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nettiebeads

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by nettiebeads

  1. nettiebeads
    try pm-ing "picture perfect". She's from that area. Do you have a set of the Triumph dining cards? They are well worth the money and have saved me from getting glutened on one occasion.
  2. nettiebeads
    I know exactly how you feel!! I finally decided to do pie crust. The first try wasn't too great, but did manage to do up a passable one. (by my standards. I'm a perfectionist when it comes to pie crusts). But the family couldn't tell the difference. Apple pie and pumpkin pie after 9 years!! I was in heaven! (and put on some weight, but I'm dealing with...
  3. nettiebeads
    One - he has dx'd himself through the diet challenge. That was good enough for my dr. 9 yrs ago and I'm not arguing nor have any desire to get a more "official" dx. I know I can't have gluten, period. No other drs since have argued with me on that. Two - and like nini said, the current estimate is 1 out of 133 probably have celiac, while only 1 in about...
  4. nettiebeads
    Please go gluten-free! I remember when I first started out on the gluten-free diet, I'd get the cravings so bad that I'd knosh on anything. Then spend way too much of my time in the bathroom regretting it. Eventually, by going gluten-free and staying that way, the cravings will subside. Replace the urge to snack with any good fresh fruit or veg, or pickles...
  5. nettiebeads
    The subconsious is so different than the waking mind when it comes to processing stuff. I used to have dreams about eating something I'm not supposed to have. I'll eat a piece of wheat based something in my dreams and then remember I have celiac and spit the food out and hope I didn't get enough in my system to make me sick. Then I'd wake up in practically...
  6. nettiebeads
    The tiredness could be due to a lot of factors. What is the protein level in your diet. A diet higher in protein than a regular diet is recommended to those with celiac. Have you been able to get a nutritionist to help you with your diet? Have you been through everything to eliminate gluten? Not just wheat, but barley, rye, malt, spelt, triticale, oats...
  7. nettiebeads
    It depends on the situation. I took a combination of advil and aspirin for a long time because of pains associated with my cycle. After 4 yrs of that I developed an ulcer. And eventually had a hysterectomy 3 yrs after that (Going to a male gyn is like taking your car to someone who doesn't drive). Anyhow, advil, aspirin, and Tylenol all work differently...
  8. nettiebeads
    Sorry, ROM - Range of Motion. You would periodically straighten out your knee, almost hyper extending it while sitting in a chair, and then pull back as far as you can to keep the joints lose.
  9. nettiebeads
    My dr agrees with me that the tests just aren't sophisticated enough yet to get all of the answers. But you've proved your point with the diet challenge. I still can't understand why so many dr's want to be able to fix things with meds or surgery or some sort of regime while the diet works wonders!!! It's a good thing you have enough sense to listen to...
  10. nettiebeads
    The women in my family have a history of knee aches. Walking is the best for me, but like you when I'm glutened they are super achey! Usually some ibuprofen works. My mother swears by that glucosinate/chro-something something. But that's also hard on the tummy. Do you do ROM's during the day? Annette
  11. nettiebeads
    Have you tried citrucel? My gi recommended it (he uses it) and it's gluten-free. It helped me tremendously when I was having real problems with constipation. After I got rid of the hidden gluten in my diet, I haven't had any problems except when i eat too much cheese. I'd start out with one capsule in the a.m. and one in the evening. If that didn't do...
  12. nettiebeads
    anything fresh!! Ooh, you are so lucky! Of course, wonton wrappers and such are out. Read the labels (if you can) on the sauces and stuff. Have your friend translate for you. If they have a good soy sauce (not made with wheat - just the fermented soy) snap it up!!! That would be my plan if I could go.
  13. nettiebeads
    My experience - was the jambalaya a mix or from scratch? I went to a restaurant and fortunately I had the dining cards - was going to order the beef tips but was told that the meat came pre-marinated with teriaki sauce - it wouldn't work for the gluten-free diet at all! I was watching "modern marvels" on the history channel and found that now days beef...
  14. nettiebeads
    I've been taking L-glutamine faithfully and it has cut down on my physical reactions immensely (the D and C). But I still get real achey legs and horrible fatigue with some brain fog. The L-glutamine really does help with gi health. It was mentioned quite awhile back by one of the regulars. Annette
  15. nettiebeads
    I'm Lutheran, so I'm able to substitute any non-leaven cracker for the communion wafer. I've been using Ka-me rice cruunch crackers, plain. I would break one up and give a small portion in a wax paper envelope that I'd staple together to my pastor for him to bless with the rest of the communion wafers. And only a small portion since the wine in the individual...
  16. nettiebeads
    Some posters here have leaky gut syndrom. I don't understand that too well, but it happens after your intestines have been damaged for a long time. I use L-glutenate - I read that it is very good for celiacs from another poster on this board. It really does work - I know I got cross contaminated at Christmas at my db house but the physical effects were...
  17. nettiebeads
    That sounds like a very good plan. How long have you been gluten-free? How long were you sick before dx? And are you sure you've eliminated all gluten? The crushing fatigue plus the mood swings are the worst symptoms for me. I always feel like I should get so much done around the house and when I've been glutened I'm in bed as much as possible for at...
  18. nettiebeads
    Thanks for the info. I was afraid of that. They can modify for diabetics and others, but those with celiac disease are left hanging in the breeze. Personally, I was thinking of the glycemic index.
  19. nettiebeads
    Cold sores or herpes simplex 1, are caused by a virus. I've had them since I was 5 or 6. But what is connected (I think) is the amount and severity of outbreaks and celiac. For awhile when I was under stress and I know I was cross-contaminated (family of 4 kids) my cold sores would be quite severe and come one after another. I even had to get prescription...
  20. nettiebeads
    I am slightly versed in human resources. How big of a company do you work for? If it has over 50 employees you would qualify for leave under the FMLA. I understand about your worrying about insurance - can't be without it! My dd is and I'm paying her med bills while she's in college. How long have you been gluten-free? Are you still getting glutened...
  21. nettiebeads
    Oh yeah, that is not at all unusual. My symptoms vary to right off the bat to 24 hours, and then the symptoms vary so it's hard to pinpoint the culprit. As a matter of fact, it took me months to realize that the styrofoam tasting wafer at communion was wheat! DUH! Now my symptoms are more neuralogical (brain fog, headache, crushing fatigue) than physical...
  22. nettiebeads
    I'm sorry you feel that way. I've been dealing with celiac for 9 years now. It's a matter of attitude - really it is. So long as I haven't been glutened, I feel just about normal. I see a couple of ladies at work that are younger than me who are in pain nearly constantly from rhumatoid arthritis. And on cold rainy days one of them can barely walk! See...
  23. nettiebeads
    Don't know about the multi-vitamin, but I do use Equate maximum one daily (multi-vit and mineral) and haven't seen anything on the label indicating gluten, nor have I had any reactions to it.
  24. nettiebeads
    Hi and welcome to the board!! The depression, asthma, bipolar and your gallbladder problems may have all stemmed from undx'd celiac disease, or maybe they caused the celiac disease. Anyhow, you are already on your way to a healthier you. But the problem is no wheat diet means you can still be ingesting gluten! You also have to eliminate rye, wheat varieties...
  25. nettiebeads
    I wouldn't worry too much. Even failures can be reused as bread pudding or trifles. Quick breads and muffins are usually pretty safe.
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