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happygirl

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Everything posted by happygirl

  1. happygirl
    Welcome to the board. Wait and see what the results are, have a discussion with your doctor, and consider trying the diet to see if your symptoms improve. If the tests are negative, and you go gluten free for a period with no improvements, then you'll know its not gluten and need to pursue another path.
  2. happygirl
    For those that are interested, a good collection of neurological-Celiac info can be found Open Original Shared Link . Sylvia, I think I know who your doctor is and that doctor is very highly recommended. I'm happy you are in such good hands. Hang in there. ----------------- I think it is important for everyone to remember to respect the other members...
  3. happygirl
    Sylvia, I just wanted to say that I hope you find some answers and relief.
  4. happygirl
    You may want to contact a local Celiac support group and ask them for recommendations of health practitioners that their members use, so that you go to someone that is experienced with Celiac/gluten.
  5. happygirl
    According to this site, run by a pharmacist - it is not gluten free Open Original Shared Link
  6. happygirl
    I think lots of people do it, especially people who don't have definitive diagnoses. If one's symptoms aren't resolved on the diet (and not a diagnosed Celiac), then i don't think many pople would stay on the diet if it isn't their answer. You may want to consider doing the 'gluten challenge' a little while later, after you have been gluten free a bit...
  7. happygirl
    It is a good overview,but some of the info on p. 13 regarding labeling is not correct/misleading, in my opinion. Thanks for sharing. I'm sure many of us will pass it on.
  8. happygirl
    The results probably won't be zero - they generally aren't 0 in even 'normal' populations. Hang in there.
  9. happygirl
    This isn't the first study to link different "gut ecologies" with Celiac (treated and untreated) with non-Celiacs. The following is certainly not all inclusive. This indicates that the findings seen wrt different gut ecologies are not based on diet alone, and may be involved in the pathogenesis of the disorder, as well as a result. Open Original Shared...
  10. happygirl
    The article was a short write up of an article in a scientific peer reviewed journal article and not in depth. I'm sure the whole article goes into more detail about Celiac. The purpose of the brief write up was not to provide a detailed explanation of Celiac, but to provide information on recently published research (18 May 2009). The abstract is: Diet...
  11. happygirl
    I read this recently, "Some call celiac disease the mockingbird syndrome because it mimics the symptoms of other health conditions like irritable bowel syndrome, fibromyalgia, chronic fatigue syndrome or stress" SOURCE: Medical News Today Interesting that Celiac is the "mockingbird sydrome" when there are objective tests to diagnose the condition (fully...
  12. happygirl
    This is related, as well: https://www.celiac.com/gluten-free/index.ph...c=53907&hl=
  13. happygirl
    For article on Celiac.com: https://www.celiac.com/articles/21807/1/Cel...rers/Page1.html Abstract of Study: Open Original Shared Link
  14. happygirl
    To clarify on your blood tests - only the tTG IgA is a Celiac test (which was negative.) The other - the IgA test, checks for IgA deficiency, and is not a specific Celiac test. If you are IgA deficient, then you have an increased risk of inaccurate results on the IgA tests (like the tTG IgA, the EMA IgA, etc). In addition, being IgA deficient is seen at...
  15. happygirl
    When I traveled to Nashville, I contacted the local Celiac support group, and they emailed me their listing of gluten free places. They were very helpful, and hopefully they may be able to provide you some guidance in addition to members here. Open Original Shared Link There is a great place for gluten free pizza right outside of Nashville in Brentwood...
  16. happygirl
    This is one of the apps for iPhones or other software: Open Original Shared Link Maltodextrin is generally gluten free....it is made from rice, potato, or corn. If it has wheat in it, it is required by law to be listed. Dextrose is sugar and is gluten free: https://www.celiac.com/articles/181/1/Safe-...ents/Page1.html These companies have policies...
  17. happygirl
    The blood tests and biopsy are the current ways to diagnose Celiac. At this point, I don't believe that the saliva tests are 'commonly accepted,' which is not to indicate that they do or do not have benefit. If you decide to go back to eating gluten, the blood tests for Celiac that you can ask your doctor to run include: AGA IgA AGA IgG tTG IgA EMA...
  18. happygirl
    jbaby, I'm sorry that you got sick. Lists like the one you probably have are notoriously unreliable. Many members have found it is best to read every label and learn which companies clearly list gluten ingredients, so that they can make informed decisions. We've all been there, and done that, unfortunately. Join the club . Hang in there.
  19. happygirl
    I'm not sure why testing would be done if nothing has changed since the original study.
  20. happygirl
    Open Original Shared Link "Uno Chicago Grill® (www.unos.com) will host a national Dough Rai$er beginning May 25 through 31 to benefit the American Celiac Disease Alliance (www.americanceliac.org) in support of National Celiac Awareness Month in May." "Consumers interested in participating in the May Dough Rai$er can secure a voucher at www.unos.com/...
  21. happygirl
    Welcome to the forum! Basically, it means that someone that generally does not eat gluten, has ingested gluten, either accidental (cross-contamination with a gluten source) or on purpose. For example, someone may eat at a restaurant, get sick from cross contamination, and say they were "glutened." Or, they may eat a product, and then later realize...
  22. happygirl
    Transcript from a recent appearance: Open Original Shared Link
  23. happygirl
    Here is info (from this site) about the vaccine and trial. https://www.celiac.com/articles/21788/1/Fir...alia/Page1.html
  24. happygirl
    This may be of interest to some members, including parents of kids with Celiac. Open Original Shared Link From the website, "Every GoPicnic meal line features several delicious ready-to-eat meal options for adults and kids that also happen to be gluten-free!"
  25. happygirl
    What is it that you want to be private? I'm not sure, but I don't think that you can set your profile to 'private.' Your address, etc., is only visible to you. Click on any other members' profiles - you can't see their 'personal' info.
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