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nettiebeads

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by nettiebeads

  1. nettiebeads
    It's a malt beverage and as far as I can tell it's off the list. I will try to find out definitly this weekend. I have had them with no telltale reaction, but for now better safe than sorry. My problem is that my body doesn't react right away like lots of people here, so if I do have D and fatigue I can't really pin point the source.
  2. nettiebeads
    Not really. After nine years of this, my taste buds seem to have forgotten a lot of things. When I see restaurant adverts I look at it and think 'Poison'. And who wants to eat poison?
  3. nettiebeads
    Hmm... I've got a three day weekend coming up. And if my old van doesn't cost me too much on Fri - I may have to experiment. Seeing as smirnoff twists are out.
  4. nettiebeads
    Yep, classic cross-contamination. My kitchen is mostly gluten-free free, but since my hubby is normal (in dietary issues anyway ) I worry about cross-contamination alot. Constant handwashing, and drying them with papertowels in the kitchen, since he wipes down the counters with the dishtowel after he gets done preparing his non-gluten-free foods. And...
  5. nettiebeads
    I agree with julie. If after three weeks of total gluten-free there is no improvement, I'd seek another answer. And take him off of diary products too, as those are hard for people with celiac disease to handle at first. Hope he's better soon! And if it makes him feel better, I'm 46 and have had soiling accidents too when I've been glutened. My heart...
  6. nettiebeads
    I'm sure it would work just fine. Gluten is gluten, vital or not and your body will treat it as such. Good luck!
  7. nettiebeads
    Hmm, obviously more of us out there than they thought! I used to work grocery, and I know that there is a supermarket mag. I hope they mention the increase foot traffic gluten-free products bring in and then hopefully an increase in related sales - fruits, meat, veggies. Unfortunantly, for big chains, you have to appeal to the bottom line. But my hope...
  8. nettiebeads
    Me, I'm zoloft 50 mg a day. I had celiac disease before I developed dysthymia. My first depressive episode was when I was nine. I don't think my celiac disease caused my depression, I'd been treated for it a few times before I developed celiac disease, but I'm sure in looking back that my celiac disease sure aggravated my depression. Of course, living...
  9. nettiebeads
    Was it a malt? I know I'm confused about those cooler things too, so I adopted 'when in doubt, do without'. I bet Richard knows. I read where we're not to have anything to do with malt because it comes from barley which is a no-no. I miss my Smirnoff twists, but the label says malt beer and so I walk past it now. I swear my body is becoming more sensitive...
  10. nettiebeads
    what's barrett's ring? I'm glad you are trying to mend your body. Maybe when they see the new improved you with your new improved health they might consider it. You can't force them, but try to gently, continuously persuade them. Here's to health!
  11. nettiebeads
    Good for you! And I think I read somewhere that October is Celiac month. Good way to approach the subject. Let us know how things go. I should post something on the bulletin board at our health food store. The owner has expanded the gluten-free product shelf space in her store so I KNOW I'm not the only one.
  12. nettiebeads
    That sure gives me hope!!!! Won't it be nice when celiac disease is recognized as much as diabetes is? And for all of us who don't have Giant (I used to live in upstate NY so I know which chain you are talking about) could you give us an outline of what your mom learned? Thanks.
  13. nettiebeads
    Hello and welcome. We're here to help and as you probably surmised, any question is an okay question. None are too personal or out there. And of course, if you need to vent, please feel free too. I'm happy for you in that you got a GI that figured it out for you. Good health to you too!
  14. nettiebeads
    Please check into the FMLA - You can take time off to heal, the company CANNOT fire you, demote you or "reposition" you during this time. I know the health insurance is very important, but by taking time off I think you could make a more rational decision than what you could right now. If it helps any, I understand your position some; I'm the accountant...
  15. nettiebeads
    I am more or less HR for our company and I believe that you would be protected under the Family Medical Leave Act- any company that has 50 or more employees is required by FEDERAL LAW to comply with this act. Get with HR, go online, pm me, whatever. You should not be subjected to the verbal abuse and your boss can be liable for legal repurcussions if you...
  16. nettiebeads
    Your stools sound like celiac disease. The floating, discoloration is from malabsorption, especially fats. The fatigue, depression and irritability could also very well be celiac disease. If he rules for IBS, get a second opinion, or go on the gluten-free diet anyhow and see if you improve.
  17. nettiebeads
    My first guess would be the same as Karen's- fibroids. Mine cause horrible periods; one was so bad that it attached itself to my pelvic floor and I ended up with a total hysterectomy. I don't know if your GI would order an ultrasound, but if he won't, go to a gp or ob/gyn and see if he/she would order one.
  18. nettiebeads
    Well to give your f-i-l credit, he seemed to have been trying to get his mind around your condition. You can't change the way people think or look at you regarding celiac disease, but you can control your reaction to them. You are new to this and it is probably a little overwhelming - your new diet/lifestyle, explaining to others as you come to grips with...
  19. nettiebeads
    When I've been glutened, the depression and rage really show up. Then I have to just tough it out for 12 to 24 hours before I feel emotionally more stable. Are you being glutened from some source? When did your mood swings and fatigue come in? The fatigue is a definite sign of ingesting gluten. How long were you sick before going gluten-free? The healing...
  20. nettiebeads
    I think it is a different genetic problem, which of course could be aggravated by celiac disease - malabsorption reducing calcium to the body.
  21. nettiebeads
    Ah, yes, the dreaded depression. Part of it is from being sick and saying good-bye to your former eating lifestyle. Most of it is because of celiac disease. I'm on zoloft for good for dysthymia, but when I've been glutened my meds don't affect the depression that results from being glutened. It will go away. I'm glad you have a good support group, have...
  22. nettiebeads
    Yes, it is upsetting to have to make such a drastic change in your food lifestyle. But what you get in return is a healthier body, so the payoff is definitely worth it. The main thing to look for on food lables is wheat, wheat flour, wheat starch. Stay away from malts, anything that says barley, rye or oats. In other words, the less manufacturing into...
  23. nettiebeads
    Me three. Only it's 30+ pounds I need to lose. I figured it was probably being denied enough foods already and now I have to deny myself even more But I try to look on the positive side of getting this weight off - my left knee will probably stop hurting, my left foot will be better (fallen arch), and a new wardrobe!
  24. nettiebeads
    My good ole gp (since retired) had me do the diet challenge, I felt great, ergo he dx celiac. I don't think I had gluten intolerence, it is celiac. And once a celiac, always a celiac as it is an autoimmune disorder. Think diabetes - can be controlled, but you always have it. What difference does it make to other whether you have been officially dx through...
  25. nettiebeads
    I really wonder about people in the service industry who forget about service. It is nice to support the local businesses, but when they don't show any appreciation to you, the customer, their reason for being in business, then you don't have to frequent their establishment. And for $7 (did that include drink?) you could buy a loaf of gluten-free bread...
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