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anti-soprano

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Everything posted by anti-soprano

  1. anti-soprano
    Please find a new doc! My first GI doc was actually a very nice man who took a lot of time with me. He was looking for acid reflux issues, but took the time to look for autoimmune diseases (some general test that was elevated and then a specific test for lupus, which was negative). He was actually LOOKING for other things, but didn't think to do a celiac...
  2. anti-soprano
    Excellent points Lisa! A mixer with those tiny tines- I can't imagine being able to clean those well enough. I think I got slightly sick when my husband prepared a cookie mix using our pre-gluten mixer.
  3. anti-soprano
    Hello All, After an excursion to Italy (Rome, Florence, Venice) I wanted to share some things for those searching in the future. Some blogs that I had read before leaving made it sound as if I could walk into any restaurant and declare myself a celiac and they would at least not look at me as though I had three heads. Unfortunately, this is not true. There...
  4. anti-soprano
    I'm a huge Seinfeld fan and was probably thinking of Susan licking envelops when I wrote that as well! Thanks for introducing me to Tricia Thompson. I will definitely check her out. When so many little unrelated things turn out to be gluten related, I find it really difficult to separate celiac stuff from other medial stuff (or just plain over-thinking...
  5. anti-soprano
    Hi there, Positive Horn Player! So glad you added an update. I've been battling the big C lately. I've been abroad for almost 6 weeks now and I haven't been able to prepare one meal for myself. I buy things at the grocery store, but can't cook anything. Can't wait to come home to my own kitchen and I will probably order those recommended probiotics from...
  6. anti-soprano
    Ooooooo- thanks IH!!! It was just weeks ago when I found out I really could eat blue cheese, now I can also lick envelops till my heart's content! (This may sound sarcastic, but I am being completely sincere). You continue to be a fount o' knowledge for me!
  7. anti-soprano
    I don't think it could be the fork as long as it's washed... Do you take pills of any kind? Do you share food prep space with family or room mates? Do you ever taste soap, shampoo, or hand sanitizer? Chap stick? Do you lick stamps or envelops at work? Anything that goes in your mouth is a potential hazard- it doesn't have to be food.
  8. anti-soprano
    Hi All, I'm crashing the party only because the breathing thing is what gets me most. Short version: I was on acid reflux meds for 6 years and my GERD always seemed to escalate to the point where I needed stronger meds. I also chewed tums like it was my job. Last summer I was on 2 nexium a day (had to be specially approved by my insurance co.) and things...
  9. anti-soprano
    Thank you both for making me feel better! The redness and welts disappeared over the night and hopefully they stay gone. My skin still feels incredibly sensitive, though. It's amazing that mostly sugar and honey could have done that. Although I'm very glad the visible signs are gone, what I'm most upset about is the reaction itself to something I have...
  10. anti-soprano
    Ohh--- That's so good to know that Frankfurt airport has a Reformhaus! Thank you for the information. I'll be connecting flights there both ways. Just FYI for travelers checking this thread out in the future: I contacted the German Celiac society and they have a list of foods that are safe for purchase in the supermarket- updated yearly. Unfortunately...
  11. anti-soprano
    Fair warning: this is really more or less a self indulgent rant/itsy bitsy pity party. Tonight I used Nads to wax my face (sorry fellas). I have used it MANY times before, although I can't remember if the last time was before going gluten-free or not. After using it -all over my face I might add- I noticed welts forming on my skin. Immediately took...
  12. anti-soprano
    I have no idea what celiac can do to the stomach, but I can tell you about my experience. My first endo showed nothing but gastritis, I was having the test because I thought I had terrible acid reflux that wasn't responding to meds (Ha!). Since it showed nothing, the doctor did, well....nothing. 8 months later (different doc) I had another one with no...
  13. anti-soprano
    Thank you- I will write down the brands you mentioned and check everything else. Thank you for the warning about the nuts as well!
  14. anti-soprano
    YES!! But as a teenager working in two different spots, no one ever told me A. don't do that and B. why you shouldn't ever do that. Simply sad. Maybe it's better now 20 years later?
  15. anti-soprano
    Ahhhhh!!! We're twins. This is me at 9 months also. I've had three glorious non sick days since April 10th and I've had it up to here (well, you can't see it but my hand is above my head). I was a person who avoided the common cold for 5 straight winters. Although I had various maladies before being diagnosed, I was rarely sick or infected with something...
  16. anti-soprano
    Hello Gluten Stinks (great name!) and Michael! I wish both of you luck on your gluten-free journey. Michael, I'm a bit confused about how you've been avoiding gluten, but just now have gotten serious about avoiding wheat... cause gluten is in wheat. Maybe I'm missing something? It certainly wouldn't be the first time! But your statement makes me...
  17. anti-soprano
    I know y'all are talkin fries, but... When I was in school, at worked at both a Chuck E. Cheese and an Ice cream stand that sold mostly soft serve. At the soft serve place, they taught us if a cone didn't come out right, we could dump the odd looking structure back into the top of the machine (just the soft serve- not the cone itself) and recycle it. This...
  18. anti-soprano
    My favorite quick spots are: Chick-fil-a (as far as I know this is regional to the South). They don't put anything in their fryers but fries and their grilled chicken is gluten-free as well as many side items. Chipotle: Most of their food is gluten-free. Get the bowl- obviously. Oddly the guac is not gluten-free. Five Guys Burgers and...
  19. anti-soprano
    Hi Diana, Thanks for all the rotation info. It sounds like it helps you to pinpoint the foods that bother you. How long did it take to weed things out? When your tongue does swell, how long does it last? Do you also get swollen cheeks and lips? All I can see is the tongue scalloping. I can't see the lips or cheeks as visibly puffy, but I can feel that...
  20. anti-soprano
    Thank you cycling lady and Irish Heart for your feedback! What I have taken away from them in general is to have more patience. Cycling Lady- I didn't seem to be affected at all by the Cipro, it was really the Bactrim that did me in. Unfortunately, I confused the first symptoms of something going wrong with a glutening, so I took 3 doses of the...
  21. anti-soprano
    Usually, I research the issue I am having before I ask more questions. This time I'm just too overwhelmed to do so. Please forgive me for the repetition that will surely occur in this post. Background: My immune system has been through the ringer in the past month. A UTI that didn't clear with cipro, Bactrim for the same UTI, an accidental glutening...
  22. anti-soprano
    I have the same pain as cavernio described on my left side. It coincides with any type of inflammation in my gut, especially C and it also flared up with a UTI. If you suffer from C, consider probiotics, enzymes, whatever will get things moving and grooving. I am also going for an ultrasound within the month, but I doubt they'll find anything. It's fine...
  23. anti-soprano
    For the first couple months, I felt very fatigued. I stopped exercising because I didn't have the energy. Once I tried to go to yoga and push through the fatigue, ...I ended up injuring myself. This went on for months. The closest thing I have felt to it was when I had a partially collapsed lung. So I deducted that my body was in repair-mode and it was...
  24. anti-soprano
    So glad to see this post. I am teaching in Berlin for 5 weeks this summer. Unfortunately, we are staying in a hotel and I will only have access to a refrigerator- no microwave or stove for cooking my own food. The prospect of essentially eating every meal out is starting to weigh heavily on me. Unfortunately, I expect to be glutened often. I have found...
  25. anti-soprano
    Months on the diet and I still have C issues. I didn't even think my C was an issue/symptom before diagnosis because I thought it was just how my system worked. I take probiotics. I have tried three and the two I've tried with other vitamins in them (one specifically made for Celiac sufferers) made the C worse. Like I went to the doc to make sure the...
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