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nvsmom

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Everything posted by nvsmom

  1. nvsmom
    The doctor probably meant that you are low in total serum IgA. If that is the case, all tests that use the IgA are going to be inaccurate. That includes the tTG IgA, DGP IgA, EMA IgA and AGA IgA. You need to be tested with the tTG IgG, DGP IgG, AGA IgG, and EMA IgG if they have it. Celiac, IBS (often a misdiagnosis of celiac disease around here), and...
  2. nvsmom
    Yes! You must be eating gluten prior to the test. If you have been off gluten for 11 or more days, I would sugest dealying doing the Biocard test for at least a week, two would be better. The biocard test is a tTG IgA test (and total serum IgA test all rolled into one) and for a tTG IgA to be positive, you must be eating gluten. Keep in mind that tTG...
  3. nvsmom
    My kids tested negative too but we went gluten-free anyways because I suspected at least two of them had problems with gluten, and we were right. You could always request more blood work (tTG IgG, DGP IgA, DGP IgG, AGA IgG) and you probably should ask for the total serum IgA, which is a control test to make sure he makes enough IgA for the tests to be accurate...
  4. nvsmom
    TTG IgA and tTG IgG DGP IgA and DGP IgG EMA IgA AGA IgA and AGA IgG (older tests for gliadin intolerance) You only have the results for the total serum IgA which is a control test, yours is fine. Reference ranges vary according to labs.
  5. nvsmom
    There are a few board members around here who have celiac disease but do NOT have the genes that most celiacs have. It happens.
  6. nvsmom
    As far as I know, gluten intolerance does not cause intestinal damage, celiac disease does.
  7. nvsmom
    No, NCGI won't cause a positive DGP IgG. That test is actually one of the most specific to celiac disease, I think it is 98-100% specific to celiac disease
  8. nvsmom
    Both th tTG and DGP or AGA look negative to me. If your son is having symptoms it could be non-celiac gluten intolerance (NCGI) which has the same symptoms are requires a gluten-free diet too. Good luck,
  9. nvsmom
    I had undiagnosed celiac when I had my boys. My oldest has mild asthma, some allergies, mild aspergers, and NCGI. My youngest also has gluten issues but tested negative. I just made the whole house gluten-free and they are doing better.
  10. nvsmom
    Is it sciatic pain?
  11. nvsmom
    Your TSH looks good for me, but how do you feel? Are you having hyper symptoms? You mentioned fatigue, what about the more typical hyper symptoms? Knowing your freeT3 would help, if that is high you might want to reduce meds but if it is fine, then go with it. Hashi's can cause the TSH to change, and gluten-free can lower your med requirements.... I...
  12. nvsmom
    At three month gluten-free I became quick sick. My hair fell out, my arthralgias were so ad it was hard to use a knife, my C was no better, and my fatigue as ridiculous.... I am not sure if it was gluten related or due to my thyroiditis. Look for other causes and be patient. Hang in there.
  13. nvsmom
    Your levels might have fallen, in fact they probably have if you are gluten-free. It just takes time.... My tTG was off the charts when I was diagnosed and after one year it was still double the upper limit. It can take a lonnnnng time. ((Hugs))
  14. nvsmom
    Hi Patti. I'm doing okay but I doubt I am staying in ketosis if I hit it. My carbs are usually closer to 20% at about 50 or so grams. I actually am pms'ing now so starting low carb is harder than I should be. LOL I will look into that book. I'm a book junkie and love to read about a topic through different approaches. I think I will look for ketostix too...
  15. nvsmom
    If you do use it, be aware that the gum is hard to give up. My mom quit smoking 20 years ago and has been chewing the gum ever since...
  16. nvsmom

    ARCHIVED Reading

    nvsmom replied to BabsV's topic in Introduce Yourself / Share Stuff

    I've got a few books on the go right now: Fat Chance: Beating the Odds Against Sugar by Lustig Good Calories, Bad Calories by Taubes Sword of Truth series by Terry Goodkind (Naked Empire) Beyonders: A World Without Heroes by Mull - I'm reading this one outloud to my boys over lunch time lately... A good time for reading fiction or for school - they are...
  17. nvsmom
    Some years these can be really neat. About 10 years ago they were so bright that I would sit outside in our hotub, in January, and see them clearly in spite of the fact that I was 5km from downtown Calgary. I remember being able to read from them, and from that pinkish glow that you get from city lights reflecting on snow. Very neat.
  18. nvsmom
    I can't say I experienced this either, or the people in my life are too polite to mention it. I DO get BO is I just use a deodorant rather than an antiperspirant but as long as I wash well and reapply antiperspirant every 20 hours or so, then I am fine. My level of BO hasn't changed. It's high for a woman but I am a heavy sweater... in feminine terms: I...
  19. nvsmom
    LOL I always wonder why when docs think kids are holding it in and causing "C", why they don't think kids are forcing it out and causing "D"...
  20. nvsmom
    That would make sense that you have the DQ2 gene too unless it is only detectable/expressed as a recessive gene pair (needing one recessive gene (not expressed) from both parents... My past lie as a science teacher is emerging. LOL If migraines, infections and rashes cleared up after going gluten-free, I would say that you have a gluten intolerance but...
  21. nvsmom
    Thanks again for you advice. I appreciate it! I think I've actually been experiencing some of the lower carb symptoms/withdrawal already. I've had a headache for a few days and I just clued in today that maybe it was my dietary adjustments already. At first I just thought it was a really early pms symptom. LOL That's great to hear about the hypoglycemic...
  22. nvsmom
    Patti, how low are you keeping your carbs? And are you doing keto or MAD, or just keeping carbs lower than most? I'd love to know how long it took you to settle into the diet. I tend to get the shakes and light headed if I don't eat frequently enough, and I think it is some sort of hypoglycemic situation. I am a bit concerned that dropping carbs will cause...
  23. nvsmom
    M&M's are my favourite gluten-free snack. MMMmmm chocolate covered peanuts.....
  24. nvsmom
    The AGA IgG is positive only in those who have a gliadin intolerance. It is possible to get a positive AGA if one have non-celiac gluten intolerance (NCGI) as well as with celiac disease. All other celiac disease tests detect antibodies that (attempt to) do damage to the small intestine, and doctors only call it celiac disease if they have proof that villi...
  25. nvsmom
    I have never fully believed that whole theory that kids hold it and cause constipation... I mean, what caused the initial constipation that made it so painful to go? I remember being in tears as child because it was so painful, and my mother having to "help" me. I just know that I didn't hold it back then, and I didn't as an adult either yet I used to OFTEN...
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