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nvsmom

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Everything posted by nvsmom

  1. nvsmom
    Steam puffs.... Excellent idea , Lisa. . Thanks. Seraphim, I hear you! I'm hoping not to prove them wrong (again) with this.... I think I don't mind doctors not knowing everything but what really bugs me is when they act like do. What I would give for a doctor who admitted their weaknesses,strived to improve themselves and was open to a patients assessments...
  2. nvsmom
    I hate my doctor. Dr R refused to look at the high IGF1 test that the other doctor (Dr J, who I went to for natural dessicated thyroid because dr R refused it to me) had found. He outright refused! I am making an attempt to get all of my records from him tomorrow and I will sever the relationship. I'm at the point where I would rather be without a family...
  3. nvsmom
    Congratulations on baby #2! And welcome to the board. 100 is a high test result. I think you can be fairly confident that it is caused by celiac disease. A positive tTG IgA is generally much closer to the normal when it is caused by thyroiditis, liver disease, or crohns and colitis. The specificity of the tTG IgA test to celiac disease is 91-99%,...
  4. nvsmom
    Oh no! I hope the rain skips you. Is your basement developed? I hope there wasn't too much damage.
  5. nvsmom
    Poor kids. Truly a shame.
  6. nvsmom
    Welcome to the board. I agree with Bartful, it can take a long time for symptoms to improve. I had some improvements in the first few weeks, but I was still having symptoms improve at 6 month gluten-free. This disease requires a lot of patience.... Unfortunately. This report has lots of info on celiac disease and it's tests: Open Original Shared...
  7. nvsmom
    My interpretation is the same as Lisa's. To me, it looks like your normal now.... But I don't speak "medical-ese". That wording is really strange.
  8. nvsmom
    I agree with with Lisa, if you hav had health improvements, and your numbers have gone in a downward direction, then you are probably doing well. retesting will help prove that. My tTG Iga went from >200 to 34 (reference range 0-20) in one year gluten-free. I think that's slower than many but it is getting there. I also have a thyroiditis and that...
  9. nvsmom
    I know. I rolled my eyes behind his back. LOL
  10. nvsmom

    ARCHIVED Alopecia

    nvsmom replied to BSVD's topic in Related Issues & Disorders

    I though about looking for those powders to colour my scalp but I though I would probably get all over my hair and pillows. It stayed put , eh? Hmmmmmm.
  11. nvsmom
    That is EXACTLY how my stomach used to be, I would get more bloated as the day went on. not a good sign. I'm glad you are still looking into it. Do you know what tests he had? These are the usual tests: tTG IgA and tTG IgG - most popular tests with docs, not always accurate in kids EMA igA - shows advanced damage and not often positive in kids DGP...
  12. nvsmom
    Do you happen to know the normal reference ranges for those labs? Are they 0-20 like out here in Alberta? If so, his tests are rather high and that makes it less likely it is caused by something else. A positive tTG IgA can also be caused by diabetes, chronic liver disease, thyroiditis, and I believe Crohn's and colitis, but the tests are usually not much...
  13. nvsmom
    Mayo has an article in its Communique newsletter about high IGF-1. Open Original Shared Link. On page 5 is a flow chart on how to diagnose acromegaly. My IGF is well over 25% higher than my age set reference range's upper limit - mine is closer to 50% higher...Arnold might have been right. Ugh! Why isn't my doctor open on the weekend?! I'm not really...
  14. nvsmom
    I'm sorry that you have been feeling so poorly. Can you see your family doctor faster and have him run the celiac tests? You do not need a specialist to order celiac tests, and this way you can skip the wait. After being gluten-free for a month and a half, it is possible that you will still have positive tests. As more time goes on, it be ones less...
  15. nvsmom
    I don't know a lot about leaky gut. The theory behind it makes sense to me - I would guess it will be more medically accepted in a few more years. I don't see how trying to heal a leaky gut could hurt you so you might as well do what you can for yourself.
  16. nvsmom
    One of the main reasons that people get a firm diagnosis for their kids is so accomodations can be made for them at school. That's not an issue for everone though. I think you should at least try the blood tests before going gluten-free. This report has lots of good info and discusses the tests beginning on page 11. Open Original Shared Link Best...
  17. nvsmom
    Because you have already determined that gluten is a problem for you, the only reason I can see for testing would be if it would help you stay 100% gluten-free. Even having gluten once every two weeks can set a celiac back for a month, and it really is no better for those with non-celiac gluten sensitivity (NCGS) - they have every other symptom that a celiac...
  18. nvsmom
    LOL My older boys had a few cavities and my dentist told them they can chew gum with Xylitol and it might help reduce cavities.... the boys won't let me forget that piece of advice.
  19. nvsmom

    ARCHIVED Alopecia

    nvsmom replied to BSVD's topic in Related Issues & Disorders

    celiac disease caused my alopecia as well as thyroiditis flare-ups (or other AI flare-ups) and changes in thyroid meds. Going gluten-free did help but because of my other issues, it hasn't stopped totally. I still get periods of massive shedding. I tend to go for short bobbed hair-dos that require no volume. Long hair looks stringy on my head, and is...
  20. nvsmom
    I don't know a lot about genetic testing. I believe most celiacs have the gene pairs but not all do. They are just the gene pair that is most common. I know I have seen at least one board member that has celiac even though they know they do not have the usual genes for it. It does mean that you are less likely to have celiac disease though. Going gluten...
  21. nvsmom
    Dugudugu, those with NCGI often have vitamin deficiencies. I think I have seen the inflammation implicated in that, just like in other diseases that have deficiencies without damage. If you have concerns,you might want to get checked.
  22. nvsmom
    I too have had a lot of joint pain without swelling. I also suspected lupus although they rheumy I saw in the spring says my problems are still celiac related. The problem with fatigue and arthralgias are that they are common to many health issues (as you know). I also have thyroiditis and that could also be at the root of the fatigue and/or pain. celiac...
  23. nvsmom
    I went to a highly regarded (by his patients) orthomolecular doctor recently. He checked the vitamins that my GP refused to check, and gave me some larger doses on the few I was low on (A, D, zinc) and prescribed me Creon, which is a pancreatic enzyme, for a month. I have no idea if it's helping, and have noticed minimal difference in my stomach aches and...
  24. nvsmom
    It might be a good idea to test the kids just in case your tests were wrong. My cousin's son was recently diagnosed with his only symptoms being ADHD and some cognitive issues. NCGS can lead to ADHD as well, so you might want to consider making the whole family strictly gluten-free once any testing is done. Best wishes.
  25. nvsmom
    With such a low IgA, you are right that those tests are basically useless. You'll have to skip any tests that use IgA. IgA tests are popular because the are made in mucosal linings which includes the intestines. Immunoglobulin G (IgG) is more abundant in the body and works well too. Tests that use IgG are: TTG IgG DGP IgG AGA IgG The first two tests...
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