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Charli61

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DH Celiac and Vegetarian lives in Central British Columbia Canada.

  1. icon GFinDC reacted to a post in a topic: Fat digestion with celiac
  2. Charli61
    I wasn't celiac until after my gallbladder was removed, that was the stress that turned on my celiac gene
  3. Charli61
    I like Sabatasso from Costco
  4. Charli61
    Interesting article, hope to see more on it. My daughter suffers with Cystic Fibrosis and Celiac. She is on a CFTR modulator drug and so far it has not appeared to help her Celiac. I will be watching to see what the findings are of further studies.
  5. Charli61
    Wondering if anyone has had luck with anything other than Synthroid and related drugs for Hashimotos... I do not tolerate that family of drugs, they are talking about dessicated thyroid but my Dr. is dragging his heels and still trying to push Synthroid. Wanted to see if anyone else has a similar issue?
  6. Charli61
    I have had Raynauds for about 25 years, did not have Celiac until about 15 years ago... My Dr. at the time with the Raynauds had lovely advice for me.... "Stay warm" It still makes me smile. I live in Canada, and no, staying warm isn't really an option, and over the years the Raynauds has gotten worse, now it is most of my feet.. and my hands I try...
  7. Charli61
    I bought a bottle of Gliadin X a few months ago. I do not know that it is wonderful or is not wonderful, what I do know is that if I have to eat out, I take one. Even if I am assured that it is G.F. And, I have not been C.C.ed since doing that. I don't eat out a lot, but when I do... I protect myself. Maybe I would have been fine, but in my prior experience...
  8. Charli61
    I think 3 weeks is ample, especially if she is feeling so awful during the challenge. I am an adult and it darn near did me in doing a challenge, and mine was 3 weeks. I had been essentially off of it for several months, and then did the challenge and it was sufficient.
  9. Charli61
    Thank you, I wish I had asked BEFORE I spent $100 on the bottle. I just thought for the odd time I am out and the only choice is french fries and no dedicated fryer I would maybe cut down the risk of CC.
  10. Charli61
    Hi, I only got them for the odd time I want to eat out, maybe have french fries even without a dedicated fryer. I live in a small city in BC Canada and there aren't a lot of choices. I don't intend to take them and intentionally eat gluten. I am far too sensitive for that. I just thought that if I could take one or two and maybe just maybe not get CC...
  11. Charli61
    Hi all, I just ordered a bottle of GliadinX capsules, has anyone else tried them? I am both excited at the thought of being able to order French fries etc. without concern of CC and terrified to try!
  12. Charli61

    ARCHIVED New Dx of DH

    Charli61 replied to RNinGA's topic in Dermatitis Herpetiformis

    For me it took almost a year of being gluten-free to get it mostly cleared up also the arthritis took about the same time to go away, but I had been un-diagnosed for about 10 years - which may have made things a little more difficult to get rid of. Apparently I am an odd one, DH and the typical intestinal issues.... I had the whole works and how!! My understanding...
  13. Charli61
    Que Pasa are my go to tortilla chips, not only gluten-free but also non GMO, which is really important to me.
  14. Charli61
    I'm from Canada too, and they suggested the biopsy, but given the high numbers on the blood test they said it really wasn't necessary (also I have DH but that was never 'formally diagnosed' either, but it was seen and noted) The Dr. said the biopsy is the de facto test to confirm Celiac. So, I didn't have the biopsy. Question for you all..... Did your Dr...
  15. Charli61
    My daughter has not been officially diagnosed Celiac, but she will be, it is just a time thing. (I am and I know she is!) She also has come up with a severe systemic reaction to Sunflower anything... and there is sunflower oil/lecithin etc. in a lot of foods. Even in 'Vegetable oil' there is allowed to be (I think) 14% before they have label it as containing...
  16. Charli61
    I bought some of the ones labeled Gluten Free and have had NO problems at all. I only have a few left and since I have not found them in Canada I figure I will save these ones for treats! I have Celiac and am very sensitive. Hope this helps you.
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