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guest134

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Everything posted by guest134

  1. guest134
    It is a genetic condition that is prevalent in first degree relatives so yes. I would recommend getting the Gene tests depending on their age. Although the Gene test would not diagnose Celiac it would be a good indicator of whether or not periodic blood tests are warranted.
  2. guest134
    Sorry to hear that, was the endoscopy today? If so how did it go? Mine is on Friday.
  3. guest134
    That comment was not directed at you Sarah. I know that there is a link to type 1, I was just saying not type 2 and not hypoglycaemia.
  4. guest134
    That is not correct. There is no correlation between type 2 diabetes and Celiac and there have been countless studies to show that. In all clinical studies done, it has the same prevalence in diabetes type 2 patients as the general population. Also hypoglycaemia is not even on the long list of 300 symptoms by the Chicago Celiac disease center and once again...
  5. guest134
    So that article begins by referring to refractory disease, that is extremely rare to begin with. The only example they have is one person who had refractory disease (where your intestines never heal) and not only that, a severe case. This person then develops lymphoma 29 years later, they have no way to prove that Celiac caused that. It then goes on to...
  6. guest134
    Looks like you are on the right track. So she has a slow progressing lymphoma, I wasn't sure as there are about 70 different kinds of non-Hodgkin's lymphoma, the aggressive versions are the most treatable and require immediate action, I thought that was the case with your grandmother. Since she has slow progressing lymphoma I take back what I said, perhaps...
  7. guest134
    Well, I am a male. Since I have been going through a possible diagnosis I have talked to several friends about it and the surprising consensus among my male friends is that they all have pains that come and go and they just ignore, a few of them even have daily pains. I might be diagnosed although I have no symptoms of celiac, my way of thinking is treat...
  8. guest134
    There is debate whether or not the diseases are more prominent in women or the fact that most men will ignore minor/medium symptoms. Since most autoimmune diseases cause very minimal symptoms until they progress in severity it is common for people just to think of a minor symptom as part of their life. It is also important to remember that autoimmune disease...
  9. guest134
    They don't do genes in Canada. It is possible to do it but you will have to send it to a U.S lab and must be prepared to pay an arm and leg (I am talking 500 to 1000 dollars).
  10. guest134
    Steroids in prolonged use can effect the results, I doubt that one time before would but I can't be sure on that. Flagyl would not cause false negatives, if anything it would cause false positives since it is notoriously hard on the small intestine. I am at a loss at this point, I am not sure what to make of results being so high than dropping, perhaps...
  11. guest134
    The deamidated version is more specific to celiac, the older anti-gliadin tests are not very accurate, especially the IgG version. However the IgA is still sensitive to celiac which is what came back high positive. These tests would be necessary for a more accurate diagnosis: Deamidated gliadin IgA Deamidated gliadin IgG Endomysial Ab As I said before...
  12. guest134
    Uhm those results are not negative, two are clearly flagged as "H" for high. Can you post the reference range of the tests? I am assuming the tests are the standard negative under 20, your IgA specific antibody reaction to gluten is high positive, and the tissue transglutaminase is also positive showing there is damage in the intestine. Put that together...
  13. guest134
    Lmao at looking like you are fine. I went into a clinic for a second opinion on my blood work and the doctor looked at me and said "You don't look like you have celiac" what on earth is that suppose to mean? It is my intestines that are damaged not my exterior!
  14. guest134
    I was scared of the possibility too at first, after all the research I did I realized it is such an easy disease to manage. To begin with you don't have to rely on doctors and medication, you cure yourself, naturally. I say cure because all symptoms and associated risks of celiac are diminished once clearing the body of gluten and your intestines heal. Also...
  15. guest134
    As some of you know I may be diagnosed with early celiac. If my ab's don't go down and it is proven celiac and we treat it am I still at risk for developing other autoimmune diseases? We already checked 15 different antibodies, negative for everything so as of right now it is just the possibility of early celiac. Thoughts?
  16. guest134
    Was the weight loss intentional? What is your labs free t ranges?
  17. guest134
    Perhaps you should try an alternate approach to talking to them? I find that often when people speak of informing their family of possible celiac they do it in a way that will naturally attract a negative response. Face it, no one wants to be told they have a chronic disease, especially if they have very little or no symptoms, so you are already working against...
  18. guest134
    Well you had 2 slight positives in relation to tissue damage, endomysial is about 97 percent specific and TTG 95 for celiac. Your intestines are damaged and in your case it is very likely due to celiac, however there were no gluten response tests done which is an important step prior to the biopsy. Did you have deamidated or anti-gliadin peptide tests done...
  19. guest134
    Gliadin IgG has a weak predictive element for celiac, many false positives. However the troubling thing is how elevated it is, usually false positives don't go that high. Ask your doctor for the deamidated gliadin tests both IgG and IgA, I will be very surprised if the biopsy finds celiac with a ttg of one over positive.
  20. guest134
    There is also a risk of death every time you cross the street, drive your car, get on an air plane, swim in a body of water etc... For the sake of your sanity lets keep to realistic happenings, your son may have a sore throat for a bit afterwords and may experience some discomfort but that is about it. Can you post his blood test results please? Doctors...
  21. guest134
    Ok well celiac is not an allergy so I have no idea what your doctor tested you for and it looks like he doesn't seem to know either. Please go in and demand copies of the tests and report back here, unless you have had every test I mentioned you will not receive a proper exclusion. Celiac is patchy and unless a doctor is scoping you knowing that he is looking...
  22. guest134
    Was a biopsy taken? The damage from celiac and many other intestinal issues can rarely be seen by the naked eye unless it is a bad case. What celiac tests did you get? Often doctors wont do the entire panel which is essential for proper diagnosis. Many members on this forum had issues with all sorts of foods prior to celiac diagnosis because the problem is...
  23. guest134
    30 percent of the North American population is estimated to carry the gene, only 1 percent will actually develop the disease, therefore even if they have the genes it is not diagnosis. There are studies that have shown that anywhere between 20-45 percent of people with a first degree relative that has celiac will also have the disease. I would say the biggest...
  24. guest134
    Hi Pam, Sorry to hear that you have been so unwell, your symptoms and clinical presentation definitely do match celiac as a possibility, it is important to tackle each issue full hand in order to get an accurate diagnosis or exclusion, celiac needs a close look to not get misdiagnosed. Please give us all results including the test name, your number, and...
  25. guest134
    I would agree that gluten is not your problem, if you feel the need to sleep and have mood swings after consuming carbs I would say you are more on the line of diabetic. If you had a gluten intolerance NOTHING but eliminating the food will alleviate your symptoms, the reason why many people are here is because there was no relief to any symptoms which lead...
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