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jeanzdyn

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by jeanzdyn

  1. jeanzdyn
    My gastroenterologist told me "we think that maybe you have celiac disease". How is that for a definitive answer! The only thing is that I was not surprised to hear this diagnosis. A couple of years prior to the colonscopy I tried avoiding bread and pasta on a 3-day rotational basis. That is to say that I did not eat any bread or pasta for 3 days in a...
  2. jeanzdyn
    Chex Cereal cinnamon flavor is a lot like Cinnamon Toast Crunch --one of my favorites for snacking out of the box. If you have not had Cinnamon Toast Crunch for a while you will probably just love the Chex cinnamon flavor. Chex makes 3 or 4 flavors of cereal that are gluten free.
  3. jeanzdyn
    of course people who have not suffered stomach cramps or chronic diarrhea would think that you are just on a 'fad diet' or something. tell them, in graphic details, about your symptoms! If you feel better gluten free that is all that really matters! I want to add that, although some gluten free items are expensive, you can find a lot of gluten free...
  4. jeanzdyn
    I sympathize with you!! I have gone gluten free, but if I have to give up cheese I swear I will starve to death. I cannot even imagine it. I have never been a milk drinker, never liked it much, but cheese is another story. ((hugs)) to you, and a lot of sympathy. you are asking for help in the right place though, I am sure that you will find...
  5. jeanzdyn

    Hi Laura,

    Downers Grove is about 50 miles from Rockford. I do get over that way in my work occasionally though. Jean

  6. jeanzdyn

    Hi Jean, I'm not sure if this is the correct way to reply (?)

    I live in Downers Grove. Is that near Rockford? I'm not sure. Laura

  7. jeanzdyn
    my gastroenterologist actually said to me, "we think that maybe you have celiac sprue". That was the diagnosis from my colonoscopy and endoscopy. I was not surprised to hear that, but I found it troubling that he said "we think" and "maybe". Anyway, like I say, I was not surprised. Also, being gluten free has relieved most of my symptoms. However,...
  8. jeanzdyn
    Too much of anything can be a bad idea... I seem to go on 'binges' too, where I eat a lot of one food type and later have bad symptoms. I have experienced severe itching, but no rash or any visible signs of the itch --except the scratch marks. The only doctor I ever talked to who even believed me was the gastro-enterologist who did my colonscopy. I...
  9. jeanzdyn
    (((HUGS))) for you aquaholical. I really feel bad for those with celiac disease who have other afflictions as well --makes it so much tougher. And I am greatful that I have not been terribly sick. I have had symptoms that can be attributed to celiac disease since about 1977. I did a lot of research on my own to find 'cures' for various ailments, or...
  10. jeanzdyn
    well,... for years many of us watched a television show about "nothing" --Seinfeld!! so, would people follow a blog about 'nothing'? I don't see why not. there are a lot of bloggers out there who just blog about whatever they are thinking about on a given day. I myself am considering doing that myself... so I would encourage you to be creative and write...
  11. jeanzdyn
    my mother used to give us peppermint tea to 'settle the stomach'. so, I believe that is an old 'folk remedy'. there is something to your experience, the peppermint oil did help you. I do not know more about it though.
  12. jeanzdyn
    I am too new at this to know if there is a connection to the Celiac disease or to gluten intolerance, but I have trouble with swollen ankles. Sometimes so swollen that it really alarms me. I have found that if I do hydrate better (drink more water) my ankles do not swell as much. I do have dental issues. A lot of decay and trouble with plaque. I think...
  13. jeanzdyn

    More info about me: although I now believe that I have been gluten intolerant since I was a teenager, I was not diagnosed until November of 2011. I have experienced many of the myriad of symptoms that can (possibly) be attributed to Celiac disease over the years. I was never gravely ill, never as ill as some of the folks at the celiac.com forum have described. I am thankful for that.

  14. jeanzdyn
    Some Tostito's are gluten free --I did not check packaging on all Tostito's, but the bite size 'rounds' and 'scoops' state gluten free on the package. I have had no adverse symptoms from eating them. Thank God for Hershey's!!
  15. jeanzdyn
    Right. Do not embellish or ask for anything. Just make sure to describe the events accurately and send it to the management of Seaworld. Maybe they will give you something to placate you. It is important that they understand exactly what the situation is, so that maybe they can take corrective action so that this kind of thing does not happen in the future...
  16. jeanzdyn
    I get that twichy feeling in my lower abdomen too. It 'flutters' for a few minutes and then stops. I have never looked in the mirror to see if it was visible, will try that next time.
  17. jeanzdyn
    oh, you are NOT a hypochondriac! I had symptoms for over 30 years before my celiac disease diagnosis. No one ever said 'hypochodriac', but I knew they were thinking it. You have a 'laundry list' of seemingly un-connected symptoms and that makes it tough to even get the doc to listen to you. My doctors put me off for years, saying "we all have problems...
  18. jeanzdyn
    I do have pain that I believe is my gall bladder. It is often below the rib cage and on my right side. My Mother had her gall bladder removed, and she talked about her symptoms --so I know from her the location and kind of pain. It helped me to read your descriptions of what the pain feels like too. I do not have the pain so often that I have pushed...
  19. jeanzdyn
    I do not mean to be 'preach-y' but this is an excellent lesson for all of us that celiac disease is an auto-immune disease. I am sorry that things are so difficult for you farmer jennings, I cannot imagine how tough it is for you. It is terrible to have to be isolated. Do you know anyone in your area with celiac disease --that you might be able to spend...
  20. jeanzdyn
    I agree with Gemini about it being a psychosomatic reaction. We become so attuned to staying away from gluten items that we get a little freaked out by knowing that there are gluten-ous items nearby. Also, the smell/scent could cause a reaction. It is like being a vegetarian --the smell of meat cooking can make them feel 'unwell'. There is a level of...
  21. jeanzdyn
    check at a Truck Stop for items that can be used to cook or heat food and for 12volt plug in coolers... or try a national truck stop chain website, like Flying J or Travel Centers of America. You can find info that way, or find an RV sales place, they sell such items also.
  22. jeanzdyn
    the best advice is to keep a food diary. that is the easiest way to figure out what foods may be causing your symptoms. note your symptoms in the food diary as well to help keep track of everything. I have used a food diary in the past to help figure out symptoms and reactions. Best thing I ever did for figuring out my symptoms.
  23. jeanzdyn
    Seaworld's issue is that people who do not know any better try to feed the animals there. Those creatures could become ill from eating the kinds of things some people want to give them. That is the reason for the policy. I think that they should provide a dining area with free lockers for people with food allergies to store their food, and then the entire...
  24. jeanzdyn
    tostitos corn chips are labeled 'gluten free'. I use them to supplement a meal where other people might eat bread. Like tostitos chips and cheese, and then whatever else I want that is gluten free. This is relatively low cost. I travel a lot, so I try to find things that are easy to bring with me. Baked beans, anything that is really portable, maybe...
  25. jeanzdyn
    I have experienced this for many years. I called it 'flashing lights' but I now understand it to be the aura. It has lasted anywhere from a few minutes to over an hour, but I rarely had what I would consider a migraine, unless the aura lasted for over an hour. I can make the aura go away, but it takes quiet and some concentration too. This occurred from...
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