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nvsmom

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by nvsmom

  1. Well, they're referring me to endocrinology.... Maybe I'll find out some more answers by the new year.
  2. I doubt that will be a common problem amongst celiacs or those with NCGI. Autoimmune diseases tend to age a person. I'm a bit stooped from back issues, have thinning hair, acne... not things that help us look young. Sun tanning could give you some wrinkles...
  3. ((HUGS)) How is your thyroid? Hypothyroidism can slow one's metabolism by over 15% (I believe that was the number I read but I can't for the life of me find the reference). I was hypo for 15 years, during which time I felt slow, tired easily and tended to consume caffeine and extra calories in a bid to boost my energy levels... it didn't work. If you...
  4. High IGF-1 can be good but elevated levels can be serious and triple your mortality rate. It also causes snoring and sleep apnea because of increased tissue growth, which can be slightly disfiguring.... Moderation is best for IGF-1, IMO. I'm not sure what you are getting at about the low stomach acid. I have not done an OGTT for GH suppression...
  5. It is entirely possible that you are having a reaction to buckwheat. Celiacs commonly react to other gluten-free foods (like buckwheat).... Unfortunately. I guess all you can do is avoid the buckwheat for a time and maybe try it again in a few months. Good luck. I hope you feel better soon.
  6. I've been having some strange blood tests and I'm trying to find the root cause. I mentioned this problem a few months ago in another thread but I'm still chasing it and trying to figure it out, so I thought I'd put it out there and see if anyone knows about it around here... I do doubt it's celiac related though. In the spring, a doctor I went to discovered...
  7. I don't think my mom has had any side effects but it's hard to say. Her teeth are quite stained but that could be from tea.... I don't really know. Your tests look negative to me too. tTG Iga is low, and your IgA is a good number. Looks like an accurate test for a gluten-free celiac. LOL I would go through everything with a label that you are eating...
  8. If you do use it, be aware that the gum is hard to give up. My mom quit smoking 20 years ago and has been chewing the gum ever since...
  9. Kraft is really good about disclosing possible gluten. You can trust them.
  10. I don't know a lot about leaky gut. The theory behind it makes sense to me - I would guess it will be more medically accepted in a few more years. I don't see how trying to heal a leaky gut could hurt you so you might as well do what you can for yourself.
  11. I don't know a lot about genetic testing. I believe most celiacs have the gene pairs but not all do. They are just the gene pair that is most common. I know I have seen at least one board member that has celiac even though they know they do not have the usual genes for it. It does mean that you are less likely to have celiac disease though. Going gluten...
  12. I too have had a lot of joint pain without swelling. I also suspected lupus although they rheumy I saw in the spring says my problems are still celiac related. The problem with fatigue and arthralgias are that they are common to many health issues (as you know). I also have thyroiditis and that could also be at the root of the fatigue and/or pain. celiac...
  13. We have used Daiya shredded cheese substitutes for months and never had a problem yet... or at least anything that we have noticed. We'll keep using it. My son is dairy free (and has a nut allergy) and it's the only way he can have his pizza or mac n cheese now a days. I like it sprinkled onto an egg bake or in tacos.
  14. I like Greens too. I tried Dauruma (I can't remember the exact spelling) almost a year ago. It said it was gluten-free so I grabbed it and I realized halfway through the bottle (I'm a slow drinker) that I was being glutened - It was one of those beers started for barley that is "supposedly" gluten-free to 6ppm. I reacted strongly to it. Personally...
  15. 81F? Sigh... We've got more snow predicted for this week. It's about -10C right now. My crocuses are just starting to come up! LOL
  16. I think you might as well get tested for Lyme while continuing the gluten-free diet. In Alberta, those Lyme tests can take weeks to get back, and I think you should give the diet a bunch of more time. I have/had pretty severe joint pain on and off for years; it would flare up badly, last a few months and then hang around as stiffness. It would be bad...
  17. If you look into research on diet and autism, and in books on treating autism, you will find more info there.
  18. I noticed a great difference in my oldest son (10), who is also rather bright and has mild aspergers. Before going gluten-free he would get overwhelmed much more easily. If we had more than a couple of people over we could almost count on a meltdown, but now he handles the noise and people very well (although he will still often disappear for a few minutes...
  19. I get bloated prior to my period, which feels like a glutening in some ways. That'salso the only time I get migraines now (used to have them frequently), and i get that heavy fatigue back. I KNOW it's not gluten though because I control my entire diet; I don't eat fast food or go to a restaurant more than once every month or so. This month was worse for...
  20. I've had a LOT of sciatic pain over the last 10 years with bulging discs. Eventually one of my discs burst and pinched off and killed the sciatic nerve that was causing me the most problems. It caused some paralysis down my leg right to my big tow... on the bright side, it doesn't hurt anymore in that spot. LOL I do wonder sometimes if the sciatica was...
  21. With hemorrhoids, if your bowels get really irritated, like with diarrhea or constipation, bloody stools can happen. It can range from a bit of red on the tissue paper to full on disturbingly red toilet bowl water. Could it be a hemi? They're harmless, just a, well.... pain in the butt. I hope that's all it is for you. Best wishes.
  22. Your joint pain sounds a LOT like mine. I creak and pop, rarely swell, and the pain moves after staying in one location for a few months... usually. It began in my early twenties and comes back every few months but some of the pains stick around now; for example, I haven't been able to lift my left arm over my head without pain for six months now. When...
  23. Yeah... not many people get a positive tTG IgA if their IGA is low. Your blood tests are very positive. Your doctor may or may not order a biopsy to confirm; not all doctors do it now a days. If he wants to biopsy, you'll have to decide if you want it or need it for a firm diagnosis. It is usually recommended that you continue eating gluten until you are...
  24. LOL That's brilliant. I don't think I would have caught that!
  25. I was an undiagnosed celiac until I was 38 so I was eating gluten while pg with my children. My oldest son, we are just now starting to realize, seems to have a problem with milk. He told me he sometimes gets stomachaches after drinking milk, and often gets headaches. He has a few other health problems which has prompted me to start him gluten-free even...
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