Jump to content

nvsmom

Advanced Members
 View Profile  See their activity

  • Posts

    4,529

  • Joined

  • Last visited

  • Days Won

    62

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by nvsmom

  1. nvsmom
    The tTG IgA test is not the most sensitive test for picking up cases of celiac disease. According to the World Gastroenterology Guidelines for Celiac Disease, it only picks up 75-95% of all celiac cases - it could miss up to 25% of celiacs. Open Original Shared Link As you know, celiac disease can lead to low B12. It is extremely common. It could takes...
  2. nvsmom
    Welcome to the board. Those symptoms could be celiac disease... and I'm very sorry for your losses. I would say that it is worth it for you to request celiac testing. This report has a LOT of info and lists the full celiac panel on page 12: Open Original Shared Link I would hazard to guess that you might still be hypothyroid. Many of your symptoms...
  3. nvsmom
    It could be gluten or it could just be your inflammed body over-reacting to something. If it is a symptom you usually got while eating gluten, I would say that was probably it. I don't know what a veg sos roll is but if it is a processed food it could have wheat - was there soy sauce involved? I used to have symptoms of hypoglycemia before I was diagnosed...
  4. nvsmom
    Welcome to the board. According to the World Gastroenterology's guidelines on celiac disease, the tTG IgA test is pretty specific to celiac disease; I believe it is between 91-99% specific to celiac disease meaning that out of 100 positive tests, 91 to 99 of them are due to celiac disease. A positive tTG IgA can indicate dm but it can also point at a...
  5. nvsmom
    In Calgary, they only run the tTG IgA and total serum IgA blood tests, and then the EMA IgA if the tTG IgA were abnormal. they call it their celiac panel but it is NOT a full celiac panel. This is: (anti-tissue transglutiminase) tTG IgA and tTG IgG - this is the doctors' favourite (deaminated gliadin peptides) DGP IgA and DGP IgG - these are newer...
  6. nvsmom
    Perhaps your doctor could give your child a diagnosis of Non-celiac Gluten Intolerance /Sensitivity (NCGI or NCGS). It is a newly recognized medical disorder and there are no blood tests or medical procedures to diagnose it - just a positive reaction to the gluten-free diet. It is a medical condition and I would guess it would be enough to get some concession...
  7. nvsmom
    Vit D deficiency can indicate celiac disease or NCGI, and then there are some celiacs (like me) who don't have deficiencies. Going gluten-free often helps those with gluten caused deficiencies but it takes a long time (usually) for improvements to stick. I think you might as well request retesting for celiac disease. You have symptoms and a family history...
  8. nvsmom
    I lost weight when I first went gluten-free, and now I have gained. I gain weight with stress but I think it might be partially because I am helping because I do not believe that I am eating more than when I lost weight... I could be wrong though. As it is, I am daunted by how little I will have to eat if I really work at losing weight. Stress of living with...
  9. nvsmom
    It's unusual for a doctor to come out and diagnose NCGS. I'm glad you have a diagnosis of that anyways - knowing you have to commit to the gluten-free diet makes it easier to do (in my opinion). What is the doctor doing for your other issues beyond the prilosec?
  10. nvsmom
    Good for you! I usually try to bring some munchies when I visit, and let people fuss over my drinks (some of us just like to fuss) and then a visit goes smoothly. Don't be surprised if you start feeling a bit worse for a week or so, many of us go through a withdrawal that makes us tired, grumpy and headachey. Hopefully it won't hit you but if it does...
  11. nvsmom
    I had leg cramps related to a nerve injury from a few years previous to my diagnosis. they stopped after about 2 months gluten-free. Before that I was taking a homeopathic remedy, cuprum metallicum (sp?), that lessened the intensity and frequency. I hope going gluten-free takes care of the problem for you. I know how maddening cramps can be. I remember...
  12. nvsmom
    Good! perhaps this is that corner which will make all the difference.
  13. nvsmom
    (hugs) I would guess it is stress. Stress tends to exacerbate chronic illness and play a number on people's systems in wierd ways. For example, I get "c", migraines and back pain when I am stressed. Best wishes to you and your family. I hope the service tomorrow is comforting and brings back only the best of memories of your dad.
  14. nvsmom
    I hope the symptoms of your NCGI continue to improve as time goes by. You have a great attitude about starting the gluten-free diet - I'm sure that will help you immensely. Check the boards for recipes and more tips on recovery if you need them. Good luck!
  15. nvsmom
    Great! I hope this works out for you all. Sub-par doctors who won't put in an effort to help can really wear down after a while....
  16. nvsmom
    Welcome to the board. I have seen that up to 25% have negative blood tests but I think that number is falling now that the new deaminated gliadin peptide tests (DGP IgA & DGP IgG) are around and the antigliadin antibodies (AGA IgA and AGA IgG) tests are used less. I'm not sure about the false neagtive rates in the biopsy but there is a small number...
  17. nvsmom
    For blood testing, you need to be consuming 1-4 gluten servings (ie. slices of bread) daily for 4-12 weeks, 2 slices of bread / day for 6 or more weeks seems pretty common. If you are already eating bread pretty steadily, you don't need to add on more time, but if you eat "gluten light" or have gone without gluten for a length of time, you should probably...
  18. nvsmom
    I remember a guy around your age who went gluten-free and had a growth spurt when he was about your age.... I've seen a couple of posters say they grew. If you are done with your celiac testing (if you are doing it) I think you should make a strong commitment to the gluten-free diet and hope it will work. A clean diet with lots of veggies, protein and...
  19. nvsmom
    My GI symptoms improved within days, well some of them did. Many other symptoms improved over the next two or so months, and yet other symptoms are still being improved after 11 months. It is a very individual rate. I hope you are one of the lucky quick healers. Good luck!
  20. nvsmom
    Welcome to the boards. i'm glad you are feeling better. That's the main thing that matters, and not how you were diagnosed. Some of your symptoms could also be caused by sub-clinical hypothyroidism (pain, dry skin, acne). You might want to google it nd see if the symptoms fit. If you want to get tested for it, the most common are TSH (should be near...
  21. nvsmom
    If I don't adjust to the raw veggie/fruit smooties within a couple more months i might start steaming.... but I am lazy and want to avoid more work. I would have used the winking emoticon there but that would have implied I was half joking. I am lazy when it comes to my own food. lol Thanks for the reminder about the microwave. I forgot about how it...
  22. nvsmom
    I don't know about celiac, but flat feet can be seen in hypothyroidism.... and during pregnancy but nevermind that. lol
  23. nvsmom
    Thanks for all of the tips. makes sense.
  24. nvsmom
    I don't know much about sh except if you do get it biopsied, I believe they are supposed to biopsy the area to the side of the rash. If no one offers advice on dh, you might want to start another thread on it, or check in the dh sub-forum. I hope your next three weeks aren't too hard for you. Good luck.
  25. nvsmom
    I agree that a total serum IgA would have been a smart test to include. Yes, only 5% of celiacs are deficient in that but 1/20 is enough that it should be checked. Hopefully your GI will run it. The DGP IgG is very specific to celiac (99+%) but it's sensitivity is not as good as the other two tests (catches 70-95% of celiacs). Open Original Shared Link...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.