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nvsmom

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Everything posted by nvsmom

  1. nvsmom
    I would push it back by a month if you can handle it. The longer you consme gluten, the more certain you can be of your test results. I've read that a gluten challenge should be anywhere between 4 to 12 weeks and consist of eating half a serving to 4 servings of bread (gluten based food) per day. The average seems to be 2 slices of bread per day for 6 weeks...
  2. nvsmom
    Very neat. I like the direction it is going. Thanks!
  3. nvsmom
    Welcome to the board. I can't add any personal experiences except to say some of your symptoms are similar to mine (but I had the positive blood test). If you give this some time, I am sure some serological negative celiacs or NCGI's will chime in on their experiences. From what I have learned, Non-Celiac Gluten Intolerance has pretty much the same...
  4. nvsmom
    I'm sorry to hear you've been feeling so poorly but I'm glad you have a diagnosis and can move forwards towards healing. Acceptance is the key to happiness... That was the best fortune cookie I ever got - or ever will get since I've never seen a gluten-free fortune cookie. LOL I just found I had to accept it and move on. Really, we have no other choice...
  5. nvsmom
    We finally have spring up here. Most of the trees have leaves and the tulips are finally flowering. The peonies are getting ready to bloom. No sign of my vegetables coming up yet though. And speaking of squirrels, we did battle with them here. The little suckers got into our fascia and had babies! We could hear them knawing on our house in the evening...
  6. nvsmom
    (((HUGS))) I'm sorry to hear of your loss. That's so young. I too lost a parent young (he was 42) and I suspect it was caused by possible celiac disease as well as by smoking. It was not is a manner similar to that of your mother so I can't offer any words of wisdom. Best wishes to you and your family.
  7. nvsmom
    Welcome to the board. Right now, the DGP IgA and DGP IgG tests are the best at picking up celiac disease in toddlers. You might want to request those tests as part of her celiac panel. Good luck!
  8. nvsmom
    Ditto IrishHeart. My chronic C started to go after about 4 months once I began thyroid medication for hypothyroidism. At 11 months gluten-free, and 9 months on thyroid meds, it is pretty much better. I found patience was really helpful... And that is all that was helpful. Lol. I hope it is fixed for you soon.
  9. nvsmom
    That headache lasted a little over a week for me. Yuck. I hope you feel better soon and that your child is okay.
  10. nvsmom
    Good luck! Enjoy an Oreo or beer for me. You might want to gluten yourself in the evenings so your days aren't negatively affected by feelings of poor health.
  11. nvsmom
    Gluten could have snuck back into your diet somewhere. I did that a few months ago - I nibbled on some fries that had gluten every few days and felt poorly for a month or so. It was mainly intestinal and headaches that came back for me. I think the symptoms like pain and fatigue are harder to get rid of and tend to keep cropping up for months, or even...
  12. nvsmom
    You were already diagnosed with celiac disease? If so, you need to be gluten-free. 100%. There is no mild celiac, only mild symptoms. It would be like being a mild type 1 diabetic - it can still harm you or kill you if untreated. Best wishes. i hope you feel well soon.
  13. nvsmom
    I understand wanting to be really sure - I was the same way. Three months of gluten (1-4 slices of bread or equivalant per day) is very reasonable amount of time to get your antibodies back up. I hope you don't feel poorly over the next few weeks. Good luck. BTW, eating gluten every couple of weeks is enough to keep many celiacs feeling pretty ill...
  14. nvsmom
    I two weeks gluten-free, you can get through withdrawal (if it will happen for you), and most people will find that their bloating, stomach pain and often headaches could clear up by then too. I would go gluten-free as soon as possible, if you are able. Good luck.
  15. nvsmom
    You've tested positive now, and positive years ago, and you have it in the family... that is really pointing towards celiac disease. The DGP IgA is 93-96% specific to celiac disease according to the World Gastroenterology Organisation Global Guidelines. That is pretty specific, especially if you had another different type of positive test in the past. Open...
  16. nvsmom
    Yes. You are positive on 3 out of 3 tests. It doesn't get much more positive than that. Welcome to the board. There is a lot of info around here so look through the threads. Ask questions or just vent. the people around here are very helpful and encouraging. And hang in there... the first few weeks are often the hardest, mentally and physically.
  17. nvsmom
    I like the way you think, Paul! I read a book a few years ago (Eat Clean Diet) which really stressed that if we can't recognize an ingredient as food, we shouldn't eat it... It's really disturbing when you put the whole ingredient list on there, Bartfull. I used to eat that stuff too... and still eat some junk on occassion... Okay, more...
  18. nvsmom
    Thanks Paul. You could be correct. I do have hypothyroidism and am not yet in that "sweet spot" for hormones yet after 9 months of treatment. I am retesting and adjusting thyroid meds every two months. I think I am getting closer, so only time will tell for that.
  19. nvsmom
    Ditto the others. The blood tests for celiac disease are: tTG IgA and tTG IgG DGP IgA and DGP IgG EMA IgA total serum IgA AGA IgA and AGA IgG (older and less frequently used) Make sure you are eating gluten in the weeks prior to testing. Good luck. Oops... editted to add that I saw you already knew the blood tests. Sorry.
  20. nvsmom
    LOL I had a miniature poodle once. I loved that dog. But if it had been about survival of the fittest and natural selection, he would never have existed. He wasn't natural.... Cute though! I'm not saying that people messing with nature is always bad. I grow lilies in my yard that aren't supposed to naturally occur in Alberta. I also (unhappily) grow...
  21. nvsmom
    I hope he continues to feel better!
  22. nvsmom
    Huh... Yep. I guess I had my terminology wrong. Wheat is not genetically modified but genetically manipulated in many many ways. Either way, it's not natural. I consider wheat products (for non-celiacs) in the same category as any junk food treat - to be eaten in small amounts. Yes, I doubt celiac is caused by the "new wheat" since it seems to have...
  23. nvsmom
    I read it in Wheat Belly, by Davis (I think). his book is interesting, but not the most exactly researched out there by any means. He really gets into how wheat has been modified for ease of farming (like making the plants shorter and stronger so it is less likely to break with heavy grains on it). Many foods are modified with good intentions to help...
  24. nvsmom
    Since going on the gluten-free diet, I find that I don't get AS sick as I used to. I still seem to catch colds but I don't end up with fevers for days on end or secondary bronchitis or sinus infections. It could just be a coincidence that I don't get as sick now that I'm gluten-free, but I doubt it. If you are having a tough time staying gluten-free...
  25. nvsmom
    I have read that wheat is largely genetically modified. I can't remember the exact numbers, but I believe wheat used to have about 8 chromosomes and now it is up to about 40. It has been quite modified. I would not be surprised if this has caused it to affect more people as it's not exactly natural anymore. but celiac has been around for a good thousand...
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