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aikiducky

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Everything posted by aikiducky

  1. aikiducky

    ARCHIVED Caffeine

    aikiducky replied to beaks's topic in Coping with Celiac Disease

    Caffeine is very irritating to your intestines & stomach. So yes, you can get D from coffee alone, without it being a gluten problem. Better to eat something with your coffee, or leave it out completely for a while until your intestines are in better shape. Actually I think it's never a good idea to drink coffee on an empty stomach, even after you've...
  2. aikiducky
    Are you vegetarian? It sounds like you're not eating any meat? You need to have enough protein and fat in your diet, lack of those can also make it hard for your intestines to regulate themselves. I'd suggest some chicken, or salmon for example, those are usually pretty easy to digest. Some olive oil with your veggies. Maybe that would help? Pauliina
  3. aikiducky
    Also keep in mind that if you get "glutened" the reaction isn't necessarily over in one day. In the beginning I used to feel the effects of one glutening for about three weeks. Pauliina
  4. aikiducky
    Maybe I can give you all a bit of a hopeful long term perspective? I've been gluten free for almost 4 years now. The first TWO years were very much up and down, yes I absolutely did start to feel better but there were lots of days that I had stomach issues or gas or heartburn or I was moody or just plain fatigued. In between I felt better and better...
  5. aikiducky
    Remind us, what was the reason you went gluten free to start with? There must have been a reason? It's tough, but in the end a lot of people here on the board have just had to make peace with the fact hat family members don't want to get tested, because they don't want to know and change their life style. The genes- you only need the one. But about...
  6. aikiducky
    It's a bit of a risk... if you get the tests done now, and they turn out negative, as they probably will, that might give your son more reason NOT to get tested, right? Glad your sister is considering it at least. .) And glad you don't have gut problems any more. Pauliina
  7. aikiducky
    Wasn't there recently a thread by someone who had been gluten free for a couple years already and who still had an elevated ttg? It's a long shot though, I think usually you'd expect numbers to have dropped in two years. What I'm wondering is - do you mean you have lots of celiac symptoms now, despite being gluten free for two years? In that case...
  8. aikiducky
    Have you tried eliminating the possible sources of traces of gluten that were mentioned earlier in the thread? It might be a long shot, but those bouts of gas do sound like a possible glutening to me, and until you try, you won't know if for example your cat is the source. The thing with shampoos and lotions and so on, btw, isn't absorption through...
  9. aikiducky
    Then I don't know. That's a difficult decision to make. Are there long time side effects, I mean would it be possible to try the medication for a while to see how it works for you? Pauliina
  10. aikiducky
    Is it like you feel like you need to pee very often, even though when you do, your bladder might not have been all that full after all? I have that when I get glutened. And before I went gluten free I used to go to the bathroom much more often than I do nowadays. I used to think it was just normal for me. Anyway, maybe you mean something else. But...
  11. aikiducky
    It could absolutely have been the crumbs. Much less than that can give you a reaction! Otherwise we really wouldn't have to worry so much about cross contamination. Pauliina
  12. aikiducky
    First thing to try would be to contact the hotel where the meeting is. You might get lucky and they are able to cater for you. Pauliina
  13. aikiducky
    With positive lab results, does he only mean the blood work? Because if he does he's just not well informed. BTW you could request the lab report of the biopsy to see what exactly it says. If you feel better gluten free that is also a piece of information to add to the mix... Pauliina
  14. aikiducky
    A food thermos jar? Heat up a meal in the morning and it will keep warm until lunch for sure. I usually make a think stew/soup to take with me if I do this. I cook it the day before, heat a portion up in the morning in the microwave and put it in the thermos. A quick google found for example: Open Original Shared Link Not meaning to advertise anything...
  15. aikiducky
    It's good that your endoscopy is so soon because being gluten free for a long time before it could give you a false negative result on the biopsies. Healing can take a while, some people respond quickly to the diet but some take several months before they start feeling better. Pauliina
  16. aikiducky
    The blood work is only reliable if you have celiac damage in the intestines that has already progressed very far. Otherwise false negatives are fairly common. There are a lot of people here on the board with a positive biopsy and negative bloods, and in that case, you should always go with the biopsy. Especially since you already know that the diet works...
  17. aikiducky
    Maybe, if Adrian is like you, you don't need to think of things for him to do so hard. He might be really happy to spend most of his time with the computer, and maybe doing an outing once a week or so. More often than that might just be too much for him? You could try to send the rest of the family somewhere, and the two of you could have nice restful...
  18. aikiducky
    You already got excellent advice, and I just wanted to add one thing. Someone on another celiac board once said that it takes at least a year to get used to the social aspect of the diet... because you need to go through every holiday at least once before you realize what the effect of the diet is. You know, Thanksgiving dinners, birthday parties, Halloween...
  19. aikiducky
    If you go gluten free now, you risk a false negative on the biopsy, so if it's very important to you to get a clear diagnosis that a doctor can put his name under, don't go gluten free yet. What you could start with is to find out exactly how long it's going to be? And if it's possible to get a cancellation time or something? And then when you know that...
  20. aikiducky
    I think actually that this doctor sounded pretty reasonable. He wants to keep to the guidelines that he has for diagnosing celiac, but did acknowledge that the diet works for you, and that you very well may have the beginnings of celiac. That's much more than a lot of doctors are willing to say, sadly enough. It's just kind of a definition problem the doctor...
  21. aikiducky
    That's completely the wrong way around! Blood tests can have false negatives, but is she had totally flat villi then I don't know what else it could be but celiac. The blood test isn't usually used to confirm the biopsy, the biopsy is considered the more important one. Pauliina
  22. aikiducky
    Maltodextrin and modified food starch don't automatically contain gluten, they can be made of corn for example. Did you check this with the company? Pauliina
  23. aikiducky
    How much water do you drink in a day? Drinking too much water can actually also be harmful. The best thing to do is to only drink when you're genuinely thirsty, not to habitually sip water all the time. Celiac can be triggered at any time in your life, so you don't have to have had the symptoms all your life. What happens is you are born with the genetic...
  24. aikiducky
    What Ursa said - you're doing a good job with the diet! Congratulations! When you don't eat gluten any more, your immune system doesn't have to react to it all the time any more, and it stops producing the antibodies. That's a good thing! That's why sometimes the blood tests are used to monitor compliance with he diet, if the antibodies keep showing up...
  25. aikiducky
    It's maybe unusual but I think I know how it's possible. The symptoms when you are glutened don't actually come from the gluten, the symptoms are a sign of how your immune system reacts to gluten. See what I mean? Apparently you have an immune system that takes it's time to mount a response. I have something similar, though I get a reaction 6 hours...
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