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Ollie's Mom

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Everything posted by Ollie's Mom

  1. I would suggest looking into vitamin k2 (not vitamin k1). There's a book called "vitamin k2 and the calcium paradox" which explains the relationship between calcium, vitamin k2, vitamin d, and vitamin a when it comes to bone formation and maintenance. There have been clinical studies done in japan using vitamin k2 to treat osteoporosis. Calcium alone isn...
  2. I used to have dry, cracked peeling lips constantly. I tried all kinds of moisturizers but nothing ever helped. And I always had huge chunks of skin peeling off my lips. In my case, the cause was simple although overlooked by everyone for years: mouth breathing. I habitually breathes through mouth rather than my nose, which dried out my lips. The dry...
  3. You got a lot of good advice, so I won't repeat any of it. One question, though. Do you have a lot of fat in your diet? I'm like you, and stay think pretty much no matter what. I'm also dairy free. When I'm breastfeeding, especially those first few months, I crave fatty things and I figured it was to supply fat to my milk. I would literally eat spoonfuls...
  4. Wow. I made it to the second page and read the ones about the stillborn and the miscarriage. And I had to stop. Terrible. It makes me sad.
  5. My cousin's son was diagnosed at 9 months. He was in rough shape at the time... Fast forward 4 years, and the doc tells his parents that he's all healed, and can get off this ridiculously restrictive gluten-free diet since he has now healed and, thus, grown out of it. Argh... So he's eating gluten again!! His mom should know better. Her grandfather...
  6. Agreed. There is no logic to that. Ttg IgA and aga IgA tests aren't specialized, but total IgA is? That's a BS line if I've ever heard one. Just how is one supposed to get referred to a GI if they have negative IgA results because they're IgA deficient but no one knows it? I'd push for the total IgA test.
  7. I think you should ask yourself this, and answer honestly: if you did not have a celiac diagnosis, would you go to the rehearsal dinner? (another approach to this question is: if the restaurant they chose was gluten-free friendly, would you go to the rehearsal dinner?) If the answer is yes, then you should go. Bring your own food, or eat before. The...
  8. Does he have an official diagnosis of DH? If so, then that means he also has a diagnosis of celiac. Is there something else that the doctor is looking for?
  9. I used to have what I called my days from hell where I'd have a terrible migraine, and I'd vomit almost continually all day long. It was not food poisoning, but it was always coupled with a migraine and a weird kind if diarrhea. The first few times I had that reaction, it was after I had had a beer or two the night before. Then it started happening more frequently...
  10. I thought there was a study done where they screened blood samples from army recruits from the 1950's (preserved samples) and recruits from modern times. There was a statistically significant difference in the percentage of positive antibody results, something like the percentage of positive results today being twice that from 50 years ago. This implies that...
  11. My understanding is that a diagnosis of DH is also a diagnosis of celiac. The dermatologist should be able to provide an official diagnosis. Or your son's ped. DH is the skin manifestation of celiac.
  12. Personally, I think most of the world's population has issues with dairy products (ie - breastmilk of cows that is not designed to be eaten by anything other than calves). I have read that mammals of all species tend to stop making lactase (or, at least, adequate amounts of it to digest milk) during childhood as adult mammals do not require breastmilk beyond...
  13. If you have your doctor's email address, just send him the link to this thread. ;-) Good luck on your quest for a formal diagnosis. And sadly, yes, many of us have had doctors that bad (and, in some cases, worse).
  14. There was an episode of a show called "mystery diagnosis" where a little boy had weider "seizures". No one knew what caused it. Til finally he was diagnosed celiac (the neuro stuff was partly due to malabsorption). I'm on my phone, so I can't post a link. But I'm pretty sure I found it on YouTube by searching for "mystery diagnosis celiac". The show even...
  15. I've been gluten-free for 4 years. And just the last few months, I glutened myself with soy sauce. Three times. Yep, three freakin' times, from the same bottle. I knew I had been glutened, but couldn't figure out what it was because everything in my house is gluten-free (or, so I thought). I was blaming it on the fish food (even though I carefully wash Mt...
  16. Can you provide a source for this?
  17. I do go to Price Chopper, Food Basics and (occasionally) No Frills. They definitely have dirty conveyors, and I'm always careful there. Loblaws, Sobeys and Longos are way cleaner. Metro is hit or miss. I've seen it spotless in them sometimes, and the worst offender at others. My in laws live in oakville (part of the greater Toronto area), and the Metro near...
  18. I live in Toronto. Happens ALL THE TIME. I personally can't believe some of you have never put your groceries on a conveyor on which a previous customer had recently placed a bag of flour. Those bags leak like mad, and leave dust everywhere. If it's never happened to you, you must have luck on your side.
  19. I'm with all the PPs. Get your daughter back on the gluten-free diet that you know she needs, and find a new doc ASAP. Just because this one says she doesn't have celiac doesn't mean it's true, and it doesn't negate her previous diagnosis. What brought you to see this new doc? New /different symptoms? Or you just wanted your celiac child to be...
  20. If I were you, I'd get the blood tests done for celiac disease. Others here can list the full celiac panel for you to take to your doctor. This would require you to be on a full-gluten filled diet in the weeks / months leading up to testing. Since your reactions from eating gluten are silent (for now?) you could do this with little discomfort (unlike many...
  21. I have often told the cashier to wipe down the conveyor before I put my stuff on it. Yep, I'm one of those annoying people... I see people roll their eyes at me all the time. But I don't care. I also bag all my produce, because I figure a bit of flour stuck to the outside of a bag isn't as bad as flour stuck in broccoli florets. And I refuse to walk...
  22. I just wanted to repost this. It looks as though this is an example like Peter was looking for. It isn't "hidden" in that they clearly state on their website that these flavors contain gluten, but you'd NEVER know if you only looked at the label. So, on the label, it is hidden. It may be rare, but it does happen.
  23. I should also add that it won't cause intestinal damage unless it is eaten, but if you use it it ends up all over your hands. I wouldn't put glutinous soy sauce or gravy all over my hands, so I stick to the same rules with cosmetics etc. If you're pursuing testing, it won't matter, but if you're trying to be strictly gluten-free in the future, I'd ditch...
  24. Oats are almost always contaminated with gluten (wheat). I get horrible reactions from Aveeno lotions. Of course, I stopped using it when I went gluten-free, but before that, I would get really bad rashes from the stuff.
  25. Aveeno has gluten in it. Just FYI. Good luck with the testing!
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