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happygirl

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Everything posted by happygirl

  1. happygirl
    Welcome to the forum Betty, and you successfully posted! I'm moving this over to "related disorders" so that hopefully someone will chime in about your concern. (To reply to a thread, you hit "add reply". To start a new thread, choose the topic you want, and then near the top/right hand, hit "new topic")
  2. happygirl
    Has your mom been tested for eosinophilic disorders? www.apfed.org Best of luck, and I hope that you find some answers for your mom.
  3. happygirl
    I especially love it when its accurate! I used to see the medical professional in the piece. She is very knowledgable, and has Celiac herself.
  4. happygirl
    Hampton Roads, Virginia ABC affiliate WVEC recently did a wonderful and accurate story on Celiac. You can read part of the story and watch the full clip: Open Original Shared Link
  5. happygirl
    Patti, I am happy that you have a dr related to Cincy....so many drs know little to nothing about it, unfortunately. Have your doctors come up with an explanation for the elevated ANA, which is indicative of autoimmune disorders? Does the EE cause it to be elevated? Have you tried doing an elimination diet? She might not be allergic in the IgE...
  6. happygirl
    Actually, the biopsy is not necessarily more accurate, as the damage can be patchy, not enough biopsies may be taken, etc. Check out the book in my signature, written by one of the leading experts on Celiac Disease. I would obtain a copy of your records so that you know which tests were run. There is a full celiac panel, but many drs only run part...
  7. happygirl
    This is just my opinion, and not medical advice. I would NOT re-test your daughter. She had a positive tTG. She has had some improvement in her symptoms on the gluten-free diet. She is still having symptoms, even on a gluten-free diet. This to me, indicates that there is something else going on, and I wonder if she has any of the other Eos. disorders...
  8. happygirl
    Deb, I am so sorry that you are having so many problems. I hope that you find some answers. My rheumatologist (my main dr.) just started me on Actigall for my gallbladder troubles, in the hopes of helping with my digestive issues. I lost about 16 lbs last year due to my digestive problems, and was eating about what you are. The only things that...
  9. happygirl
    Thanks for sharing this, Tim.
  10. happygirl
    kml: Another thing to consider is that everyone has to learn. If she is willing to learn, then help her out by talking with her about the meal preparation beforehand. Ask her what she wants to make, and then talk about brands that are safe, ingredients, etc. Then talk about the preparation....clean utensils, clean pots/pans, no stirring "your" pasta...
  11. happygirl
    I don't believe that fasting is necessary. I checked on the websites for Prometheus, LabCorp, and Quest, and none of them listed it as a requirement. Make sure your doctor runs the full panel: 5 tests! Best of luck!
  12. happygirl
    Open Original Shared Link
  13. happygirl
    Some good information: Open Original Shared Link "Lack of concordance of endomysial antibody and anti-tTG The discovery that the enzyme tissue transglutaminase (tTG) was the autoantigen for the endomysial antibody [20] prompted the development of ELISA testing for tTG. This allowed automation of the test for the detection of anti-tTG. The measurement...
  14. happygirl
    kate: I had a very, very similar situation. positive blood tests, and the idiot GI told me to start the diet before my biopsy. My biopsy was....negative. . I hate it that there are so many doctors like this out there...but there are. I would recommend finding a knowledgable GI doctor and talk to him about it, if you have more concerns. You can...
  15. happygirl
    without reference ranges, or knowing what lab it was drawn from, its hard to make any statements on if it is low, normal, high, etc.
  16. happygirl
    Soy is safe for those with Celiac. It does not contain gluten. Nothing happened because its safe. Soy sauce is an entirely different story. Most soy sauces have wheat in them, including soy sauces that are used in frozen foods, in marinades, etc. For your own cooking at home, there are a few brands of gluten-free soy sauce, though.
  17. happygirl
    You could also NOT have "true" Celiac, but could have a non-Celiac gluten sensitivity. On a day to day basis, there isn't much difference, because treatment is the same: a gluten free diet.
  18. happygirl
    Tarah, Welcome to this site! I hope you find some much needed answers, whether its gluten related or not. Print out this list from the columbia celiac site, and bring it with you. It has the correct tests to run. the overall site is www.celiacdiseasecenter.columbia.edu the site with the tests is: Open Original Shared Link Take this part to...
  19. happygirl
    best of luck tomorrow, donna. I'll be thinking of you, sweetie, and i know it will be absolutely beautiful!!!!!!!!
  20. happygirl
    jmommy, I think frustration is the best way to put it!!!!!
  21. happygirl
    I'd bet 99% that its cross contamination....it is a risk we take when eating out, unfortunately. Any of those things could have been cooked on/in something that had gluten, or a utensil was used that had gluten, or something had been dipped in the sour cream, or the staff could have touched flour tortillas all night before grabbing the cheese...... ...
  22. happygirl
    Alex: This is from the Columbia University Celiac Center's website (might be good to have a reference when trying to convince them) Q: Why do my family members need to be screened for celiac disease? When the diagnosis is established in one family member, their first- degree relatives (parents, siblings and children) should have blood tests for celiac...
  23. happygirl
    Jenna, As stated before, your bloodwork is positive for Celiac. Stick around....lots of good info!!!
  24. happygirl
    tootsie rolls are safe. Open Original Shared Link "We are pleased to be able to inform you that, at this time, all of our confections are gluten, peanut and nut product free. We do not use wheat, barley, rye, oats, triticale, spelt or any of their components and that includes our manufacturing process. We do use corn and soy products in the manufacturing...
  25. happygirl
    Yes, that is the one and the same. It might take a little while to get in, so in advance, I would get all your medical records (including when you were seeing the dr that told you gluten was a problem, and the copies of your latest scope, etc.) Have them sent to you, so you can keep a copy (so that you always can make a copy for another dr, rather...
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