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nvsmom

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Everything posted by nvsmom

  1. nvsmom
    Mine did with a positive tTG IgA and EMA IgA.
  2. nvsmom
    Be careful of that TSH test. Doctors seem to think it is the holy grail and don't test the Free T4 and Free T3, which is the actual hormone level in the blood. Plus, those tests are set up so the normal range is for 95% of the population; now if the normal range is 0.5-3.5 that means 95% of people should fall into that range. The problem is that about 1...
  3. nvsmom
    I think that ASCA test is for inflammation and is usually used for colitis or Crohns disease. To be honest, I've never seen that test mentioned on this board over the past year and I'm on here a lot (as the state of my house can attest ). I know it can detect celiac disease but I have no idea how specific it is to celiac or even how sensitive it is. The...
  4. nvsmom
    Wow, it really is unusual to be positive in all celiac tests for an adult, for kids - Wow. I personally don't think a biopsy is needed but some docs are very by the book and want a patient to jump through hoops before they will diagnose celiac disease. But as you said, when the tTG tests are very high, it is unlikely to be anything else. The DGP and tTG...
  5. nvsmom
    LOL. Missy BB - you might still have antibodies, they can really linger in some people. For example, I had a doctor check my antibodies after one year gluten-free and one test (tTG IgA) was still positive although much lower, and the other (EMA IgA) was negative. Other people's tests show normal in a matter of weeks. Unfortunately there is no way took...
  6. nvsmom
    Yep, I would push for testing too but I would also make him gluten-free even if the results are negative. My ten year old's growth slowed right down (his 8 year old brother is now taller) and he has some headaches and GI issues, so we suspected celiac disease but his results were negative. I knew gluten could still be an issue so he is gluten-free. He feels...
  7. nvsmom
    LOL. I feel better about being mean now. Thanks.
  8. nvsmom
    Those with on-celiac gluten sensitivity (NCGS) can have almost as many long term health problems as a celiac....just minus the villi damage. Eating gluten can increase your chances of other health problems, many of which are permanent. Those with NCGS must avoid gluten. I'm a celiac and I have varying reactions to gluten, and gluten amounts too. I had...
  9. nvsmom
    My 10 year old found a package of gum near a playground, on the ground, while out biking with my husband. He brought it home excited that hehad his own pack of gum. I didn't feel comfortable letting him keep the gum because it was opened and a few pieces were missing. I know it's very unlikely it's been tampered with but I took it away and promised him a...
  10. nvsmom
    I would get testing done too. If you have a wide variety of tests run, then the chances of celiac disease being missed go way down. The tests are: DGP IgA and DGP IgG - a superior test for detecting celiac disease in kids tTG IgA and tTG IgG EMA IgA total serum Iga (control test) AGA IgA and AGA IgA The first three tests detect intestinal villi damage...
  11. nvsmom
    I've been gluten-free for a year now, with just a few accidental slips. I recently went to a new orthomolecular doctor who ran a few (million) tests and I though I'd post some to compare how it changed over the year. It really wasn't by much. tTG IgA - is 34.4, was >200 (reference range 0-20) EMA IgA - is negative, was 1:40 (no ref. given) ...
  12. nvsmom
    Bags and puffy face? Had them! I just thought I was going to have to suck it up but it has gone away over the last few weeks now that I finally have an ideal dosage for my thyroiditis (hypothyroidism). Subclinical hypothyroidism can cause the puffy look. I fnally lost the puffiness when I got my TSH down to a supressed level of 0.11 (0.2-6.0 is my lab's range...
  13. nvsmom
    Ditto Burdee. I had C my entire life. I discovered my celiac disease and thyroiditis at the same time. As my thyroid dosing got closer to ideal point, my BM's happened with much more frequency. I'm not sure it was due to my thyroid meds or the fact that I had been gluten-free for 9 months. Prior to that, fibre did very, very little for me. I would mix...
  14. nvsmom
    Wow. I'm glad the surgery went well and you escaped the attempted poisoning.
  15. nvsmom
    I hope you feel better soon. No, I haven't been that polite. LOL I just decline eating what they serve. As a general rule, I always bring food when I go to peoples homes. Salads are great to bring because I can load up on that. I usually bring a dessert too as some people get stumped by gluten-free dessert. As you said, I'm sure your friend will understand...
  16. nvsmom
    I *think* your test was the old Anitigliadin antibodies (AGA) test with tests for a gluten sensitivity. It is thought by some doctors that the AGA tests detect gluten sensitivity in both celiacs and in Non-Celiac Gluten Sensitive (NCGS) folks. The DGP tests will show intestinal villi damage which happens in celiac disease only. That link myjade posted is...
  17. nvsmom
    At two weeks into the gluten-free diet, only my stomach aches and bloating were improved. My migraines were actually worse, hairloss was still bad, no change to fatigue, leg cramps still happened, joint pain was still bad. At 3 months gluten-free, overall I still felt pretty bad.... It took well over 6 months for some of my symptoms to start improving, and...
  18. nvsmom
    Beer. Mmmm. Beer. Breading your meat would work. Add flours and grains to meatballs, patties or meatloaf. There are some noodles that are egg free. There are egg substitutes out there. You could use some to make a bit of baking. Good luck.
  19. nvsmom
    Thanks!
  20. nvsmom
    That video was in Bragg Creek just west of Calgary. It was two blocks from where my hubby was helping some friends yesterday. i hear a rumour that Jann Arden (the singer) lived in that destroyed house a few years ago - it was up river a few kilometres. Three house in the the other direction is a house we were looking to buy a few years ago; we know the...
  21. nvsmom
    I'm so sorry for your loss. I agree with Karen, you should get tested. This report has lots of info and lists the most common tests. Open Original Shared Link Best wishes.
  22. nvsmom
    The DGP IgA is a very good test for detecting celiac disease. It is very specific to celiac (meaning very few other things can cause a positive test besides celiac disease). This report, on pages 11 and12 discus the tests: Open Original Shared Link Very few celiacs are positive on all tests, that's why they run so many. The total IgA is a control test to...
  23. nvsmom
    That tTG IgG is five times the normal limit, I think that is pretty high. It looks like a positive for celiac disease to me. Her IgA serum level is close to being low and could conceivably affect her IgA based tests. My advice would be to make her gluten-free, keeping her on a gluten filled diet will hurt her. . I hope she feels well soon.
  24. nvsmom
    It's possible that being gluten-free for a month prior to testing could have messed up your results. It depends on how quickly your antibody levels fall. Some people go back to normal quickly and others take years for their levels to fall. About all you can do is wait for your results. If they are negative you could retest after a gluten challenge of a...
  25. nvsmom
    Shadowicewolf - I hope you guys get some rain soon. Flood waters are expected to start receding. The smaller river (Elbow river) should be halved, and our bigger Bow river should be down by 20% by Monday. Downtown could be re-opened on Tuesday at the very earliest. It was really weird seein downtown without power and dark last night. I seems amazing...
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