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nvsmom

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Latest Celiac Disease News & Research:

Everything posted by nvsmom

  1. nvsmom
    If you are treating yourself as a celiac would, there is no great need to get tested. Just tell all doctors you see in the future that you are a celiac so they treat you well, and make sure your pharmacist knows too. Best wishes.
  2. nvsmom
    I agree. It looks like she does not have celiac disease. The tests are not perefct for young children though, so if you suspect celiac disease, I would consider the gluten-free diet.
  3. nvsmom
    Understandable. Perhaps give him most of his gluten later in the day so it doesn't impact his waking hours as much.
  4. nvsmom
    I agree. A face to face meeting can only help, and adding oats to the list is a good idea. I tend to ask that my kids not be given any food and send food along with them. When they go to camp, I sent them a tonne of extra food, from grahm crackers to buns to premade sandwichs to muffins) so they would be safe. Will your daughter speak up for herself there...
  5. nvsmom
    I'm a celiac and two of my boys had celiac disease symptoms (including my oldest who has (formerly known as) Asperger's) but they tested negative on their only celiac disease test, the tTG IgA. I knew those tests could miss some celiacs, especially the newly developed disease, so I made them gluten-free anyways and I'm glad I did. Their symptoms "coincidentally...
  6. nvsmom
    I'm going to give them a few years to get their gluten-free act together before I dare try their gluten-free Cheerios I think.
  7. nvsmom
    Waiting is stressful. Hang in there.
  8. nvsmom
    Ditto everything Cyclinglady said. It's hard to say for sure if it is celiac disease unless you know what test was done. If it was the antigliadin antibody (AGA IgA) then it probably is celiac disease (such a high result), but if it was the deaminated gliadin peptide (DGP IgA) then you do have celiac disease - it is a very specific test. I too think you...
  9. nvsmom
    Agreed. Keep eating gluten until those tests are done. And let us know how the tests go. Good luck!
  10. nvsmom
    ((HUGS))
  11. nvsmom

    ARCHIVED Can I live?

    nvsmom replied to Nelly's topic in Coping with Celiac Disease

    That was me. I was 5'8", and on varsity teams in high school even though I had stomach aches a few times a day and had migraines... I think I was a bit more fatigued than average too because I would love to stay home and rest rather than stay out too too late. My ITP developed when I was 18. I had been working for 8 months and saving for a trip to Europe...
  12. nvsmom
    I like to use myfitnesspal to log my foods. It gives me a rough idea of my macros and calorie counts. It could be a good tool for you to use.
  13. nvsmom

    ARCHIVED Anxiety?

    nvsmom replied to Victor10's topic in Coping with Celiac Disease

    Glad you are feeling better. I doubt your symptoms were from malnourishment, but rather from a possible few sources: Perhaps you were not eating enough for a few days (especially carbs), and your body switched to ketosis (fat oxidation). Unless you up your electrolytes (sodium, magnesium and potassium), lowering your carb intake will result in wtaer lost...
  14. nvsmom

    ARCHIVED Can I live?

    nvsmom replied to Nelly's topic in Coping with Celiac Disease

    Like the others said, you can ignore it but things will get worse. They will. Some symptoms may become permanent and you could develop life threatening conditions. I developed ITP, which almost killed me and hashimoto's too. Those are with me forever. My hair thinned and never really came back thick again. I had joint issues that have resulted in arthritis...
  15. nvsmom
    I know of one woman that happend to. A positive Biocard and a negative doctor test (both tTG IgA). It appears that she had Lyme disease. A serious infection can sometimes cause a false positive tTG IgA test, as can diabetes T1, liver disease, hashimotos, crohn's, and colitis. False positives are thought to happen only about 5% of the time though. I hear...
  16. nvsmom
    I will also add that switching to a LCHF diet reduced my appetite and cravings for carbs, and I've lost about 30-35 lbs in 3 months, without much effort even though I am now at a normal BMI.
  17. nvsmom
    Hashimoto's thyroiditis and type 1 diabetes are the autoimmune diseases most commonly co-occurring with celiac disease. I have hypothyroidism; my thyroid barely works. I also have prediabetes, so I make too much insulin and would often have some large blood sugar spikes. I've fixed that problem by eating a low carb high fat diet. If I don't eat the carbs...
  18. nvsmom

    ARCHIVED Celiac and Acne

    nvsmom replied to von's topic in Related Issues & Disorders

    Do you think it could be sugar related? Many gluten-free products are higher in sugar... I recently cut sugar from my diet and was shocked at how my skin cleared up (it had become acne prone in the last 10 years).
  19. nvsmom
    Chances of Hashi's causing a false positive ttG IgA is less than 5%. The tTG IgA (tissue transglutaminase) is very similar to the EMA IgA, but the EMA IgA tends to detect more advanced disease. In fact, many doctors will not run the EMA IgA untila after a patient has had a positive tTG IgA. I have Hashi's too. My EMA was normal inside of a year gluten-free...
  20. nvsmom
    A positive tissue transglutaminase is never caused by non-celiac gluten sensitivity I'm afraid. The tTG IgA and tTG IgG indicate that the intestines are being attacked and damaged by the immune system. Although it is usually the tTG IgA that is positive rather than the tTG IgG, it is still a highly specific test for celiac disease - especially when it is...
  21. nvsmom
    Yep, that's pretty positive. Five times above normal. Ah yes, evil pumpkin spice latte....Well, on the bright side, it is often easier to stay away from risky cc situations when the symptoms are obvious. I think it can be tough to stay gluten-free when you don't feel this disease. KWIM? Hang in there. You'll have the hang of this diet before Xmas rolls...
  22. nvsmom
    Your deaminated gliadin IgA (DGP IgA) is the misfit. Just remember that a positive is usually a positive for celiac disease. The DGP IgA is a good test. I would trust it. It sometimes catches people who were negative in the tTG tests - it's good for that. One of our moderators had that experience. I'll see if I can send her this way. Don't make yourself...
  23. nvsmom
    I did the Biocard test. Mine was positive too although not as dark as your line. I took my result to the doctor and he tested me too. He ran the exact same tests as the Biocard: the tTG IgA (tissue transglutaminase Immunoglobulin A) and the IgA serum (which is the control line). My result was >200 with a normal range of 0-20. I may have been 201 or...
  24. nvsmom
    Yeah... Usually false positive are pretty weak. I have celiac disease, Hashi's, and ITP (and I still suspect MCTD or something similar). My ttG IgA took over a year to get back into normal, and then it was still a high normal for another year. My Hashi's might have kept it up a bit, and even now it is about a 5 out of 14 - still not super low. You'll...
  25. nvsmom
    If you had an abnormal test, it is probably celiac disease. Not many celiacs are positive on all tests. I would put them in the minority. So which test was positive? A tissue transglutaminase, endomysial antibody, or demaninated gliadin peptide positive is pretty much a sure thing. So, just another week or two of gluten? Good. Make sure they take at...
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