darlindeb25
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Latest Celiac Disease News & Research:
Everything posted by darlindeb25
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ARCHIVED Am I Going Crazy?
darlindeb25 replied to singswtharmony's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
give your body time caitlin--it needs time to get to feeling better--the poisons are still leaving your body--some people feel great in only 3 weeks, some it takes much longer--just keep your chin up and stay gluten-free--its the best thing for you--deb -
ARCHIVED Obstacles Faced By Celiacs
darlindeb25 replied to ResearcheringCeliac's topic in Coping with Celiac Disease
yup--tiffany is so correct--i would like to add one more thing--gluten free is hard enough and she is correct--people dont want to understand--we always hear--just one bite wont hurt--come on, one time----well, it does hurt and sometimes its almost unbearable the pain we feel---then when you add other intolerances to this formula--like soy and dairy--it gets... -
ARCHIVED Is This Normal
darlindeb25 replied to a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
terri, terri, terri----i guess you learned an important lesson huh i think we all do that--i can honestly say i have never glutened myself on purpose--i was so sick before gluten free that i was never tempted to cheat---------and yes--the panic attack is normal, at least for some of us celiacs--some of us are more prone to panic and anytime i get glutened... -
barb--in the beginning when i was first going gluten-free, i had this kind of pain too--i would even have the pain in dreams and wake crying from the pain--it did get better until i developed an intolerance to soy--when i get too much soy in my system now, the same pain returns and with a vengence--so maybe you are dealing with an intolerance that you havent...
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ARCHIVED Hi, Introducing Myself.
darlindeb25 replied to a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
connie--if my memory serves me--many type 1 diabetics also have celiacs, but most celiacs who go gluten-free and stick to the diet can most times not develop type 2 diabetes--i think anyways--you may want to read more about this--google it and see what you find--celiacs + type 2 diabetes--i do know that kids of type 2 diabetics are more prone to the disease... -
ARCHIVED Testing And Symptoms
darlindeb25 replied to HMC's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
well--if i were you i would go completely gluten free--if you already are feeling better then it must be helping--the diarrhea may take a while to completely go away and you do have to make sure you are removing all gluten from your diet--there is no almost gluten-free with celiac or gluten intoleranall the way or nothing--otay--feel better---deb -
ARCHIVED Is Viva Cottage Cheese Gf?
darlindeb25 replied to HAPPY DOG SUZ's topic in Gluten-Free Foods, Products, Shopping & Medications
when i buy cottage cheese i look for modified cornstarch or food starch--if it says corn, then i buy it--if it says food starch, then i dont------i am having a hard time finding a cottage cheese on long island that is good--wish there was a kroger store here --but i wont give up the island for cottage cheese deb -
ARCHIVED Anything On Long Island
darlindeb25 replied to minibabe's topic in Introduce Yourself / Share Stuff
hi minibabe--where are you at--i found a support group here in suffolk county--they meet on higbie st on the 1st tuesday of every month--between montauk hwy and sunrise hwy--they are a very nice group of people--very friendly--if you would like more info--just email me at my aol addy--otay----i just moved to the island 3 weeks ago tomorrow--i love it here... -
ARCHIVED Need Help
darlindeb25 replied to muffin2's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
i agree with judy--there is so much out there that we can have--i too fall into that trap of fretting over what i cant have, but all i need do is remember how sick i was and i snap out of it---and muffin i was in that overweight group--well, i still am somewhat--i am in much better shape now--i have lost 60# over the last 3 1/2 years--i never could understand... -
ARCHIVED Wheat Allergy Mentioned On Sitcom.
