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cavernio

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Everything posted by cavernio

  1. cavernio
    If I can't trust a product off the shelf even though it would appear gluten free, I would never expect someone else to cook for me gluten free without me telling them specifically what products I can eat. The chef could simply use a product that says gluten free but isn't free enough for your level of sensitivity, or that isn't labelled with 'may contain...
  2. cavernio
    Yes you have celiac disease. IgA's the most recent, most valid test for it. They measure other tests because not all celiacs will be positive for the same things, eg: you might always have a low IgA, some genetic thing, in which case even with celiac disease it would be below the cut-off. It's very confusing, but there's a ton of reading you can do , especially...
  3. cavernio
    Celiac disease is an autoimmune condition where gluten triggers your body to attack itself. One of the parts its known to attack is your nervous system. Most of your symtpoms, legs moving, speech slurring, are best explained by a neurological issue. While my neurological issues are far less severe and don't react nearly as quickly as yours are, your smelly...
  4. cavernio
    I got a biopsy because I wanted to be treated seriously as a patient by doctors. I asked the GI, who was saying I should get a biopsy, multple times about other reasons why my blood tests could have shown up positive, and he dodged the question every time.
  5. cavernio
    There is another poster here who was recently diagnosed with MS because she was having speech problems not long after going gluten-free. Fairly recent thread, can't remember the subforum tho. She was unconvinced of the diagnosis and thought B12 was to blame, and I found her an article pretty quickly in googlescholar searching for ms and b12 brain imaging...
  6. cavernio
    SIBO is supposed to be treated pretty effectively with a few weeks of specific antibiotics, so if you think you have that I'd strongly suggest you get tested for it. Something like SCD seems like you need to follow it for life in order to work. If you want to quickly heal yourself via dietary means, I'd tentatively suggest fasting, giving your digestive...
  7. cavernio
    Well, you definitely have the genes necessary for it, and you had celiac symptoms before you were gluten free (although we all know celiac symptoms could be any number of things), and being gluten free makes you feel better. If you had a really noticeable reaction from eating gluten, then that's either you reacting to gluten or a placebo. (If you were really...
  8. cavernio
    It is also possible your gluten reaction is more sensitive than you think. My neuro symptoms are the only ones I noticeably have when I eat gluten, and they've gotten better if I avoid anything that will likely have traces. This mainly includes flours which are labelled gluten-free but will probably have some miniscule amount in them. Studies that show that...
  9. cavernio
    So I'm *hoping* that my whenever-bleeding is a result of my hormones getting back on track...I missed about 2 periods a year and would get them every 40+ days before, albeit on a fairly regular schedule, before being gluten-free.. However, the past 3 months I've had spotting between periods, and now it seems the spotting is bleeding (no pun intended) into...
  10. cavernio
    I have little experience filling prescriptions, but the ones I did have filled it was 'they shouldn't have gluten, but there's no guarantee'. Any pharmacist worth their pay should call the drug company to verify if there's gluten...at the very least the company *should* know if gluten is going to be a purposeful ingredient. }:-(
  11. cavernio
    Gluten free vitamin supplements of course. If you're deficient in some vitamin or another, it will take a looong time for it to get back to normal. Firstly, until your intestines heal fully, you won't be absorbing food properly, and that can take years. Secondly, once you are absoring food normally, it might take a long time for you to get back on track,...
  12. cavernio
    When I first went gluten-free I went out to BP with friends, excited that I could eat pizza. Alas, my pizza ending up with a chunk of chicken covered in bbq sauce from another pizza. I was stupid and ate around it. (I actually liked the pizza, I think they used o'doughs crust?) If a restaurant can't handle super obvious cross contamination, then I wouldn...
  13. cavernio
    Most peanut butters have an oil added, sunflower, safflower, canola, vegetable, corn...you might have an issue with any of these oils or be reacting to CC from the oil. (I'm trying my best to have a CC free diet, and so I'm avoiding all oils that I suspect might have other grains in them, which leaves me with animal fats, olive oil and coconut oil.) Try a...
  14. cavernio
    I strongly suspect anything beyond intestinal issues would be an issue with something else in dairy, whey, a casein, etc, rather than a lactose intolerance. Lactose intolerance, as far as I know, is a well-defined issue with not being able to digest lactose. If you want to test what aspect of dairy, (if you still think it's dairy which it could very well...
  15. cavernio
    I definitely have celiac neuropathy. And it definitely gets worse the next day if I excersise. Can anyone explain why?
  16. cavernio
    When initially diagnosed, and prior to it, I was worried about possible kidney damage because of a near constant pain in my side and what fit the description of pain for a kidney stone within the previous year. I read quite a few things about kidney damage and then in relation to celiac disease. I never got quite a clear grasp of it, but I recall 2 issues...
  17. cavernio
    I am a100% dx celiac and I can say I didn't notice a gluten withdrawal. I wasn't eating only fresh food when I began though, I went out and bought all those gluten-free flours and pasta and a few baked things, so if I'm one of those who is very sensitive to gluten it probably would have been more of a tapering.
  18. cavernio
    " I soak them in water first so that they will absorb plain water and not the soap." Ahhhhhhhh
  19. cavernio
    Unfortunately I don't use powdered sugar anymore either, has cornstarch in it. I've tried regular sugar and even superfine sugar in a blender, but it's just not fine enough. I did make that bean cake and it's definitely a keeper, although it was far too moist...will use dried up cooked beans next time. Looked greasy, but it was just liquid.
  20. cavernio
    learning2cope, your doctor is an idiot. True, you might be railroading yourself into thinking you have a diagnosis you don't have, but that's hardly different than him railroading you into a diagnosis you don't have. Main difference in my mind is that you know your own symptoms better than your doctor ever will, while he knows more about the plethora of diseases...
  21. cavernio
    Villous atrophy can be caused by things besides celiac disease. I don't know what they are, but I remember my GI rattling off a list of half a dozen of them when I pressed him for sure if I had celiac disease. I think most of them were very rare and/or there are other indicators for them. If your doctor wants to see positive bloodwork, he might be trying...
  22. cavernio
    Doesn't the soap get into a bunch of the food then? Like you wouldn't put soap on your meat, it'd sink in. I've washed beans a couple times with soapy water and even then some of the beans shrivelled and kept the odor of the soap, like some soapy water soaked in. I guess I take the opinion that gluten's everywhere too, but I've always considered that...
  23. cavernio
    I can't stand them, they piss me off, and I don't know what to do about it besides not going to any box grocery stores. My last 2 visits to the grocery store I ended up putting my food onto a white powder dusted conveyor. I don't know what to do when I've already put half my cartful onto the conveyor, on the part that looks particulate free, and then...
  24. cavernio
    What you have is very common, I'm sure you can find hundreds of posts on the forum describing symptoms very similar to yours.
  25. cavernio
    Oooh, I forgot about beans! That bean recipe looks really good.... I'll see if I can find any white ones to soak. I'm still on the fence about canned beans, most brands I definitely wouldn't buy, but I might give eden organics a try. I'll use coconut but not coconut flour or dried packaged coconut, or possibly some other form that I think I might have...
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