Jump to content

darlindeb25

Advanced Members
 View Profile  See their activity

  • Posts

    2,063

  • Joined

  • Last visited

  • Days Won

    1

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by darlindeb25

  1. darlindeb25
    thank you for responding and donna---its the burning sensation--not DH--I have had it on my elbows a few months back---now that i realize neuropathy can effect your face, i also realize this is the same burning i felt on the balls of my feet when i was working my last job----i just recently started taking a B complex vitamin--does anyone know--is that enough...
  2. darlindeb25
    morning everyone----do any of you here also have neuropathy too---i do and i was just wondering if any of you have experienced burning face pain with it--at first i thought it was an allergic reaction, but from others i am hearing it just may be my neuropathy flaring up---my face burned so bad all day yesterday, yet didnt get red nor feel hot to the touch...
  3. darlindeb25
    michael--the light changes--on some days its very bright and some days it seems so far away--cleiacs sounds simple to deal with, but its a job--a constant vigiliance over your food, always needing to read ingredients before u open your mouth----its always on your mind--it has to be on your mind----keep at it--deb
  4. darlindeb25
    the GI is only guoting what he thinks he knows--there is no average time frame for us--if you are feeling better, then you know it is working--it takes time to get the poisons out of our systems---some celiacs need to go dairy free until the villi repairs itself---are you sure you are totally gluten free--are you checking the ingreds on your shampoo, soaps...
  5. darlindeb25
    i get canker sores everytime my tummy gets upset--i was always told they are caused by the stomach acids-------and kathleen--i read that for us celiacs or gluten intolerant that gluten is an addiction and that could be why you are craving deb
  6. darlindeb25

    ARCHIVED Takeaways

    darlindeb25 replied to a topic in Gluten-Free Restaurants

    michael--i have been gluten-free now for almost 4 yrs and in that time things have changed a lot--when i first went gluten-free, it was rare to have anyone know what celiacs disease is and now i am finding more and more people are aware of it--with time, i am sure there will be more and more food for us out there and time is all we have for now--we do what...
  7. darlindeb25
    that is weird, how are you feeling now--has the fog left---i am allergic to soy and an very corn limited now too, i also have problems adding vitamins--a good multi vitamin is ok, but i cant add calcium and now i am wondering if my B-complex is more then i can handle too-----it would be nice if it was just soy and corn for you----deb
  8. darlindeb25
    i found this out the hard way--i was using their lavender lotion and the itching began--i loved the scent, but i threw it all out--i dont normally have DH--only one incident on my elbows a few months ago--but i do get hives from lotions with wheat, barley, or oats in them---deb
  9. darlindeb25
    i have always been allergic to smoke--well, i suppose i have always been gluten intolerant too, i was sick for yrs and yrs, but i knew i was allergic to smoke---my eyes swell, my nose starts running and then my eyes, and i get a terrible headache--no one smokes around me, was never allowed to smoke in my house--i have 5 kids and only 1 smoked and has quit...
  10. darlindeb25
    here's a good one to start with mela: Open Original Shared Link mela, i was just in another forum and i found this website--this is a good one too: Open Original Shared Link
  11. darlindeb25
    yes mela--i am corn limited--i cant use corn flour or corn meal--my sister says that some people who cant tolerate corn flour can use corn starch, but maybe you cant--there is a very good website for you to go to, i just have to find it--i will email it to you or put it in here for everyone--duh deb---anyways--it could be your meds---deb
  12. darlindeb25
    well maggie--here we go again---ME TOO---most of my life, more so as of the last several years---years ago i was told by the doctor that i was born with a malformed esphogas---i too choke on food--some foods more so then others---the worst food for me is some puddings, pineapple, bread, and meats-----my dad has the same problem and so does my sweetie at times...
  13. darlindeb25
    i'm not sure how to answer this or if i am answering it in a way you want---i went undiagnosed for years, probably 20, at the very least--i think pregnancy twiggered my celiacs and my oldest child is now 30--i have been gluten-free now for almost 4 yrs----nerve damage???????? do you considered neuropathy as nerve damage--i was diagnosed with carpal tunnel...
  14. darlindeb25
    i have been gluten-free since july of 2001---my sister is celiac and now my father has been gluten-free since nov and he will be 70 next month--my sis is 46 and i am 49---we probably all have been celiac since young---my sis and i have always had problems and no diagnosis---my dad has always had stomach problems--i remember him taking little pink stomach...
  15. darlindeb25
    Megan---are you taking any kind of medication that may contain gluten--even something as simple as an aspirin that contains gluten can be a problem--medicine does not follow the same guidelines as foods do?????????? Deb
  16. darlindeb25
    well--you can be celiac and not have full blown damage in your intestines as of yet, or the scope may not have found the damages area, that's always a possibility too----the difference between the 2----a sensitivity means just that--you are sensitive to gluten and in my opinion should go gluten free--i also feel that gluten sensitive and intolerant go hand...
  17. darlindeb25
    my sister was diagnosed at 43 yrs old--me at 45 and my dad just in nov at 69 yrs of age------celiacs plays no favorites with age, sex, even race sometimes---if i can be any help--let me know--i have been gluten-free for almost 4 yrs now---deb
  18. darlindeb25
    most of these sites have food list and pharmacutical lists---i know www.clanthompson.com has a list--but as always--you should call the company and find out if the product is gluten free--medicines do not fall under the same guidelines as foods do, so you have to be even more careful with them-----deb
  19. darlindeb25
    we all know the feeling---sighhhhhhhhhhhhhhhhhhhhh----deb
  20. darlindeb25

    ARCHIVED Scare Tactics

    darlindeb25 replied to a topic in Doctors

    michael--we are all in this together and i can understand why you are upset right now--i get the same way--i have been the same way for the last 2 weeks and i have been gluten-free for almost 4 yrs now---somedays i stomp my foot and say, "take it away, i dont want celiacs anymore!"--we will help you through this--otay--deb
  21. darlindeb25
    my sister told me to try the calcium chews because calcium tablets bother my tummy, she is celiac too and has used them--so i know they are gluten-free, as for the others, i dont know------last night i was in a CVS pharmacy and found that CVS vitamins are gluten free and dairy free--they state it on the bottles, just like the nature's way i have always used...
  22. darlindeb25

    ARCHIVED Scare Tactics

    darlindeb25 replied to a topic in Doctors

    michael---ummmmmm be upset with your doctor---i just sent my son, another michael, to his doctor--he requested that he be tested for celiacs and diabetes and do you know what that doctor said to him---"Umm Mike, I dont think you have symptoms of either, just regulate your diet!"--REGULATE YOUR DIET---what does that mean and no, he did not tell mike what that...
  23. darlindeb25
    so alex do you make your own breads--this is very interesting to me--i havent been sleeping well and i to am very wide awake around 3 am--what do you eat--i have been gluten-free for almost 4 yrs and i still am learning thanks, deb
  24. darlindeb25
    me too---if they are touching, there is cross contamination going on--i know, not fair, but taking a chance is taking a chance--i have found that barley doesnt cause a reaction with me, but--just because i do not get physically ill does not mean they arent inside causing damage anyways--i was accidentally eating gluten in butter toffee flavored quaker cracker...
  25. darlindeb25
    i cant remember how many kinds there are but the original cadbury egg that looks like a real egg inside is gluten-free and so is the caramel one---i have had them--had one last week-----deb
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.