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nvsmom

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Everything posted by nvsmom

  1. nvsmom
    I wanted to look into the FODMAP for me and my kids, and I was wondering what the best book for the how's and why's of this diet is. Any advice would be welcome.
  2. nvsmom
    Yes, your tTG IgG is a strong positive so you most likely have celiac disease. Also to note, your Immunoglobulin A, Qn, Serum (or total serum IgA) is low. This test is run as a control test for celiac disease because if you have low IgA, which 5% of celiacs do, the all of your IgA based celiac disease tests will result in a false negative even if...
  3. nvsmom
    Blue cheese does not have much milk sugars (lactose) but there is some. If you were very sensitive to lactose, it could be the cause. If the blue cheese was labelled gluten-free it was probably safe but some blue cheeses can contain gluten. It might be a good idea to look into it though. Some products are labelled gluten-free although they may...
  4. nvsmom
    Yes, get as many celiac disease tests run as possible because false negative are not rare. These are all of the tests: tTG IgA and tTG IgG DGP IgA and DGP IgG EMA IGA total serum IgA (control test) AGA IgA and AGA IGG (older and less reliable anti-gliadin tests) endoscopic biopsy (6+ samples taken) dh biopsy (beside the rash, not on it) From what I know...
  5. nvsmom
    Ditto everything Ravenwoodglass said. Get all the celiac disease tests done because each test can have a false negative rate as high as 1 in 4. The tests you want are tTG IgA and IgG, DGP IgA and IgG, EMA IgA, total serum IgA and maybe the old AGA IgA and IgG tests. You need to be eating gluten in the 2-3 months prior to testing so don't go gluten-free...
  6. nvsmom
    LOL Good.
  7. nvsmom
    Sterilized? Gluten isn't a bacteria and can't be killed... A really really thorough washing could get it clean enough to be gluten-free but....
  8. nvsmom

    ARCHIVED Time To Lose

    nvsmom replied to nvsmom's topic in Related Issues & Disorders

    Ugh. I started a workout program this morning: P90X30. It is a P90X, which I did a few years ago then quit due to an injury, but it is only 30 minutes long. It was a humbling experince. Hopefully it will get easier as I lose weight.! The last couple of weeks I have eaten whatever I felt like, and I'm feeling it. Blah. Now I am easing back into low...
  9. nvsmom
    Lactose is the sugar found in milks. Hard cheeses will often be lactose free, or very low in lactose, so they are often not a problem. I chose to go forgo cheese for 6 months just to give my body a chance to heal without any added stress. I did occasionally have a small bit of cheese along with a lactase pill, and I was fine. Yogurt, on the other hand...
  10. nvsmom
    I thinks ome people just don't care to take control of their health. It is like the type 2 diabetic who still eats any sugars he pleases even though he knows he shouldn't. For some, their health isn't important... That felt so odd to write! LOL
  11. nvsmom
    Best wishes!
  12. nvsmom
    It wasn't thoughtful but I would not be upset by it. Some people, and I was one like that, think immediately of the foods one can't have and get stuck there. Sort of like: Oh, he can't have peanuts so what will I feed him for lunch if he can't have peanut butter and the jam and butter is contaminated? We can't have sandwiches so what will we do? KWIM? They...
  13. nvsmom
    The others gave great advice. The only thing I would add is to have his nutrient levels checked and possibly check for anemia (most common celiac disease symptom now). The nutrients to check are D, B12, Fe, ferritin, K, Mg, Ca, A, Cu, and zinc. Some celiacs need to be prescribed high doses, or injections, of some of those vitamins until they are healed...
  14. nvsmom
    I too would eliminate dairy. Intestinal damage can cause lactose intolerance so once she is healing, 6-12 months from now, you can reintroduce it then. I too had an issue with dairy and I found the pain similar to that caused by gluten. I can now have some sources of dairy but I still keep it to a minimum. Best wishes.
  15. nvsmom
    I was at someone's house over the holidays and they were telling me how they had had a celiac over for Xmas dinner and he ate the stuffing and turkey because "it looked too good to pass up. Now thanks to him our friends don't take the diet as seriously - I felt the mental eye rolls when I wouldn't eat the rice crackers that were mixed in with the regular...
  16. nvsmom
    Hope it doesn't get bad for you.
  17. nvsmom
    I've heard that too... I wonder if they'll label it as an autoimmune disorder some time in the future, if it is in fact an autoimmune reaction causing it.
  18. nvsmom
    I understand about doctor anxiety, I'm the same way. I have to take notes for myself to read from, and if a have a bunch of issues, I make my doctor a copy to read too. I hope your mom can join you there, support is always helpful. If the doctors won't diagnose you with celiac disease, and gluten is an issue, see if they will consider a diagnosis of...
  19. nvsmom
    Good stuff, Scott. My kids took a minor gluten hit on New years Eve. We had a bunch of families over and went sledding at a near by hill. When we got back I was saying goodnight to a few families so I was slow to get into the house. By time I came in a girlfriend had opened up a bag of BBQ chips and the kids were getting into it. Their mood...
  20. nvsmom
    Something you can keep in the freezer is a good idea. Gluten free flours like rice don't keep as well on the counter as wheat flour would.
  21. nvsmom
    My problem is that if it is in the house, I WILL eat it. Not gluten but junk, so the secret for me is to not have it in house. I can only go shopping when I am not hungry or I cave in and buy stuff I should not. Don't have it in the house, and by "it" I mean sugars and many starches - they'll take you on the energy roller coaster ride and eventually you'll...
  22. nvsmom
    Yep, she is missing a bunch of tests including the deaminated gliadin peptides which are the best for detecting celiac disease in children. She needs to get these done: DGP IgA and DGP IgG EMA IGA (similar to the tTG IgA and unlikely to be positive) total serum IgA - a control test AGA IgA and AGA IgG (antigliadin antibodies) - older and less reliable...
  23. nvsmom
    Going gluten-free is a good idea. Non-celiac gluten sensitivity (NCGS) is much more common than celiac disease but has most of the same symptoms, and they aren't all GI related. Give the diet at least 3-6 months before you decide on it's effectiveness; some symptoms are slower than others to improve. A food and symptom journal is a good way to track slow...
  24. nvsmom
    The tests you could have done are: tTG IgA and tTG IgG (tissue transglutaminase) - most common tests DGP IgA and DGP IgG (deaminated gliadin peptides) - newer tests that are better at detecting early celiac disease EMA IGA (endomysial antibodies) - similar to tTG IgA but detects more advanced damage total serum IgA - a control test - 5% of celiacs are deficient...
  25. nvsmom
    Like Ravenwoodglass said, a positive celiac disease tests almost always indicates celiac disease. Some doctors want all tests to be positive (and the stars and planets to align) before they will diagnose celiac disease, which is a problem because the tests do have quite a few false negatives (up to 25% in the newer tests, and up to 20% in the biopsy). Not...
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