My guess is that between the wheat noodles and the massive salt hit from the ramen flavouring is what caused this particular outbreak. I'm also very itchy even where there's no rash. Drives me crazy to say the least.
  11. kmag
    Could it be from scratching? I've noticed several times that I've left fingerprint sized bruises on my legs from using so much pressure when scratching. Just a thought.
  12. kmag
    That looks like what I had before I gave up gluten. I never had it as wide spread as you and honestly, I'd forgotten how red it was. Like many people here, I've never had a positive result for gluten testing, but it absolutely is DH. Be prepared that you may never get an absolute answer. It wasn't until I went gluten-free that I ever got actual blisters...
  13. kmag
    It's been 1.5 years gluten free for me and still the DH persists. Just recently, it seems to be really calming down and I'm hoping that once I hit that two year mark it'll all be like a bad dream. As the above posters said, scratching does cause it to be so much more itchy. Keep nails very short and possibly wear cotton gloves at home? I did low iodine...
  14. kmag
    Completely crazy-making, thinking about all this. I'm really bummed out that after 4-5 years gluten-free, you still have the rash. It's only 10 months gluten-free for me and I'm not seeing much change at all. In fact, it's spreading to new places. I tried dapsone last spring and only lasted about a week before the side effects made me stop taking it...
  15. kmag
    My Bulk Barn has all the flours in the same section with the gluten-free ones marked as such. I once bought the gluten-free cornbread mix from the bulk bin and it did upset my belly, but to be fair, lots of gluten-free grains/breads don't agree with me. My mom was told to stay away from the bulk bins as cc was an issue. I'd give the flour away or just...
  16. kmag

    ARCHIVED Dh Biopsy?

    kmag replied to Metoo's topic in Dermatitis Herpetiformis

    Your derm will do the biopsy in the office, but the samples get sent to a lab. I had one done in May and it took a few weeks for the result. I'm going to repeat the whole process again with a new derm in June and have considered eating some gluten to get some "fresh" samples. The biopsy itself is no big deal. He/she will freeze the sample areas so that...
  17. kmag
    Mine starts ramping up late afternoon, usually around 5pm. Earlier if I worked that day. Night is always the very worst.
  18. kmag
    Never been a problem for me.
  19. kmag

    ARCHIVED Marathon Training

    kmag replied to Zach-Zapster's topic in Sports and Fitness

    They're energy gels, basically sugar, sodium, and potassium. The come in little packets for easy transport and are somewhere around 100 calories depending on the brand. Like this: Open Original Shared Link I usually get them at Running Room.
  20. kmag
    The only reaction I was ever sure about was the the lunch I had this summer at a Thai restaurant. By the time I walked home my arm was on fire and blisters started to form, so maybe only about one hour. My household is not gluten free, so I suspect I am frequently getting cc. This make it nearly impossible to gauge any true reaction between what I think...
  21. kmag

    ARCHIVED Dapsone

    kmag replied to Di2011's topic in Dermatitis Herpetiformis

    I tried dapsone 50mg daily this spring and it did nothing for my itch. I probably needed a higher dose, but the side effects at that dose were enough to make me stop taking it after one week. Gluten free nine months now and still itchy with the occasional blister. I, too, am so bloody tired of the itching and the scratching and the itching and the...
  22. kmag

    ARCHIVED Marathon Training

    kmag replied to Zach-Zapster's topic in Sports and Fitness

    Hi Zach, I ran my first marathon in May and am currently training for another next May. Training long distances will just plain make you tired (and I little bit sick of running at times). I use gels during long runs, since they are easy to carry and don't take up much room. My diet in general is low on starches, high on fruits, vegetables and meat ...
  23. kmag
    New Grist is really good, it's the one I always buy. Nicklebrook's Gluten-free tastes a lot like real beer and I'd buy that one more often except that I don't care for the tallboy can and the fact that you have to buy them individually.
  24. kmag
    I also experience joint pain after getting glutened. It always affects the knuckles in my left hand the worst and lasts about 10 days. It makes working really unpleasant since I'm a massage therapist. I haven't dared eat out since the last time a few months back, it's just way too iffy.
  25. kmag
    We buy PC products regularly and have never had a problem with labeling. I trust them.
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