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nvsmom

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Everything posted by nvsmom

  1. nvsmom
    I agree with Gemini, if you have been gluten-free for a long time (a year or longer) then those symptoms could be something else. For those still early in the healing process, a glutening can linger. I, for example, have been gluten-free for a year (except a few accidents) yet I still have slightly abnormally high antibodies so I am sort of "being glutened...
  2. nvsmom
    Probably not, make sure it is gluten-free though. Those pg anti nausea pills (diclectin?) are fairly harmless. Open Original Shared Link
  3. nvsmom
    Darn it... I forgot to add the link! D'oh! Sorry about that: Open Original Shared Link
  4. nvsmom
    It almost sounds like you are hypoglycaemic and not getting enough calories. Postural hypotension tends to be worse for me when I haven't eaten for a while too. Perhaps your body is still adjusting to a new and lower glycemic load, and you aren't eating often enough...just guesses. I do hope you feel better soon!
  5. nvsmom
    Welcome to the board. To me, it does sound like celiac disease or posssibly non-celiac gluten sensitivity (NCGS), although I think it is more likely to be celiac disease because of your diabetes - there is a strong link there. There are a few others around here who have celiac disease without positive blood tests, it was proven to be true through...
  6. nvsmom
    (((HUGS))) I think that if you can work through the pain, you might as well. If something hurts more during an activity, then cut back... It really depends on the pain. When my arthralgias hit I can't lift my arm past my shoulder, and I was coaching basketball- it just couldn't be done. I could coach with a migraine (couldn't understand anyone though LOL...
  7. nvsmom
    Ahhhh.
  8. nvsmom
    If she had more than one positive test, then I would say that chances are extremely slim that the results were caused by something else. The tTG IgA has a small chance of being caused by thyroiditis, chronic liver disease, diabetes or colitis and crohns, but the results are usually barely above normal when that is the case. This report discusses the tests...
  9. nvsmom
    Welcome back and (((hugs))). Wow, you really deserve a good year now! I hope the rest of the hearings go better.
  10. nvsmom
    Yes! There are many of us who have joint problems. Some, like myself, thought we had lupus or RA because of the severity, but celiac disease can cause pretty horrible arthralgias too. The problem is that joint pain is often one of the last symptoms to go. There are some on the boards who took a few years to recover. My arthralgias actually got worse (after...
  11. nvsmom
    I am guessing (and this is only a guess) that your low/normal IgA and IgG would not affect the tests. It is possible for those with very normal IgA to get a negative on the tTG IgA. In fact, most celiacs do not test positive on all the tests, that is why they run so many - doctors won't admit that though. Many who are negative on the tTG IgA are positive...
  12. nvsmom
    Ditto on the eggs. Hard boiled eggs are great to travel with and can be put onto salads when you need some protein. When I travel I make muffins ahead of time, pack nuts and seeds, bring a few Lara bars, and bring some fruits and veggies. In restaurants, irony eat salads or eggs and bacon(after checking the packaging). I avoid restaurant food when I can...
  13. nvsmom
    This one isn't too bad. Open Original Shared Link
  14. nvsmom
    My GP won't do any sort of blood check test. Period. I have started seeing another ( nutrition based) doctor and he seems to want to test every two months. I would say that the ideal is every year until you are sure you are healed (negative tests and no symptoms) and then only when you suspect a problem after that. Congrats inherently negative levels...
  15. nvsmom
    I'm not sure about the liver either. I believe it connects to the stomach so they might check that junction but the liver is a pretty solid mass so they would be unable to check in it with a scope... Sorry I can't be of help. Good luck on the 23rd.
  16. nvsmom
    Yes, that looks like total serum immunoglobulin A and G. Both look good if just a tad on the low side. Did you have your kids tested? You said they appeared to have a gluten sensitivity too. You probably should get them tested to check (unless you are planning on making them strictly gluten-free regardless of any tests). Plus, if they are positive, then...
  17. nvsmom
    From what I understand, untreated celiac can make certain forms less likely to occur, and certain forms more likely to happen. I believe untreated celiacs are more likely to have cancer of the small bowels, lymphoma, and pancreatic cancer (I think). That makes sense to me because of the damage inflammation would cause (lymphoma) and the area's directly affected...
  18. nvsmom
    I agree, Adalaide. That sounds like a great fit!
  19. nvsmom
    That looks like a really comprehensive panel. The tTG's, DGP's and EMA tests are all for detecting intestinal damage (high levels cause it) and are the best tests for detecting celiac. I think the IgA listed on the lab was the total (serum) IgA. Immunoglobulin A is low in about 5% of celiacs so that is why they run it. If your IgA levels are normal,...
  20. nvsmom
    I think you are right!
  21. nvsmom
    Good plan. Just a warning about the EMA IgA, it seems to detect more advanced damage to the intestine. The EMA basically kicks in after the villi have been damaged and tries to wipe out the top layer of the intestines in an effort to eradicate whatever was damaging them in the first place (as I understand it) - it's not exactly logical, is it? Anyway...
  22. nvsmom
    After one year gluten-free, I found my vit A levels were at the bottom of the normal range. I have no idea what they were a year ago though or if it has improved on the gluten-free diet. I haven't found much to do with celiac disease and low vitamin A. I have had horrible night vision for years. I hate driving at night because the lights are so overwhelming...
  23. nvsmom
    That sounds like a gluten sensitivity reaction to me. Many celiacs have symptoms that severe, and many don't. Symptoms are very individual which is part of the reason it is tough to figure this disease out. When I get glutened, I tend to gain weight, get migraines, become more tired, get stomach aches and bloating, lose hair, and develop arthralgias in my...
  24. nvsmom
    Unless the GI can tell you what caused the DGP IgA to be elevated (besides celiac disease) I would assume it is celiac disease. There are many people around here who have only one or two positive tests - most are like that I would hazard to guess. It seems to me that the unusual one are the ones with every blood test positive along with a positive biopsy...
  25. nvsmom
    I get an email/newsletter from Sarah Patrick on celiac tips, facts and info every few weeks. The latest email discusses the role of a dietitian in helping celiacs; it basically says a dietitian is of no assistance to helping a celiac eat gluten-free. I found that a bit surprising and was wondering if those who saw a dietitian found them helpful? I never...
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