darlindeb25 replied to MySuicidalTurtle's topic in Publications & Publicity
i think a whole bunch of us should send emails to the daily talk shows like oprah and montel and request they do a show on celiacs--if there seems to be a lot of interest, then they may just do one--that would be so good for the general public to see--dont you think? deb -
ARCHIVED Cold Season
darlindeb25 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
well--i got a new job and the 1st week there all of my new co-workers had colds, so, you guessed it --i got it this week--i went to CVS and i bought their maximun strength 12 hour decongestant and their 12 hour nasal spray--i know that body aches come with colds--but the worst of my body aches came after the worse of the cold symptoms were over with--everything... -
ARCHIVED Confusing Biopsy Results
darlindeb25 replied to sagapocristo's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
i wouldnt eat gluten if i was you, but that is up to you--your doctor is wrong though---40 is not too early to have celiacs--celiacs knows no age level--babies are born with celiacs, you are born with the gene for celiacs and it can be triggered at any point inyour life--read all the post in here and you will find lots of useful info--deb -
ARCHIVED Dry Skin
darlindeb25 replied to Tutahl75's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
yup--that's just one of the symptoms of celiacs, at least many of us have this problem---lotions that are gluten free of course and drink lots of water--just about all we can do--i always put lotion on after my shower and sometimes during the day if needed---my hands are the worst, they crack and bleed sometimes, especially in winter deb -
ARCHIVED The Silver Lining To Celiac Disease
darlindeb25 replied to Tricia's topic in Coping with Celiac Disease
it's always good to see the glass as half full and not half empty--i would rather not have celiacs, but i do and there is nothing i can do about it and i am so glad that i know what is wrong with me and can take care of myself so as not to be sick all the time deb -
i think it's a wonderful idea --could you open one here on Long Island in the Islip area --lots of us celiacs here --Denver is a bit of a drive for us deb
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ARCHIVED Gf Hair Care Products
darlindeb25 replied to debmidge's topic in Gluten-Free Foods, Products, Shopping & Medications
yup--pantene is all i use too--it's great and one of the few products that does a good job on all of my hair deb -
sue---you can call ahead and try to find out if there are things you can have on the plane, i dont know if you will find out anything--you can also pack yourself some things to eat while on the plane--if it's not a long flight, you will be fine anyways---take fruit along to eat--you could stir up some tuna or something and have it in a small lunch type cooler...
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ARCHIVED Newly Diagnosed Celiac
darlindeb25 replied to rmmadden's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
morning bob---all of those symptoms can be associated with celiac--even the panic attacks---i have been gluten-free for 3 1/2 yrs now and i find when i have sleepless nights now and joint pain, it's because i have gotten some soy in my system--i am now soy limited too--no mayo, no soy flour, no MSG (which is soy protein)be very careful of tuna in water, the... -
ARCHIVED How Reliable Are The Tests? Desperate!
darlindeb25 replied to dizzy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
well, we celiacs are not allergic to wheat, rye, barley, or oats--we are intolerant--there is a difference--celiacs is not an allergy--with an allergy, in a severe reaction, your breathing is effected, sometimes to the point that you cant breathe--that doesnt happen with intolerances--our bodies cannot tolerate these grains and our bodies fight the grains... -
ARCHIVED 3 Healthy Baby Boys 5, 3 And 1
darlindeb25 replied to missingmybread's topic in Related Issues & Disorders
you are so very blessed missingmybread---my sister and i both had difficult pregnancies--she lost her first baby at fullterm, her 2nd was born 6 wks early, the 3rd was 4 wks early-----my 1st was a normal pregnancy, but the other 4 were all difficult--i was sick most nights--the last 2 were the worst--and my last baby, my daughter, was born with a dislocated... -
it shouldnt--i worked at speedway and their hot cocoa didnt--i read it to be sure, ubt i never drank it--i dont like hot cocoa much--sorry-----deb
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ARCHIVED Multiple Food Allergies
darlindeb25 replied to jsib's topic in Parents, Friends and Loved Ones of Celiacs
i can help there too---tomatoes are a vegetable, but also considered a fruit--they are acid as are so many of the fruits--there is acid in many of the citrus fruits--so therefore, you could classify them in the same way now--did that make sense, i'm not sure it does to me deb -
ARCHIVED Pampered Chef Toaster Bags
darlindeb25 replied to gZimmiZ's topic in Gluten-Free Recipes & Cooking Tips
i just went to a celiac support group meeting here in suffolk county and we were each given one of these toaster bags--they are very heavy--have no holes in them and others there said that they work very well--i dont know i threw my toaster out a long time ago deb -
ARCHIVED 10 Months Gf -- And I Still Have Symptoms
darlindeb25 replied to celiac3270's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
i love your name kaiti--it's no one's business but yours and i agree with you, i like bush too, so much better then the alternative, we bush fans stick together --may not have anything to do with celiacs, but neither does darlindeb or lovegrov--this is a free country--you can have any name you want and any opinion too--keep your name and keep posting--dont... -
ARCHIVED This Gene Is Inherited From Where?
darlindeb25 replied to azedazobollis's topic in Coping with Celiac Disease
think i did read somewhere that more women have celiacs then men, but that may only be because more women will go to the doctor then men ---as for the gene--i never heard that one--i dont think it matters who carries the gene--while reading this forum--i dont think celiacs is picky about who it takes--men, women, teens, elderly, babies, toddlers--not choosy...