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christianmom247

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by christianmom247

  1. christianmom247
    My TTG-IGA level was 136 and I was diagnosed with celiac.
  2. christianmom247
    Hi All, I've been gluten free for over two years after being diagnosed with celiac. In the past few months I have started having increasing discomfort and bloating, which had initially stopped after going gluten free. My doctor redid the celiac panel and confirmed that I have not been getting into gluten, but I don't know what my next step should be. ...
  3. christianmom247
    Hi all, I was diagnosed with celiac and have been completely gluten free for 2 years. At that time I had a dexa scan and was diagnosed with osteopenia. I've been eating healthy foods and plenty of calcium for the past 2 years, but my repeat dexa scan just showed my numbers falling into osteoporosis in my spine. (Went from -2.3 two years ago to -2....
  4. christianmom247
    I’m really struggling with being different and left out because of my celiac and am in need of some encouragement from those who are walking the same road and truly understand. It seems that everywhere I turn I’m confronted with food that everyone but me can eat and I’m left feeling like I don’t belong. Everywhere. On our vacation to Central America...
  5. christianmom247
    Hi! I'm going to be flying with an overnight stop in Atlanta. We'll be staying in a hotel but will not have access to a car or transportation, and the hotel does not have a restaurant. What can I either bring in my carry on that will be allowed and can be eaten without any cooking equipment, or something safe I can buy in the airport before leaving that will...
  6. christianmom247
    Before I was diagnosed with celiac and went gluten free, I would get attacks, usually after eating, where I things would start spinning and I'd get really dizzy and start sweating. The last time I actually passed out and my blood pressure went so low they couldn't even get a reading on it. The doctors couldn't find any cause for it, but it hasn't happened...
  7. christianmom247
    My family likes Ancient Harvest's corn & quinoa spaghetti best, followed by corn pasta. As for the roux, I've always used cornstarch to thicken sauces and gravies, even before celiac. Good luck!
  8. christianmom247
    I use Vitacost online. Best prices I've seen, and their customer service is really good.
  9. christianmom247
    Hi! I'll be attending a conference next month where I'm likely to have no access to safe food. The nearby restaurants will have very long lines and limited selection during our short meal breaks. I won't have access to any fridge or micro, even in the hotel room. Any ideas on what I can take to eat besides a large pack of Kind bars?
  10. christianmom247
    I was diagnosed with celiac over a year ago, and it's still hard to sit and watch everyone else eat food that I can't touch. But it's no ones' fault--it's just the way it is. I have this problem, but so many others I know have bigger burdens to bear. So I just bring my own food, tell people honestly why I can't eat what's served, and count my blessings...
  11. christianmom247
    Nvsmom, you're describing the same kind of pain I had on and off for years, then every day. The only thing that helped at all was time and a heating pad. I was tested for celiac, and that IS what was causing the pain. It went away within a few days of being gluten free. If you haven't yet been tested for celiac, you should be! Good luck
  12. christianmom247
    Definitely go anyway and enjoy yourself! I bring a snack for myself and talk openly about my celiac when people ask why I'm not eating. It can be a great opportunity to get the word out since so many are undiagnosed. Several times I've had people say that they or someone they know has unexplained symptoms and will now get tested after talking with me.
  13. christianmom247
    I was just diagnosed with "frozen shoulder", and my doctor said that it has a relationship to my celiac disease (diagnosed 2 months ago). Has anyone else had both problems or any words of wisdom?
  14. christianmom247
    Don't think it's the Kraft dressing--that's coming up as gluten free: Open Original Shared Link And Kraft is supposed to be one of the best for clearly labeling any gluten in the ingredients. The ingredient list for the soy sauce looks ok, too--Soybean extract, water, iodized salt, caramel and 0.1% sodium benzoate (if it's the same variety that (Company...
  15. christianmom247
    I had the whole range of blood tests done: B12, B6, magnesium, copper, zinc, etc., and only the Iron and Vit. D were a problem.
  16. christianmom247
    I also had low iron and Vit. D with everything else in the normal range. Blood calcium was ok but a scan showed osteopenia. Taking supplements for both in addition to a multivitamin.
  17. christianmom247
    Wow--I never even thought about a possible connection here! A couple days before I got my official celiac diagnosis, I had a sudden fainting/seizure spell where my blood pressure went down so low it wouldn't even register! So far they haven't been able to find a cause--my heart valve isn't the best, but not THAT bad. I also have high blood pressure even...
  18. christianmom247
    Yes, you
  19. christianmom247
    For other newbies, PLEASE be careful about products that have changed their formulas! I had checked on my Ty Ling Chinese mustard and found that it's gluten-free, but halfway thru dinner I happened to glance at the bottle and "wheat starch" was listed! The new bottles don't have it, but the old bottle I had been working on for awhile did. All my hard work...
  20. christianmom247
    Amcam17, I
  21. christianmom247
    Just got a call from the district manager of the area CVS pharmacies after I complained about being brushed off by two of their pharmacists. He was NOT happy with them--said the they ARE supposed to be looking up the info for me and not dispensing medications that would be harmful. They likened it to making sure that someone with an allergy to penicillin...
  22. christianmom247
    Does it make any difference if the doctor writes something like "gluten-free only" on the prescription? Then they wouldn't be fulfilling the prescription as ordered if they didn't check?
  23. christianmom247
    My doc gave me a new prescription for blood pressure medicine, which I took to the local CVS pharmacy where my file is flagged with a gluten-free alert. I had been told they would call the manufacturer to verify the safety of any prescription before dispensing it, but of course they didn't. I called a CVS pharmacist when I got home and discovered that...
  24. christianmom247
    I
  25. christianmom247
    I agree that it's so hard to find a doc who knows about Celiac. My GI doctor just gave me the endoscopy results that showed celiac and said I could talk to my celiac sister if I had any questions. So I went to my family doc, and he told me that some celiacs can eat wheat and others can't! That's all he had to offer me on the topic. I was THRILLED to...
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