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1desperateladysaved

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by 1desperateladysaved

  1. When I have had urine tests, I have had a trace of blood in my urine. I think as far back as high school, and perhaps before. That would be more than 30 years. The MD would always figure it was a trace and not getting worse. It might have to do with my period which was coming or going in a week or so. My anemia was thought perhaps a result of this...
  2. If it is opinion you want, I being Celiac my self and having experienced some of those sympotmes. I think you have a gluten problem. I think you should completely avoid gluten. I want for you to find out (from the forum perhaps) how to follow the diet completely. You should be desperate enough to do whatever you have too. Sorry, that you are traveling...
  3. I only "Cook from scratch". I always thought that Salt, and other simple items would only have what is in the bold print. Hopefully, I woke up to this now. Karen, I will have a look, or print of the lists of watch out fors. DIana
  4. Corn is a not for me (and many) too. I will check up on natural flavoring, because I was told it has gluten. Oh, I guess that is the difference. For me I am not to have any grain. I know corn has gluten, because we have used corn gluten to keep the weeds down in the garden. Bartful, please explain "Carried on Corn." Please also explain. that Stevia...
  5. I have been using flavored liquid stevia on occassion. I was having company and thought perhaps that I would use up some I don't eat anymore that has vanilla. I poured in the 1/2 tsp. Just after I did so I realized that in the 4 or so months since going gluten free I had never read the label. But it was after all just stevia, but stevia is a leaf and...
  6. I think you are on the right track and would encourage you to keep going. I think a gluten free diet can help you. Learn all that you can and read every label. I hope soon you will be writing to say that your health is improving. Diana
  7. I am planning my family brings my food if I ever need to stay in the hospital. I might be so bold as to bring my electric skillet or crock pot. Because what else can a person do. You need good nourishing food when you are recovering. Diana
  8. I felt nauseated, weak, and fatigued after just catching a whiff of vinegar. I am not certain what kind it was. I also swelled, I noticed the swelling in my abdomen and thighs. I didn't know to check my face at the time. It took a few days for my reaction to be done. Vinegar is fermented, if I am correct. I react to fermentation. That might be a possibility...
  9. This verse has carried my through some of the last few months since I found out I have celiac. I hope that it will help you. "And even to your old age I am He, and even to gray hairs will I carry you. I have made, and I will bear; even I will carry, and will deliver you." Is. 46:4 You have been sick a couple of years longer than I, however, I was...
  10. Sorry, I guess you are taking the supplements of things you were deficient in?. I hope your good days are still ahead and not too far away. Sometimes recovery is like a rollar coaster and you seem to be at a low spot. Hang on for the ride. Things to look for: allergies or food intolerances cross contamination (My cookbooks were dusty with flour...
  11. My family didn't like the idea of yet another diet change! They didn't see how fatigued or foggy I felt. I must admit the whole thing seems a bit unbelievable. After hearing 30 years of my complaints my husband turned a deaf ear to my supposed health problems. Here I was trying to follow a 100% gluten diet without support. I heard it might get...
  12. I hope it is just getting worse before it gets better. When one uses natural means to get better, this is often the case. Any reaction is a good reaction in my life. I hope the acne will go away for you. Maybe someone will suggest how to cope in the meanwhile.
  13. One thing I feel about natural remedies like diet: If there is any reaction at all it is good. If you feel good or bad something is happening. I had about a week of bliss before falling into withdrawl or foggy dizziness of dispair. I don't know if it was withdrawl or contact with gluten and other problem foods. I was doing something right before...
  14. I think it might be because of the fermentation. Mold is used to produce cheese. I know some others mentioned strong reactions to fungi. I haven't had cheese for 15 years, because I looked 9 months pregnant 15 minutes after eating it.
  15. The body goes through alot. Sorry, I haven't been very nice to live with either. I hope she and you will feel better soon. Diana
  16. Extreme thirst is a symptom which I have had. I think it is related to Celiac. I now think that I am dehydrating during attacks. Symptoms have included bright yellow to nearly orange urine, and dry mouth. I also don't sweat or have tears at the worst of these times. I was recently cautioned by my doctors to stay out of the hot sun. I was swollen...
  17. I could go for an owner's manual about now. I inquired recently to my nutritional superivisors about enzymes. They thought I either had too short of transit time, or was low in hydrochloric acid in the stomach. Transit time was 36 hours. I don't know how I would test the stomach acid.
  18. Oh, I was stupid enough to have reacted to these hotdogs atleast 2 times. I forgot, until I reacted again to stay away. I feel so sad, maybe you misunderstood? I wrote the company encouraging and inquiring, not accusing and ordering. I am hoping they verify attention to everything necessary to serve celiacs. They must be trying or they wouldn...
  19. It happened to me the other day. I ate hotdogs with no gluten in their label, but my body said there is a problem. I know there is a chance that it was something other than the hotdog, but nothing else seemed likely. There is no reason for a hotdog to have gluten, but this one clearly said "gluten free." . I sat down at my computer to e-mail the hotdog...
  20. I am too early in the process to have any other diagnosis either. I am not sure why nobody responded. I think it is an excellent question and I hope you will get answers. Diana
  21. Five years ago I was really rough. High blood pressure Blood pressure would plummet when I stood up. Irritable and hopeless. Weight 30 lbs of water. Extreme constant fatigue/mind fogginess Mysterious bloating. Unexplained swelling, I was told was my imagination. Shortness of breath. Numbness. rashes Periods very heavy. I could fall asleep between...
  22. You can dry the rice slowly in the oven. Atleast, I did that once accidently. I was trying to make rice cakes, but instead of being puffy, the rice went back to its small dry state. I think that might be nicer for the wedding!
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