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Celiac.com - Your Trusted Resource for Celiac Disease & Gluten-Free Living Since 1995
Everything posted by 1desperateladysaved
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ARCHIVED Did Your Teeth Get Any Better With Recovery?
1desperateladysaved replied to StephanCasey's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I am 2 years gluten free after 30+ years of symptoms. My teeth changed colors over the 30 years of time. I recall a dentist saying how colorful they were. He exclaimed about the unique variation in my teeth and didn't know what color to fill them with. I had many troubles with cavities even though my diet was whole and natural with few sweets. The hygienists... -
ARCHIVED Hi
1desperateladysaved replied to Zebra007's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
You have your answer than! The final gold standard test is to try the diet, and respond to it and you passed that test! I am glad to hear the GERD is clearing and hope it will continue. I can relate to declining the gluten challenge. Best wishes for health as you heal. Dee -
ARCHIVED Reactions From Breathing In Gluten?
1desperateladysaved replied to LEO27's topic in Gluten-Free Restaurants
Yes, this happens to me. I walk through grocery stores staying as far as possible from the bakery and bread aisles. I swell up if I walk too near a mini donut wagon. I got sick while sitting in a kitchen to have my daughter's hair done. Someone was cooking fish and I swelled up. You mentioned out that you have allergies. I just found out that for me it... -
ARCHIVED Posting Photos
1desperateladysaved replied to WinterSong's topic in Board/Forum Technical Help
Thanks. I found this after I finally somehow got it. The pictures are embarrassing large to a shy lady, but if it works now, I gotta bear with it. -
ARCHIVED Posting Photos
1desperateladysaved replied to WinterSong's topic in Board/Forum Technical Help
I guess I didn't do it right. Can anyone explain how to get from photo bucket to the post? Keep in mind I am not technical. It took me hours to get it to photobucket! IF it is stated above, I thought I followed it, but mine had trouble. -
ARCHIVED Posting Photos
1desperateladysaved replied to WinterSong's topic in Board/Forum Technical Help
I THINK that it is done! Dee -
ARCHIVED Risks Of Gluten Challenge?
1desperateladysaved replied to Noobette's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I would also consider if any genetic family members would be influenced by a definitive diagnosis. The disease being genetic, if one family member has it, another has greater chances of having it. Is there anyone not believing your diagnosis that may be swayed? I didn't do the challenge since I was fully convinced that gluten was a problem for me. ... -
ARCHIVED Posting Photos
1desperateladysaved replied to WinterSong's topic in Board/Forum Technical Help
I did read it, but I had never heard of photo bucket. Anyway, now I have, andI got it downloaded to photobucket, but so far no go on posting it! I will try again today. Thanks Peter. Probably I need to use something besides Google? -
ARCHIVED Posting Photos
1desperateladysaved replied to WinterSong's topic in Board/Forum Technical Help
I wanted to post Before and after pictures, perhaps to my blog or a post. But I do not understand these directions. Maybe my 10 year old can help me? Otherwise could someone put this into plain sense for me? computerHopeless! -
ARCHIVED Recovery Happens. Believe It!
1desperateladysaved replied to squirmingitch's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Oh, what good news! I step on the scale daily too and find a new low nearly every day. It is so strange when different things finally begin to happen. I remember those days in the beginning when I just wanted to measure my bloated waist and have it go down! I just wanted something to be visible that someone besides me could see. NOW these things are... -
ARCHIVED "breaking Up" With Non-Celiac Roommates
1desperateladysaved replied to jessiej's topic in Coping with Celiac Disease
I feel for you. Most of us had to change our living arrangements in some way. I think all you can do is say something like: That you don't want to be a burden to them, but you feel that for the sake of your health you need to have a gluten free kitchen. Tell them that you don't expect them to join in that, so you found your own little apartment. When... -
ARCHIVED Airborne Gluten...
1desperateladysaved replied to PlayOutside's topic in Super Sensitive People
I complained about airborne gluten from the beginning. I just discovered that I am dealing with more than celiac. I have some super-sensitive allergies and I would guess that gluten grains are among them. The body is so complicated that it sure is hard sometimes to figure out what sort of response is going on. Best wishes to all of you in discovery and... -
ARCHIVED Feeling Very Old, Although I'am Only 19.
1desperateladysaved replied to deppresed's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Here is the list of full panel celiac tests as given by Mushroom in an older thread. OOPS I can't insert it, but all I did was type to search (in google) Celiac full Panel and I got the thread. There are around 5 tests included. If you don't have the total IgA test you can't know if you are deficient in IgA. If you are deficient those tests won't be accurate... -
ARCHIVED Is Blood In Stool "normal"?
1desperateladysaved replied to hazelnutty42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Blood was found in my stool. They did a colonoscopy and everything "looked good." After that there was no more doctor interest in it. I think they likely think it is due to my allergies. -
ARCHIVED Did You Diagnose Yourself?
1desperateladysaved replied to Rita L's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I thought of it first. But since I had 5 children and claimed to be VERY tired sometimes, I didn't give the doctor a lot to go on. My chiropractor said gluten when I told her every tissue in my body felt irritated, but didn't elaborate. I went home and looked up gluten and thought it would explain my fatigue, infertility, and brain fog. I cut gluten and... -
ARCHIVED How To Convince My Mom I Need To Be Strictly Gluten Free
1desperateladysaved replied to ceceliac's topic in Coping with Celiac Disease
I believe you, I do. I hope this helps. Nobody knows their own reactions like themselves, I say! Hopefully, Mom will come around as she sees you improve. Keep trying on getting the job, you know, stores and package carriers will be needing more help soon at least for a while. IF you are a good worker they can give you a good reference or keep you on...- 10 replies
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ARCHIVED New, Tired Of Feeling Sick, And Desperate For Advice! (Long)
1desperateladysaved replied to jyogalove's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
JYoga love: What a hard story! I know a similar story to your story, so I really feel for you. Now, I think you are setting out in the right direction and I am excited to hear what happens next! We usually hear that GI doctors recommend a gluten challenge (eating gluten before the biopsy) weeks long rather than days. Otherwise you could false negative... -
ARCHIVED Feeling Very Old, Although I'am Only 19.
1desperateladysaved replied to deppresed's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Did they run a full panel, and do you know that the tests can false negative? Some people with celiac have IgA deficiency which would mean the tests could be false negative. Are you having a biopsy? When all the tests are in, the final test would be to try gluten free for longer and see if it makes a difference. Dee -
ARCHIVED Feeling Very Old, Although I'am Only 19.
1desperateladysaved replied to deppresed's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I think you might be on the right track. Make sure to get all of the tests for celiac you can while you are eating it. The couple weeks you went gluten free may have not yet been enough to realize a difference. As soon as you get your tests done, you can go gluten free again and give it some more time. I wish you well in healing. Dee -
ARCHIVED Dh Sometimes Look Like Poison Ivy?
1desperateladysaved replied to Rita L's topic in Dermatitis Herpetiformis
I just experienced a rash that seemed very much to me like poison ivy. There were a few oddities, it was on my thighs which I cover with two layers of clothing and it did not have the yellowish oozing which one finds with poison ivy. Plus it went away and then returned in the same spots. My functional medicine nurse now believes this rash is an allergic...