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happygirl

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Everything posted by happygirl

  1. Did you have a positive biopsy? According to what you posted, you were negative on the tTG IgA test, and you had an elevated total IgA count (which is not a Celiac test, but part of the panel to differentiate if you have an IgA deficiency). Was there other bloodwork run?
  2. From the GIG website, you'll find a contact for this GIG branch: Open Original Shared Link
  3. It would depend on the lab running it - it varies greatly by lab. Your best bet would be to have the doctor write the order for the tests, and then contact the lab and request the prices.
  4. Go to Options on the top right hand corner of a topic, and select "standard" under display modes.
  5. Most distilled vinegars are safe for those with Celiac, and many never came from a gluten source to begin with.
  6. Hi Mouse queenwhit, this link may help: https://www.celiac.com/categories/Celiac-Di...Celiac-Disease/
  7. Welcome to the board! There is a lot of great information here, so I hope you are able to find some of the answers you need. Regarding soy sauce, it is generally not the caramel color that is the issue - most soy sauces have wheat clearly listed in the label. There are soy sauces that are safe for Celiacs, including La Choy and San-J. With that and...
  8. Open Original Shared Link $.55 off enjoy life Open Original Shared Link blue diamond Open Original Shared Link ian's (Thanks to Navan Foods for the links)
  9. Even if they do not think gluten is the problem, and his bloodwork is fine, they may choose to do an endoscopy and/or colonoscopy to rule in/out other problems that aren't diagnosed via bloodwork. Good luck, I hope you find some answers soon.
  10. Looks fine to me. Open Original Shared Link
  11. It may first be helpful to get a copy of your bloodwork and biopsy, and see if you were properly evaluated for Celiac. Sometimes doctors don't order the right tests, or misinterpret the pathology report. Welcome to the board!
  12. From: Open Original Shared Link "Q: What triggers DH? The simple answer is ingested gluten. But iodine (potassium iodide, iodized salt, kelp), some anti-inflammatories and stress can exacerbate the disease. An area of controversy is whether or not gluten can be absorbed through the skin. Most medical experts say no, only dietary gluten is of concern...
  13. That is ADORABLE. So happy for your family.
  14. Congratulations! Among others: Open Original Shared Link Open Original Shared Link Open Original Shared Link Open Original Shared Link
  15. If this is your doctor's response, then he has missed many, many cases of Celiac, just by sheer numbers/statistics, and the reason why it takes so many people so long to be correctly diagnosed. I hope you continue to do well on your diet!
  16. Thanks! Here is some info that may make reading labels easier, esp on brands like Kraft: A list of companies that has a clear gluten policy. If you don't see "wheat, rye, barley, barley malt, oats" on the labels, its not there, or hidden in "flavors, starches, etc." Open Original Shared Link and Open Original Shared Link This makes shopping MUCH easier...
  17. Keep in mind that Enterolab does not diagnose Celiac.
  18. 1 in 133 Americans have Celiac. 95-98% of Celiacs have one or both of HLA DQ2 or DQ8. about 30-40% of the American population has one or both of the genes, so just having the gene does not diagnose Celiac.
  19. Unless you are eating gluten, and go to your doctor for the blood tests and/or biopsy, you cannot be accurately diagnosed with Celiac at this time. It does not discount that you have an issue with gluten (whether Celiac or not), however. BTW - Which BBQ sauce do you think has wheat?
  20. Which Celiac tests did your doctor run?
  21. Happy you have a doctor well versed in Celiac!
  22. Open Original Shared Link Looks like there are quite a few...depends on your choice of food, level of comfort, price, etc. Uno's, McCormick & Schmicks, Chipotle, Clyde's among others.
  23. Please see the link I provided. There is not one perfect test for Celiac, which is why doctors use some or all of the tests listed. It depends on the doctor, the symptoms, and other considerations. You'll need to have this discussion with a doctor experienced with Celiac Disease.
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